The Lost Art of Healing Practicing Compassion in Medicine (1996) is cardiologist, Dr. Bernard Lown’s impassioned plea for patient-centered care, and against the corporatization of medical practice by the profit motive or fee-for-service. It is his manifesto of compassionate cardiac care:
• “Boston physician Francis Peabody counseled that the secret of care of the patient is caring for the patient.”
• “... Health care, instead of being an accountable system, has grown into a hodgepodge of corporate fiefdoms whose central aim is to maximize profitability for venture capital investors. To achieve this objective, time-honored clinical decision making by doctors is being curtailed. Arbitrary regulations, supervised by a burgeoning bureaucracy of technocrats, has now invaded every precinct of clinical judgment, whether involving drug prescription, the need for specialist referral, the propriety of an emergency room visit, or the advisability of hospitalization…”
• “In market-driven medicine the primacy of the patient yields to the perverse accountability of investors, bureaucrats, insurers, and employers. For-profit health care demands the doctor to perform as a gatekeeper to ration or deny health care… the doctor-patient relationship is undermined by the suspicion that any advice is determined by the corporate bottom line. For-profit healthcare is essentially an oxymoron…”
• “Patients crave a partnership with their physicians who are as sensitive to their aching souls as to their malfunctioning anatomy. They yearn not for a tautly drafted business contract but for a covenant of trust between equals earned by the doctor while exercising the art of caring… modern health care with a human face,”
The Lost Art of Healing emphasizes the importance of the initial History and Physical as both the keystone of the physician’s diagnostic armamentarium and also as the foundation for the doctor-patient relationship.
• “One must be an active listener to hear an unspoken problem.”
• “Attentive history-taking does more than add details. It is the most important aspect of doctoring. While obtaining a history takes time, no time is more productively spent. Ultimately it lays the foundation for human relationship between patient and doctor based on mutual respect…”
• “Lewis Thomas in The Youngest Science, comments wisely that touching (as in the physical examination) is the oldest and most effective tool in doctoring… Touching is a means for gaining significant insights… The remoteness dissipates… The ear riveted to the chest wall (through a stethoscope) was a display of human affinity.”
Lown carefully distinguishes the content and style of a doctor’s discussions with his/ her patient. The doctor’s intention to help is crucial. He tells care providers that ‘Words That Maim’ include, such classics as:
• “You have a time bomb in your chest’
• ‘You are a ticking time bomb’
• ‘You have a widow-maker coronary artery blockage’
In contrast ‘Words That Heal’ convey honesty without denying hope. The doctor must avoid overstatement and understatement while communicating both potential benefits and risks:
• “Acknowledged mistakes provide potent learning experiences. Admitting them helps ensure that they will not be repeated. The humbling avowal of error prevents doctors from confusing their mission with a divine one. We possess no omniscient powers, only intuition, experience, and a patina of knowledge…”
• “My aim in relating these stories is not only to emphasize the value of optimism and of communicating certainty, but the fact that medicine still requires navigating through largely uncharted waters. Many think that since we are living in the age of science, much of the guesswork is taken out of the practice of medicine… Effective patient management requires appreciation of the art of healing, in which one is guided by experience, by the recall of a similar case, and by the exercise of common sense. A sense of humility is also an asset… for any advice has a substantial amount of conjecture… There is never any certainty as to where an individual fits on the normal statistical distribution curve. Statistics may present probabilistic truth but they shred souls and individuality… When confronting uncertainty, the physician must be an ombudsman for the patient. But advocacy requires caring…”
Dr. Lown’s discussion on medical malpractice is balanced:
• “One cannot outlaw human error, and even the best doctors make mistakes.”
• “As every patient is unique, medical work is essentially experimental, uncertain, and prone to error.”
• “It is the insurance companies more than the victims of malpractice who are collecting the loot.’
• “The fear of malpractice has grown as a rationalization for lucrative procedures, especially invasive ones.”
• “Our health care system is breaking down because the medical profession has been shifting its focus from healing, which begins with listening to the patient. The reasons for this shift include a romance with mindless technology which is embraced in large measure as a means for maximizing income. Since it is uneconomic to spend time with patients, diagnosis is performed by exclusion, which opens floodgates for endless tests and procedures. Malpractice suits should be viewed a mere pustules on the physiognomy of a sick healthcare system. They are not what ails medicine in the United States, they are the consequence. The medical system will not be cured until the patient once again becomes central to the doctor’s agenda.”
The contributions made by the sections of The Lost Art of Healing on aging and death deserve to be studied by everyone who cares for the elderly, the critically ill, and dying patients. Among my favorite takeaways:
• “For many people, growing old is a passage to be dreaded, marked by abandonment and loneliness. But for those adequately prepared, it can be embraced with the ardor of youth and an insight that young people rarely possess. I see quite a few elderly, who in their tenth decade are still creative and dreaming…”
• “The elderly do not fear death as much as the long act of dying, the bumpy road to final dissolution.”
• “I am persuaded that loneliness incubates hypochondriasis. Furthermore, our culture medicalizes age, as though growing old were a disease… Many elderly are willingly entrapped in the burgeoning medical-industrial complex. Visits to doctors, like shopping, combat loneliness.”
• “The depression I encounter in the elderly comes not ‘as a howling tempest in the brain’ (William Styron, Darkness Visible)… It is a form of ennui with living that is so subtle that at times it defeats recognition. The smile of sociability has not vanished. The mask all wear is not turned down at the mouth. Conversation is briskly engaged. No change in attitude is admitted. It is when the doctor knows the patient well that one senses attenuation. The boast is gone. The bravado isn’t there. A sense of indifference or even defeat reigns around the eyes. The presence of a spouse is enormously helpful in confirming such observations… ‘Yes, Charly is depressed.’ Then details a wealth of somatic and behavioral changes.”
• “With the passage of time, I share my uncertainties with my patients. Contrary to expectation, this increases confidence and trust. The arrogance that doctors convey is a transparent coverup for enormous uncertainty! Humility is not granted to the young, but gifted to the old… It takes a doctor nearly a lifetime to clear from his or her system the tendency ingrained during medical education, to focus on rare and remote oddities; to think of zebras when hearing hoofbeats; to cease being on an ego trip; and to stop dreading being wrong.”
• “Experience with death does not lend wisdom to physicians any more than to undertakers… Doctors, however, are experienced in observing the process of dying, and indeed, they frequently shape the traverse of the final denouement, either as chief perpetrators of a technologic obscenity or as orchestrators of a serene passage.”
• “Sudden death does not prepare those who are left for the totality of the loss… The sudden death of a spouse, parent, sibling, or friend is an unanticipated destination undertaken without the preparatory journey. Such deaths leave an unfinished life, a lingering ghost long remaining unexorcised to haunt the living. I am not convinced that sudden death is a fair deal for everyone.”
• “The mere show of concern and affection is beginning of absolution, lessening the burden of pressing guilt. A last goodbye is emblematic of communion, a terminal reconnection that has enduring meaning for the living.”
• “The dying person struggles… to cling to a human identity, but the struggle is a losing one. Even the best of hospitals is an environment organized to depersonalize, infantilize, and disempower. The patient is detached from all that is intimate, familiar, and kind. Adding to the disintegrating image of self is the usurpation by anonymous others of decisions about life’s fundamentals.”
• “American culture has approached death not in a sensible manner but with a schizophrenic mix of denial and preoccupation. A French woman told me, ‘Americans are the only people who think death is an option’. This stems in part from the American glorification of youth…. But the paramount factor is hospitalization of the dying with the pervasive idea that death is somehow indecent and to be avoided at all cost.”
There are a number of humble acknowledgements of some of Dr. Lown’s extraordinary contributions to cardiology practice that make The Lost Art of Healing a first-rate, medical memoir:
• Identification of sympathetic and parasympathetic triggers for cardiac arrythmia
• The invention of the cardioverter – defibrillator and its clinical application
• The premature ventricular contraction (PVC) hypothesis in the etiology of sudden cardiac death (SCD).
• Description of Levine’s sign (Samual A Levine): “Levine emphasized the art of misdirection, for example, asking the patient to ‘point with a finger’ where ‘the pain’ is located. Angina is not (typically) sensed as a pain, nor can one point to it with a finger. If the patient nonetheless followed the instruction and pointed to a spot on the chest wall, one could forthwith dismiss the diagnosis of angina pectoris. If, however, instead of pointing, the patient clenched a fist or laid the flat of his hand on the midsternal area, angina generally was present. This was further confirmed if the patient, in describing the sensation used such words as ‘I find it hard to describe, it’s really not a pain, it’s more of a tightness, or a heaviness, or a squeezing’. Then the diagnosis was secure.”
Dr. Lown finishes his book by expressing gratitude for his career as a Doctor:
“I feel extraordinarily privileged to be a physician. A doctor, after all, has a front-row seat for an unmatched theatrical performance. While art may imitate life, it never quite measures up… rarely is one permitted to gain such intimate insight (into the life of another human). No pleasure is quite akin to the joy of helping other human beings secure their hold on life. This book (The Lost Art of Healing Practicing Compassion in Medicine) is a small recompense to my patients, ultimately my greatest teachers, who helped me become a doctor.”
I strongly recommend The Lost Art of Healing to doctors and patients alike. It has taken its place on my bookshelf, next to: Counsels and Ideals from the Writings of William Osler; James Forrester’s The Heart Healers The Misfits, Mavericks, and Rebels Who Created the Greatest Medical Breakthrough of Our Lives; Sherwin Nuland’s The Art of Aging; Atul Gawande’s Being Mortal; Abraham Verghese’s A Country of My Own and The Tennis Partner; Stephen Westaby’s Open Heart A Cardiac Surgeon’s Stories of Life and Death on the Operating Table; and Paul Kalanithi’s When Breath Becomes Air. None of these doctor’s books are perfect (any more than the doctors themselves), but all are that good.