My daughter Libby died when she was a baby. Here she is with my husband. He is holding her moments after a final, failed attempt at resuscitation. It is the saddest photo I own.




Libby had a mitochondrial disease. I'd never heard of such a thing until she was born.

After Libby died someone told me about The Children's Mitochondrial Disease Network. This was in 1999, in the days of dial-up