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Rare: A Journey of Self-Acceptance
Zoë has been a Support Worker for the learning disability charity Mencap for five years and has just qualified as a counsellor. What many people don't know is that Zoë has two rare health conditions, Tuberous Sclerosis Complex (TSC) and LAM caused by two connected faulty genes that can affect the brain, skin, kidneys and lungs. Zoë had a relatively symptom-free childhood but as she entered adulthood, she suffered a life-threatening kidney bleed and multiple lung collapses that took a toll on her mental health. Throughout Rare, Zoë shares her journey of recovery and how she has come to accept aspects of herself that seemed impossible to surmount.
198 pages, Paperback
Published May 20, 2021
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August 14, 2025
I knew Zoë from birth and went our separate ways only to reconnect at secondary school- becoming really good friends. She was such a strong and brave young lady who I love dearly. And will forever have a special place in my heart🫶
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