Bone Marrow and Stem Cell A Guide for Patients is the next generation of Susan K. Stewart's groundbreaking 1992 book Bone Marrow A Book of Basics for Patients. This new 228 paage guide combines solid medical information with the voices of people who have been through a transplant. Comprehensive and easy-to-read, Bone Marrow and Blood Stem Cell A Guide for Patients is a goldmine of information for people considering a transplant with donor marrow or stem cells. The book covers a variety of topics and issues such as; History of Transplantation Nuts and Bolts of a Transplant Choosing a Transplant Center Finding a Stem Cell Donor Being a Donor Emotional/Psychological Considerations When Your Child Needs a Transplant Preparative Regimen Graft-versus-Host Disease Infection Liver Complications Nutrition Relieving Pain Caregiving Long Term What Lies Ahead Sexuality and Reproduction Insurance and Fundraising
Someone please write an updated guide. I donated in 2018 at Dana Farber. Highly recommend everyone register to become a donor, but donors also need more information about pain and realistic outcomes.
I got this book for unfortunately obvious reasons, but the misfortune that led to my reading it shouldn’t color my opinion of the book itself because I found it to be quite a useful resource. I read it cover to cover in anticipation of learning what’s to come over the next weeks or months, but if you or someone in your family is about to have (or is considering having) one of these treatments for a variety of blood or bone marrow cancers, I would also recommend keeping a copy of his book readily within reach because it’s not only useful at telling you what’s to come (both in the interest of warning about some things and in the interest of putting some potential fears to rest about other things) but also full of handy references regarding things like dietary changes or what to do if certain side effects occur.
To be sure, this is not a medical book. It does do a decent job of explaining things in lay terms. That’s a good thing and makes the book broadly accessible to the widest possible range of patients. Those of us with some biology or medical background, though, will definitely want to supplement it with a more technical read.
I hesitate to say I “recommend” this book. I honestly wish no one would ever need it. But if you find yourself in this position, it will be a useful and welcome resource for you.
Great information for anyone who has a family member or has to have a stem cell bone marrow transplant. The information ranges from the beginning of planning the process to the end and what you can expect once you go home. It was a good book to help us come up with question to ask the transplant team before and during the process. It was a very handy book to have on hand to flip to as my mom has been going through this process and I’ve been on the opposite coast. I could follow along and look in the book to see what’s expected at the different stages of recovery.
Really appreciated how accessibly Stewart presented the information on what seems to be an overwhelming process. Easy to read and comprehend with appendices that define the medical terminology.