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A Life Impossible: Living with ALS: Finding Peace and Wisdom Within a Fragile Existence
From NFL player Steve Gleason, a powerful, inspiring memoir of love, heartbreak, resilience, family, and remarkable triumph in the face of ALS
In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that takes away the ability to move, talk, and breathe. Doctors gave him three years to live. He was thirty-three years old. As Steve says, he is now ten years past his expiration date.
His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced. Writing using eye-tracking technology, Gleason covers his pre-ALS life through the highs and lows of his NFL career with the New Orleans Saints, where he made one of the most memorable plays in Saints history, leading to a victory in the first post-Katrina home game, uplifting the city, making him a hero, and reflected in a nine-foot bronze statue outside the Superdome. Then came his heartbreaking diagnosis. Gleason lost all muscle function, he now uses Stephen Hawking-like technology to communicate, and breathes with the help of a ventilator. This book captures Gleason and his wife Michel’s unmatched resilience as they reinvent their lives, refuse to succumb to despair, and face his disease realistically and existentially.
This unsparing portrait argues that a person's true strength does not reside solely in one’s body but also in the ability to face unfathomable adversity and still be able to love and treasure life.
In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that takes away the ability to move, talk, and breathe. Doctors gave him three years to live. He was thirty-three years old. As Steve says, he is now ten years past his expiration date.
His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced. Writing using eye-tracking technology, Gleason covers his pre-ALS life through the highs and lows of his NFL career with the New Orleans Saints, where he made one of the most memorable plays in Saints history, leading to a victory in the first post-Katrina home game, uplifting the city, making him a hero, and reflected in a nine-foot bronze statue outside the Superdome. Then came his heartbreaking diagnosis. Gleason lost all muscle function, he now uses Stephen Hawking-like technology to communicate, and breathes with the help of a ventilator. This book captures Gleason and his wife Michel’s unmatched resilience as they reinvent their lives, refuse to succumb to despair, and face his disease realistically and existentially.
This unsparing portrait argues that a person's true strength does not reside solely in one’s body but also in the ability to face unfathomable adversity and still be able to love and treasure life.
304 pages, Hardcover
Published April 30, 2024
102 people are currently reading
4049 people want to read
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Displaying 1 - 30 of 113 reviews
May 6, 2024
Since I was diagnosed with ALS in 2015 I have avoided books written about ALS. My mindset has been I live this hell why would I read about it. Then in year 9 for me I had difficulty in dealing with my progression and became curious about how to deal with it and along came Steve’s book. Combined with a curiosity about NFL , giving back and moving forward I was in! The first pages were relatable in some ways and absolutely heartbreaking in others. The wisdom for coping was invaluable and I took many notes. My admiration for what team Gleason has done for others is indescribable and grateful. Inspiration for thinking about my own ways to make a difference. Accepting that my story will be different, my influence not as large but ultimately with the common theme of loving your people and your life with all you have. I do think the wisdom alone is worth the time to read it. Also ALS is awful!
April 21, 2024
This memoir is RAW. Steve Gleason details his life journey from sports as a child into college and NFL, to his travels and marriage, to his diagnosis of ALS. Steve writes in detail about how ALS has not only affected himself and his day to day, but also how it has affected his friends and family, his marriage, and his parenting style. Steve uses his personable and witty writing style to share his personal story with the world. A truly eye-opening memoir into the world of living with ALS. Thank you for sharing your story, Steve!
& Thank you NetGalley for the ARC!
& Thank you NetGalley for the ARC!
May 24, 2024
After having read A Life Impossible, I am convinced that Steve Gleason is not a casualty of a tragedy or misfortune. Conversely, I believe that Steve was CHOSEN to endure this unbelievable affliction.
Why? Steve’s story seems to give credence to the idiom that “things happen for a reason.” If this saying is nothing more than a measure of comfort so that one believes that there is a hidden purpose behind an event, Steve’s life seems to epitomize this expression, for he has truly accepted that having ALS has shown him his purpose in life—that being—to work tirelessly to call awareness to ALS and improve the lives of others who suffer its indignities and degradation. Beginning with his improbable NFL career, the magical blocked punt against the Saints’ archrival Atlanta Falcons, to his absolute physical deterioration, Steve’s mystifying propensity and willingness to grow spiritually and emotionally leads me to believe that this was for the growth and development of the inner man and to serve others.
This is not to say that Steve has not endured unbearable low points, times when he felt so inadequate and useless and questioned God, but his spirit is bolstered by his wife who not only reminds him but professes that his “presence is enough” and that everything else he does is extra.
This memoir is so raw and real. Steve, unapologetically, draws back the curtains and allows you to see his life, the life of his faithful and devoted wife, and loving children. Steve has truly found an impossible way to live A Life Impossible, something I believe very few, if any other, could accomplish.
Why? Steve’s story seems to give credence to the idiom that “things happen for a reason.” If this saying is nothing more than a measure of comfort so that one believes that there is a hidden purpose behind an event, Steve’s life seems to epitomize this expression, for he has truly accepted that having ALS has shown him his purpose in life—that being—to work tirelessly to call awareness to ALS and improve the lives of others who suffer its indignities and degradation. Beginning with his improbable NFL career, the magical blocked punt against the Saints’ archrival Atlanta Falcons, to his absolute physical deterioration, Steve’s mystifying propensity and willingness to grow spiritually and emotionally leads me to believe that this was for the growth and development of the inner man and to serve others.
This is not to say that Steve has not endured unbearable low points, times when he felt so inadequate and useless and questioned God, but his spirit is bolstered by his wife who not only reminds him but professes that his “presence is enough” and that everything else he does is extra.
This memoir is so raw and real. Steve, unapologetically, draws back the curtains and allows you to see his life, the life of his faithful and devoted wife, and loving children. Steve has truly found an impossible way to live A Life Impossible, something I believe very few, if any other, could accomplish.
June 11, 2024
Awesome ain’t easy… but man Steve, Michel, and all of Team Gleason are fucking awesome
January 24, 2025
Wow. I don't read a lot of non-fiction...I always say I want to read more but it's rarely something I seek out. Instead I occasionally hear about non-fiction books others have read and loved and those are the ones i add ro my TBR. And books like this make me wonder how many other amazing books I'm missing out on because this was SO good. It's probably tied Sitting Pretty by Rebekah Taussig as my favorite non-fiction read.
This was sp heartbreaking and so hopeful and so inspiring. I dint have ALS but I do have another condition that causes me to be disabled and I can't even find the words to describe how much I related to the things Steve talks about in this book. I feel so seen...knowing I'm not alone in some of the things I think and struggle with as the result of my condition. How it's hard but you keep going, keep fighting, keep LIVING.
This is a new favorite...a book I expect I will read many times in my life and a book I want everyone else to read. I wish I had more words to express how much this book means to me...and I only just finished it but I KNOW it is one that will stay with me forever.
This was sp heartbreaking and so hopeful and so inspiring. I dint have ALS but I do have another condition that causes me to be disabled and I can't even find the words to describe how much I related to the things Steve talks about in this book. I feel so seen...knowing I'm not alone in some of the things I think and struggle with as the result of my condition. How it's hard but you keep going, keep fighting, keep LIVING.
This is a new favorite...a book I expect I will read many times in my life and a book I want everyone else to read. I wish I had more words to express how much this book means to me...and I only just finished it but I KNOW it is one that will stay with me forever.
Read
November 10, 2024Not fair to rate as I DNF. With a FIL that passed from ALS, I was very intrigued with his story. (Especially as my FIL passed within 2 years of diagnosis) This one is long. Very long. I got 1/2 through and felt like the story should be coming to a near finish. I still am curious as to what is happening today with Steve Gleason, but didn’t want to forge through another 1/2 a book for what the internet could tell me in 20 mins. Although I did not complete the book-I truly am empathetic to Steve’s (and his family’s) hardship. ALS is a force to be reckoned with- only The Lord can provide the strength (physical, emotionally and spiritually) needed.
January 4, 2025
This is just an astonishing feat, from the actual writing of the book to the vulnerability Gleason shows throughout. No sugar coating of any kind. So much admiration and respect for his resilience and survival.
April 29, 2024
This book is rich on so many levels!
A Life Impossible by Steve Gleason and Jeff Duncan is Steve Gleason's story of living with ALS or Lou Gehrig's Disease. Having worked with people living with ALS, I've read many similar memoirs and Gleason gives a truly unflinching look into living with ALS and especially how it plays havoc with the lives of not only the patient but also with the lives and emotional life of their caregivers. I appreciated how he doesn't try to posture as a noble person but rather one who is doing the best he can with the cards he has been dealt.
I also found it interesting to reflect upon Gleason's spiritual and ethical formation from his time spent at a Jesuit High School. He shares much about his spiritual journey and that was interesting and moving to me. There are parts of this book that are difficult to read and still I highly recommend it.
Thanks to NetGalley and the publisher for an advance copy of A LIfe Impossible in exchange for an honest opinion.
A Life Impossible by Steve Gleason and Jeff Duncan is Steve Gleason's story of living with ALS or Lou Gehrig's Disease. Having worked with people living with ALS, I've read many similar memoirs and Gleason gives a truly unflinching look into living with ALS and especially how it plays havoc with the lives of not only the patient but also with the lives and emotional life of their caregivers. I appreciated how he doesn't try to posture as a noble person but rather one who is doing the best he can with the cards he has been dealt.
I also found it interesting to reflect upon Gleason's spiritual and ethical formation from his time spent at a Jesuit High School. He shares much about his spiritual journey and that was interesting and moving to me. There are parts of this book that are difficult to read and still I highly recommend it.
Thanks to NetGalley and the publisher for an advance copy of A LIfe Impossible in exchange for an honest opinion.
June 19, 2024
A lot of the information in this book scares the hell out of me as the spouse of a pALS. Much of Steve’s story also inspired me, enlightened me, and validated many of the choices my husband and I have made. Steve is so vulnerable and brutally honest, not just about his physical struggles, but his emotional and spiritual struggles. I am grateful to him and his family for everything they do for the ALS community.
May 7, 2024
Steve Gleason has been my hero for a long time now...now his wife Michele is, too. I never regret the wisdom I receive when I take time to listen to Steve Gleason and his experience with ALS. Also, he has some truly side-splitting anecdotes tucked in there, too
June 18, 2024
Reflections: A Life Impossible – Living with ALS: Finding Peace and Wisdom Within a Fragile Existence by Steve Gleason with Jeff Duncan
I devoured this book in just over a day – then, I reread some chapters and passages that struck me on first reading, causing me to mark them with whatever sticky note, pen, or highlighter I had in arm’s reach. I will discuss some of those here. Others, I may keep my thoughts to myself, but I encourage you to read every word and find your own “life verses” within.
Steve Gleason is an awesome - but weird dude. The kind of dude I could imagine having met on one of my college adventures, seeking out alternative communities, spending weeks on communes, and observing as much of the spectrum of humanity as possible without my parents completely losing their minds.
I have worked within the official ALS realm for just over 10 years. Pre-Ice Bucket Challenge, but barely. I attended a very small private liberal arts college, one with fewer students than my large and far more diverse high school. In my senior year, a roommate of mine’s father was diagnosed with ALS. I had NO idea what that was. She ended up doing her senior capstone – a hugely valuable but now defunct requirement our school had at the time. I had graduated before her but attended her Capstone presentation to support her and learned that the disease I had always heard referred to as “Lou Gehrig's Disease” was, in fact, now referred to in the US as ALS – which stood for amyotrophic lateral sclerosis. I had known for a while that her Dad was “disabled” and unable to work. But there was never a label given to what was wrong, and it was a source of much confusion and concern. Now, it had a name and a terrible description. As my friend prepared her Capstone project and planned her wedding – all in hopes that he could attend and walk with her down the aisle, her father passed. I remember attending her wedding and grieving her loss, knowing how close they were and how much I know she missed him being here for this moment that I was now privy to.
Life really is a wild journey. That event was in the summer of 2001 – before 9/11 when the world view of many Americans (including myself) changed forever – and when I truly thought that despite having built my career around support for people with disabilities, I might never deal with ALS again. You see, I was told that ALS was an “extremely rare” condition. I now know that while not common, it is far from rare. It occurs and is diagnosed at similar rates to MS, but persons affected die so much more quickly that the “percentages” and number of people living with the disease at any one time fit within the rare threshold. A statistic that is often touted is that every 90 minutes, a person is diagnosed with ALS, and every 90 minutes, a person dies with ALS. That is fairly effective. But a few years ago, I attended a conference where a speaker said that numbers are better understood by saying, “one person in a cinema” or approximately 1 in 400 persons. That statistic is flooring and assumes an actual diagnosis, which concerns me for reasons I don’t have time for here.
So, there is way more background information than you need, but I “grew up” and based my initial career in disability. Starting with Autism and developmental disorders, I began a trajectory that is likely very familiar to many in social services. After years in that service, I felt a calling to help support entire family systems affected by disability, including adults. I eventually ended up working for an organization called Alabama Lifespan Respite, which supports caregivers across their lifespan and diagnoses. One of the partner organizations at the time was the Alabama Chapter of the ALS Association. It had been over 12 years since I had spent considerable time thinking about this disease, but here I was. They had an opening that was a great fit for me, and I took it. Much to my shock, in my first month on the job, I did a home visit for a person living with ALS in the Dothan area, and it turns out one of his daughters was a classmate of mine at the TINY college I attended. One of the number one questions people ask when you work in the ALS space is, “What is your personal connection? “ I always feel guilty admitting that I (thankfully) do not have a personal family connection. But I say to this day that there is no accident that God or fate had every intention of leading me here. So here I am, over 10 years later, still in this space. I still (Again, thankfully) do not have a family or personal connection to this disease. But I often think about the hundreds of people I know who are no longer with us on this earth but will always affect and be with me. I carry parts of their experience and the pieces they chose to pass on to me for the edification and benefit of others. The ALS community is as altruistic as any group you could ever find on this earth.
I want to tell you all to please read this book. I want to tell you all about books by Kerry Goode and Tim Shaw and others living with ALS that have changed my mindset and sometimes the way I experience the world. But I feel like I must first give context to those thoughts and opinions. My word count in the bottom left-hand portion of the screen tells me I am already nearing 1000 words. That is over 850 words more than is considered appropriate for a social media post. There is a LOT more on my mind, and I have not even gotten to the treasure of this BOOK. The best thing to do is leave this post here and follow it up with my other thoughts. So, each Monday, between now and however long it takes, I will post my thoughts. If you want to add your thoughts and comments, please do. My biggest weakness is that I am too much of an open book. I think that is part of why I identify with Steve so strongly. You may only get a personal message back, but I care what is on your mind. Thank you for following along to 1100 words. My best to you all.
I devoured this book in just over a day – then, I reread some chapters and passages that struck me on first reading, causing me to mark them with whatever sticky note, pen, or highlighter I had in arm’s reach. I will discuss some of those here. Others, I may keep my thoughts to myself, but I encourage you to read every word and find your own “life verses” within.
Steve Gleason is an awesome - but weird dude. The kind of dude I could imagine having met on one of my college adventures, seeking out alternative communities, spending weeks on communes, and observing as much of the spectrum of humanity as possible without my parents completely losing their minds.
I have worked within the official ALS realm for just over 10 years. Pre-Ice Bucket Challenge, but barely. I attended a very small private liberal arts college, one with fewer students than my large and far more diverse high school. In my senior year, a roommate of mine’s father was diagnosed with ALS. I had NO idea what that was. She ended up doing her senior capstone – a hugely valuable but now defunct requirement our school had at the time. I had graduated before her but attended her Capstone presentation to support her and learned that the disease I had always heard referred to as “Lou Gehrig's Disease” was, in fact, now referred to in the US as ALS – which stood for amyotrophic lateral sclerosis. I had known for a while that her Dad was “disabled” and unable to work. But there was never a label given to what was wrong, and it was a source of much confusion and concern. Now, it had a name and a terrible description. As my friend prepared her Capstone project and planned her wedding – all in hopes that he could attend and walk with her down the aisle, her father passed. I remember attending her wedding and grieving her loss, knowing how close they were and how much I know she missed him being here for this moment that I was now privy to.
Life really is a wild journey. That event was in the summer of 2001 – before 9/11 when the world view of many Americans (including myself) changed forever – and when I truly thought that despite having built my career around support for people with disabilities, I might never deal with ALS again. You see, I was told that ALS was an “extremely rare” condition. I now know that while not common, it is far from rare. It occurs and is diagnosed at similar rates to MS, but persons affected die so much more quickly that the “percentages” and number of people living with the disease at any one time fit within the rare threshold. A statistic that is often touted is that every 90 minutes, a person is diagnosed with ALS, and every 90 minutes, a person dies with ALS. That is fairly effective. But a few years ago, I attended a conference where a speaker said that numbers are better understood by saying, “one person in a cinema” or approximately 1 in 400 persons. That statistic is flooring and assumes an actual diagnosis, which concerns me for reasons I don’t have time for here.
So, there is way more background information than you need, but I “grew up” and based my initial career in disability. Starting with Autism and developmental disorders, I began a trajectory that is likely very familiar to many in social services. After years in that service, I felt a calling to help support entire family systems affected by disability, including adults. I eventually ended up working for an organization called Alabama Lifespan Respite, which supports caregivers across their lifespan and diagnoses. One of the partner organizations at the time was the Alabama Chapter of the ALS Association. It had been over 12 years since I had spent considerable time thinking about this disease, but here I was. They had an opening that was a great fit for me, and I took it. Much to my shock, in my first month on the job, I did a home visit for a person living with ALS in the Dothan area, and it turns out one of his daughters was a classmate of mine at the TINY college I attended. One of the number one questions people ask when you work in the ALS space is, “What is your personal connection? “ I always feel guilty admitting that I (thankfully) do not have a personal family connection. But I say to this day that there is no accident that God or fate had every intention of leading me here. So here I am, over 10 years later, still in this space. I still (Again, thankfully) do not have a family or personal connection to this disease. But I often think about the hundreds of people I know who are no longer with us on this earth but will always affect and be with me. I carry parts of their experience and the pieces they chose to pass on to me for the edification and benefit of others. The ALS community is as altruistic as any group you could ever find on this earth.
I want to tell you all to please read this book. I want to tell you all about books by Kerry Goode and Tim Shaw and others living with ALS that have changed my mindset and sometimes the way I experience the world. But I feel like I must first give context to those thoughts and opinions. My word count in the bottom left-hand portion of the screen tells me I am already nearing 1000 words. That is over 850 words more than is considered appropriate for a social media post. There is a LOT more on my mind, and I have not even gotten to the treasure of this BOOK. The best thing to do is leave this post here and follow it up with my other thoughts. So, each Monday, between now and however long it takes, I will post my thoughts. If you want to add your thoughts and comments, please do. My biggest weakness is that I am too much of an open book. I think that is part of why I identify with Steve so strongly. You may only get a personal message back, but I care what is on your mind. Thank you for following along to 1100 words. My best to you all.
January 4, 2025
An interesting and, not surprisingly, inspiring book. About 1/3 of the book is about Steve Gleason's pre-ALS story, including how this marginal NFL player became a sports hero in post-Katrina New Orleans.
The rest of the book is spent as Gleason takes us through the last dozen years since he was first diagnosed with ALS and it has ravaged his body. Because of his celebrity and personal drive, he has been able to significantly raise awareness of the disease, raise money for both treatment and improving the lives of those suffering, and extend his own life.
I wanted to be cynical about this book which tugs at the heartstrings and is filled with many variations of "be thankful for what you have" homilies, but I was sold by the rawness of much of the book, the author's openness, and his sincerity. It's hard not to come away thinking that maybe we could all do a little bit better or try a little bit harder when dealing with what the world throws our way.
Kudos to his wife Michel for exposing herself and her family as well, especially regarding the Gleason's marriage. That could not have been and easy decision.
The rest of the book is spent as Gleason takes us through the last dozen years since he was first diagnosed with ALS and it has ravaged his body. Because of his celebrity and personal drive, he has been able to significantly raise awareness of the disease, raise money for both treatment and improving the lives of those suffering, and extend his own life.
I wanted to be cynical about this book which tugs at the heartstrings and is filled with many variations of "be thankful for what you have" homilies, but I was sold by the rawness of much of the book, the author's openness, and his sincerity. It's hard not to come away thinking that maybe we could all do a little bit better or try a little bit harder when dealing with what the world throws our way.
Kudos to his wife Michel for exposing herself and her family as well, especially regarding the Gleason's marriage. That could not have been and easy decision.
Read
July 15, 2024With thanks to NetGalley, the author [s], and Knopf, Pantheon, Vintage, and Anchor/Knopf for providing this ARC, it is with deep regret that I will be unable to provide a review for this book at this time. I thank you for your understanding.
March 15, 2025
Such an inspirational and thought provoking story — a coming of age journey in celebrity, suffering, relationships, mental health, and the wisdom of explored faith and life itself. Not just another football jock bio.
#GoCougs.
.
#GoCougs.
.
May 31, 2025
ALS is a brutal disease for the patient & the family. Steve Gleason makes this clear. He also uses his fame, connections and energy to try to make the disease a little more livable. Inspiring and terrifying. And a whole lot of (understandable) soul searching, healing seeking, and religious wonderings.
June 1, 2025
4.5 good book. Steve Gleason's life from start to present. please watch the movie Gleason if you haven't.
January 1, 2025
I don’t know what has happened to me and I have been passed around from doctor to doctor. From Firefighter and Military to a screeching stop retired, neck surgery, pain, and just under 40.
I knew of Steve Gleason as a Saints fan and used the No White Flags Montra to help me get through boot camp, officer school, and any other tough moment.
Now he means more to me than I can type. When I want to give up, when the pain feels to much, I think of Steve. If he can go on to watch his kids grow than so can I. I pretty sure I will have a no white flags tattoo at some point.
This book is a gift to anyone who is struggling, doesn’t feel adequate, feels like they should be more playful with kids, or cheerful… my presence is enough.
Thank you for writing this book Steve Gleason. I’ve never met you but I love you, and owe you so much
I knew of Steve Gleason as a Saints fan and used the No White Flags Montra to help me get through boot camp, officer school, and any other tough moment.
Now he means more to me than I can type. When I want to give up, when the pain feels to much, I think of Steve. If he can go on to watch his kids grow than so can I. I pretty sure I will have a no white flags tattoo at some point.
This book is a gift to anyone who is struggling, doesn’t feel adequate, feels like they should be more playful with kids, or cheerful… my presence is enough.
Thank you for writing this book Steve Gleason. I’ve never met you but I love you, and owe you so much
January 8, 2025
Honest, raw, inspiring.
July 2, 2024
As soon as I heard about this book being released this year, I knew I would want to read it. Steve Gleason, who played for the New Orleans Saints, has a special place in the hearts of all Saints fans for many reasons - not the least of which is his magnificent blocked punt in the early part of the first game the Saints played in the Superdome after the city was ravaged by Hurricane Katrina. This game was played on September 25, 2006, on Monday night football against the hated Atlanta Falcons, to a raucous, sold-out crowd. After Steve’s blocked punt, which resulted in a touchdown and the first score on the scoreboard, the Superdome exploded with joy and happiness. No one will ever forget it.
But that is not the only reason New Orleanians love Steve Gleason. Three years after retiring from the NFL at the age of 33, Gleason was diagnosed with ALS. Six weeks later his wife found out she was pregnant. While coping with this devastating diagnosis, he and his wife Michel had to wrap their minds around the fact that they would soon be parents. When I read this memoir, I learned that Steve Gleason was such an active little boy - always pushing the limits in sports, from baseball to surfing, to hiking, to taking on daring physical challenges, and of course football. Now he was going to have to adjust to this new sobering reality.
This raw, brutally honest but beautiful memoir follows Steve, Michel, their extended families, their friends, and the New Orleans community as Steve learns to deal with this debilitating disease. As time went on, Steve turned his focus toward helping other people living with ALS. That is when he started the Team Gleason Foundation, which has helped thousands of people have access to life-saving technology. Most people with ALS live 2-3 years after diagnosis. Because of the resources Steve fortunately had, he was able to beat the odds. On January 5, 2024, Steve marked his thirteenth year with ALS. Stephen Hawking lived with it for 55 years. The vast majority of ALS patients do not have the money and/or resources to manage more than a few years. Team Gleason is helping many of these people have access to assistive technology that helps them cope with this disease, as well as facilitating trips with their families to help make precious memories.
I loved this touching memoir, and am so glad Steve Gleason challenged himself to write this, with his eyes only, telling the world what it’s been like - no holds barred. I admire him, his wife Michel, their son Rivers and their daughter Gray for showing how a family can rise to the occasion and demonstrate how, despite the odds, it can overcome adversity and learn to live life as best they can. Kudos to you, Steve, and to your family and your incredible support system!
But that is not the only reason New Orleanians love Steve Gleason. Three years after retiring from the NFL at the age of 33, Gleason was diagnosed with ALS. Six weeks later his wife found out she was pregnant. While coping with this devastating diagnosis, he and his wife Michel had to wrap their minds around the fact that they would soon be parents. When I read this memoir, I learned that Steve Gleason was such an active little boy - always pushing the limits in sports, from baseball to surfing, to hiking, to taking on daring physical challenges, and of course football. Now he was going to have to adjust to this new sobering reality.
This raw, brutally honest but beautiful memoir follows Steve, Michel, their extended families, their friends, and the New Orleans community as Steve learns to deal with this debilitating disease. As time went on, Steve turned his focus toward helping other people living with ALS. That is when he started the Team Gleason Foundation, which has helped thousands of people have access to life-saving technology. Most people with ALS live 2-3 years after diagnosis. Because of the resources Steve fortunately had, he was able to beat the odds. On January 5, 2024, Steve marked his thirteenth year with ALS. Stephen Hawking lived with it for 55 years. The vast majority of ALS patients do not have the money and/or resources to manage more than a few years. Team Gleason is helping many of these people have access to assistive technology that helps them cope with this disease, as well as facilitating trips with their families to help make precious memories.
I loved this touching memoir, and am so glad Steve Gleason challenged himself to write this, with his eyes only, telling the world what it’s been like - no holds barred. I admire him, his wife Michel, their son Rivers and their daughter Gray for showing how a family can rise to the occasion and demonstrate how, despite the odds, it can overcome adversity and learn to live life as best they can. Kudos to you, Steve, and to your family and your incredible support system!
May 19, 2024
I was vaguely aware of the punt block that Steve Gleason was famous for, and my primary interest in this memoir was to read about his experiences living with ALS and I saw the documentary about his diagnosis a while back. Steve Gleason's memoir is a raw take on the ups and downs (lots) with ALS. The first third or so of the book is about his childhood living in a very religious family with a tumultuous relationship between his parents. After playing multiple sports in school (baseball was his favorite), he receives a scholarship for football and after some trials and errors, he does get a contract to play with the New Orleans Saints. Gleason is a fascinating guy- he loves adventure, travel, living frugally, and new experiences. He becomes deeply enamored with New Orleans culture. He lives in a small place in the city, while most of his NFL playmates are living in high end condos or in the suburbs. He meets his future wife Michel, who is a New Orleans native. The bulk of the book tracks the start of his symptoms- twitching and weakness in limbs through his current state (permanent tracheostomy, can only move his eyes). I appreciated the specificity of what he deals with daily and the rawness of how his illness wrecked havoc with his relationship with Michel. What had kept them deeply connect was long and intense conversations that were upended when he lost his ability to speak. In addition to being Steve's primary caretaker, she is a mom to their son, and then future daughter. In many ways, it is a surprise they were able to find a new normal and stabilize their relationship.
Thank you to Knopf for the finished copy for review.
Thank you to Knopf for the finished copy for review.
October 30, 2024
Steve Gleason made a name for himself in the NFL as a determined and passionate player. His career highlight came in 2006 during a game against the Atlanta Falcons when he blocked a punt, leading to a touchdown that helped rejuvenate the spirit of New Orleans post-Hurricane Katrina. But in 2011, he faced a more challenging opponent—amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease. Rather than succumbing to despair, he has embarked on a mission to live life with purpose and inspire others facing similar battles. A Life Impossible, authored by Gleason with Jeff Duncan, tells of Gleason's incredible journey, his impact on the ALS community, and the invaluable lessons we can learn from his experiences.
Steve Gleason's story has left an indelible mark on the ALS community, sports fans, and those seeking inspiration. His relentless pursuit of a life worth living has inspired countless individuals to face their battles with courage and determination. Gleason's advocacy work has also led to tangible changes, improving accessibility and support for those affected by ALS.
Gleason's story reminds us of the importance of perseverance and hope in the face of life's challenges. By embracing these values, we can all strive to lead lives filled with purpose, meaning, and connection.
Steve Gleason's story has left an indelible mark on the ALS community, sports fans, and those seeking inspiration. His relentless pursuit of a life worth living has inspired countless individuals to face their battles with courage and determination. Gleason's advocacy work has also led to tangible changes, improving accessibility and support for those affected by ALS.
Gleason's story reminds us of the importance of perseverance and hope in the face of life's challenges. By embracing these values, we can all strive to lead lives filled with purpose, meaning, and connection.
June 12, 2024
This book is really so special that I hope people read it, even if it’s raw and graphic at times. It’s a tough read, graphic and uncomfortable throughout, but it’s also immensely readable and I sped through it. Steve is a great writer - he has a way of bringing you into moments and situations that put you right there. He’s immensely likable but also honest and real and candid about his disease, his marriage, his parenting and his faith. He is very well-read and knowledgeable about books and music and he peppers the book with great quotes. I am not a religious person, but I really appreciated hearing about his faith evolution and journey because, again, it felt so authentic. I hope Steve reads these comments because I know that writing the book was extremely difficult but it is an effort that will truly impact readers. I read over 100 books a year and this one will stay with me for a very long time.
May 8, 2024
I may be biased as a Louisiana girl and hardcore Saints fan (who dat!?) but Steve Gleason's A Life Impossible is a must read. For those who don't know, he became a New Orleans legend when he blocked a punt during the first home Saints game after Hurricane Katrina. Shortly afterwards, he was diagnosed with ALS at 34 yrs old. In this book he details the mental, physical, and emotional decline and the struggles he had coming to terms with his diagnosis. It's very raw and brutally honest (grab the kleenex!) But it's also inspiring. Team Gleason has done a lot for ALS community and he continues to do good work. "While the words in this book are static and fixed, I am not. I have discovered strength and beauty within the process of being completely broken. This body may be a prison, but my mind is free." 💙
June 6, 2024
“We all face the impossible at some point in our lives. By exploring acceptance, love, and the power of the human spirit, I recognize the innate peace in the midst of chaos. There is light in the darkness. The light within all of us. Every day. Every precious moment. I know it. I live it.”
An extremely emotional and honest memoir written by Steve Gleason, a retired NFL player diagnosed with ALS, using an eye-tracking software. His story is a strong reminder of how precious, fragile, and special life truly is. I really appreciate how he does not sugarcoat anything about the struggles ALS gives him with his day to day life, marriage, and retirement. His focus on gratitude, serving others, supporting others living with ALS, and being a good father truly inspired me. I highly recommend this read, but be sure to have a full box of tissues with you.
An extremely emotional and honest memoir written by Steve Gleason, a retired NFL player diagnosed with ALS, using an eye-tracking software. His story is a strong reminder of how precious, fragile, and special life truly is. I really appreciate how he does not sugarcoat anything about the struggles ALS gives him with his day to day life, marriage, and retirement. His focus on gratitude, serving others, supporting others living with ALS, and being a good father truly inspired me. I highly recommend this read, but be sure to have a full box of tissues with you.
May 3, 2024
I’ve actually never given a book 5 stars before. And I am a reader!!!
This book is more than an Auto-Biography, it’s a gift.
Steve Gleason is a hugely loved part of our City. Both as a SAINTS fan’s hero and an ALS warrior.
I was initially worried about it being too sad of a story to read, but….
The book is so much more. Steve’s perspective and love of life has given me a self renewal. His rise above adversity through monstrous challenges is completely beyond my comprehension and imagination. Not just his, but Michel’s as well.
The book is a love story and an eye opening lesson on what it is to LIVE the life we’re given.
It’s a soul laid bare, poetically written, for all to see.
Thank you for this gift Steve.
This book is more than an Auto-Biography, it’s a gift.
Steve Gleason is a hugely loved part of our City. Both as a SAINTS fan’s hero and an ALS warrior.
I was initially worried about it being too sad of a story to read, but….
The book is so much more. Steve’s perspective and love of life has given me a self renewal. His rise above adversity through monstrous challenges is completely beyond my comprehension and imagination. Not just his, but Michel’s as well.
The book is a love story and an eye opening lesson on what it is to LIVE the life we’re given.
It’s a soul laid bare, poetically written, for all to see.
Thank you for this gift Steve.
May 18, 2024
One of the best, most honest books I have read, possibly ever. One of my favorite paragraphs comes on one of the last pages:
“While I will continue to explore the beautiful truth of the impermanence of the only life I can be sure I have, what I’m really interested in and passionate about is not how to die, but how to live, in the present. I love the guidance from Jesus told by the author of Matthew. He says, do not worry about tomorrow, for tomorrow will worry about itself. For me, these words from my homeboy are a call to live my purpose in being human, to be present and love this life, and the people I’m with. To fully appreciate every moment. Right here, right now, even on the fragile precipice.”
What a beautiful and honest reminder to us as humans.
“While I will continue to explore the beautiful truth of the impermanence of the only life I can be sure I have, what I’m really interested in and passionate about is not how to die, but how to live, in the present. I love the guidance from Jesus told by the author of Matthew. He says, do not worry about tomorrow, for tomorrow will worry about itself. For me, these words from my homeboy are a call to live my purpose in being human, to be present and love this life, and the people I’m with. To fully appreciate every moment. Right here, right now, even on the fragile precipice.”
What a beautiful and honest reminder to us as humans.
November 29, 2024
When I picked up this book and read the cover and flaps I hesitated to commit to reading it. A book about ALS and the trial of a person dealing with it for survival. I was vaguely familiar with the author Steve Gleason through sports, but did not know any of the particulars of his career as a football player or what had happened to him. I decided to go ahead and read, and I was not only glad I had the opportunity but learned a great deal about many things connected to life and will.
Steve grew up in athletics and early on showed talent in baseball, soccer, and eventually football where he made his mark. Though he was on the small side he was a talented athlete and succeeded on a level that very few in sports come close to; a position as an NFL team player. Yes, he was only on special teams, but as he showed, he was special himself and carved out a niche on these teams that led to fame with the New Orleans Saints.
On the journey to his professional career coming out of Washington State University Steve also grappled with a dysfunctional home life growing up that eventually led to a divorce. He also was tested spiritually in a family that was grounded in fundamentalist religious controls. Steve, as he has done his entire life set his own course always facing the doubters, detractors, and nay-sayers. He succeeded in not only in his career as a football player but as a human being on largely his terms.
We have seen or heard of these success stories before, he settles into New Orleans, completes nine successful years with the Saints and is shot to fame when he blocks a punt against Atlanta at the Superdome on the heels of the great Hurricane Katrina tragedy of this city. When the Saints returned to New Orleans for this iconic game it was a big deal, because it was not certain at the time they would even come back there as the destruction and recovery was so extensive including to the Superdome. That blocked punt by Steve was no accident he was very much a specialist that brought it off through hard work, talent, and resolve. He was forever elevated by the fans of this team and city for that play as the Saints went on to defeat the Falcons and set the path for their eventual Super Bowl Championship; and the total rebirth of the spirit the city needed to come back.
Upon retiring shortly thereafter Steve is struck down by one of the most devastating diseases one can encounter, namely Amyo Lateral Sclerosis, or ALS, also known as Lou Gehrig's disease. Gehrig of course the iconic baseball player who succumbed to it. This book and its story is how Steve Gleason and his family were faced with and dealt with the devastation of the disease and how it eventually robs its victims with every aspect of their life including that, sparing only their mind.
There are many heart breaking and yet uplifting moments presented to us that Steve had to come to terms with, the positives and negatives. Not only to him but his wife Michel who suffered nearly if not as much, particularly emotionally. Yet they persevere through the daily and long term hardships and even manage to begin and raise a family which is truly remarkable.
The book is very well written and Steve expresses every thought and emotion with such impressive detail and feeling that one cannot finish without being awestruck.
I certainly was. It left me wondering about my petty concerns with adversity in my life and how I deal with them in contrast to what he takes on daily.
His story also exposes how human will and the resolve to survive can be tested to a level that few will encounter. One of his thoughts he expressed dealt with how we all must come to terms of the eventuality of our own death and the challenge that presents. He also emphasizes that no life is without tests that bring out in us how important it is to take them on, accept, and prevail as best we can. Steve is a true super star unparalleled in this respect.
The book should change everyone that reads it in a positive way by appreciating the good things in life as well as the challenges. You could not have a better role model than this fellow. I certainly have gratitude that I read it and learned from Steve's wisdom and lessons. Life lessons you don't get in a classroom through theory or example, but in the here and now of living each day.
Steve grew up in athletics and early on showed talent in baseball, soccer, and eventually football where he made his mark. Though he was on the small side he was a talented athlete and succeeded on a level that very few in sports come close to; a position as an NFL team player. Yes, he was only on special teams, but as he showed, he was special himself and carved out a niche on these teams that led to fame with the New Orleans Saints.
On the journey to his professional career coming out of Washington State University Steve also grappled with a dysfunctional home life growing up that eventually led to a divorce. He also was tested spiritually in a family that was grounded in fundamentalist religious controls. Steve, as he has done his entire life set his own course always facing the doubters, detractors, and nay-sayers. He succeeded in not only in his career as a football player but as a human being on largely his terms.
We have seen or heard of these success stories before, he settles into New Orleans, completes nine successful years with the Saints and is shot to fame when he blocks a punt against Atlanta at the Superdome on the heels of the great Hurricane Katrina tragedy of this city. When the Saints returned to New Orleans for this iconic game it was a big deal, because it was not certain at the time they would even come back there as the destruction and recovery was so extensive including to the Superdome. That blocked punt by Steve was no accident he was very much a specialist that brought it off through hard work, talent, and resolve. He was forever elevated by the fans of this team and city for that play as the Saints went on to defeat the Falcons and set the path for their eventual Super Bowl Championship; and the total rebirth of the spirit the city needed to come back.
Upon retiring shortly thereafter Steve is struck down by one of the most devastating diseases one can encounter, namely Amyo Lateral Sclerosis, or ALS, also known as Lou Gehrig's disease. Gehrig of course the iconic baseball player who succumbed to it. This book and its story is how Steve Gleason and his family were faced with and dealt with the devastation of the disease and how it eventually robs its victims with every aspect of their life including that, sparing only their mind.
There are many heart breaking and yet uplifting moments presented to us that Steve had to come to terms with, the positives and negatives. Not only to him but his wife Michel who suffered nearly if not as much, particularly emotionally. Yet they persevere through the daily and long term hardships and even manage to begin and raise a family which is truly remarkable.
The book is very well written and Steve expresses every thought and emotion with such impressive detail and feeling that one cannot finish without being awestruck.
I certainly was. It left me wondering about my petty concerns with adversity in my life and how I deal with them in contrast to what he takes on daily.
His story also exposes how human will and the resolve to survive can be tested to a level that few will encounter. One of his thoughts he expressed dealt with how we all must come to terms of the eventuality of our own death and the challenge that presents. He also emphasizes that no life is without tests that bring out in us how important it is to take them on, accept, and prevail as best we can. Steve is a true super star unparalleled in this respect.
The book should change everyone that reads it in a positive way by appreciating the good things in life as well as the challenges. You could not have a better role model than this fellow. I certainly have gratitude that I read it and learned from Steve's wisdom and lessons. Life lessons you don't get in a classroom through theory or example, but in the here and now of living each day.
January 13, 2025
A book filled with a mix of emotions; joy, love, elation, pride, extreme sadness, depression and so many others.
My daughter in law loaned me the book. Her husband, my son, is 48 years old. For almost a decade my son has had an undiagnosed or misdiagnosed neurodegenerative disease process. He has been evaluated at several well known healthcare systems including University of Michigan, the Mayo Clinic in Rochester, MN, Henry Ford Healthcare and satellite clinics with other healthcare systems. He has been examined by literally dozens of healthcare experts. His extensive diagnostic testing has ruled out many diagnoses but has never definitely "diagnosed" his presentation. His current treatment is provided by experts in MND at the ALS clinic at a major healthcare system in Michigan. This has opened a connection to the Gleason Foundation. As I type this review, my son has an appointment with Team Gleason for an assessment for some home modification and equipment to assist my DIL as she provides care to my son.
I learned so much about ALS as I read the book about Steve and Michel and their family. So many of the challenges my son and DIL have struggled with the past 10 years are discussed and verified as truth in the Gleason story. Steve tells the physical, emotional, physiological, psychological changes that ALS brings to not only the patient, but to the entire family.
It is obvious Steve and Michel are well educated, intelligent, hard working and driven, competitive people with many advantages in their lives. Yet, ALS knocked their feet (literally in Steve's case) out from under them.
Their story is intimate, hard, soul searching, scary but yet inspirational.
I have to admit, there are parts of the book that made me question if I could keep reading. Steve tells about many difficult things; body functions, sexual issues, the need for a "team" of round the clock caregivers, losing the ability to speak, etc. As I read through the numerous challenges, of course I could see the challenges my son, DIL and 11 year old grandson endure every single day.
I want Steve to know that even though parts were hard for me to read, I am grateful he was able to be brutally honest. He shared so many thoughts about his faith, about his exploration, about his never ending process to learn new things.
I could continue this review and include so many other meaningful sections of the book, however, I think people may tune out my thoughts.
Michel, you gave me a new perspective on issues my DIL deals with 24/7/365. Thank you for your brutal honesty.
I have explored the Team Gleason website at length. I made my first order of "No White Flags" shirts and some other items. The Gleason Foundation from this day forward, will be my primary organization for personal monetary donations. I Love how Steve and Michel made the mission and goals of their foundation to help those living with ALS, "Live with ALS."
Two last comment, we need to explore "voice banking" that I know is available due to the Gleason Foundation. I need to watch Gleason on Amazon Prime. I know I will need tissues!
My daughter in law loaned me the book. Her husband, my son, is 48 years old. For almost a decade my son has had an undiagnosed or misdiagnosed neurodegenerative disease process. He has been evaluated at several well known healthcare systems including University of Michigan, the Mayo Clinic in Rochester, MN, Henry Ford Healthcare and satellite clinics with other healthcare systems. He has been examined by literally dozens of healthcare experts. His extensive diagnostic testing has ruled out many diagnoses but has never definitely "diagnosed" his presentation. His current treatment is provided by experts in MND at the ALS clinic at a major healthcare system in Michigan. This has opened a connection to the Gleason Foundation. As I type this review, my son has an appointment with Team Gleason for an assessment for some home modification and equipment to assist my DIL as she provides care to my son.
I learned so much about ALS as I read the book about Steve and Michel and their family. So many of the challenges my son and DIL have struggled with the past 10 years are discussed and verified as truth in the Gleason story. Steve tells the physical, emotional, physiological, psychological changes that ALS brings to not only the patient, but to the entire family.
It is obvious Steve and Michel are well educated, intelligent, hard working and driven, competitive people with many advantages in their lives. Yet, ALS knocked their feet (literally in Steve's case) out from under them.
Their story is intimate, hard, soul searching, scary but yet inspirational.
I have to admit, there are parts of the book that made me question if I could keep reading. Steve tells about many difficult things; body functions, sexual issues, the need for a "team" of round the clock caregivers, losing the ability to speak, etc. As I read through the numerous challenges, of course I could see the challenges my son, DIL and 11 year old grandson endure every single day.
I want Steve to know that even though parts were hard for me to read, I am grateful he was able to be brutally honest. He shared so many thoughts about his faith, about his exploration, about his never ending process to learn new things.
I could continue this review and include so many other meaningful sections of the book, however, I think people may tune out my thoughts.
Michel, you gave me a new perspective on issues my DIL deals with 24/7/365. Thank you for your brutal honesty.
I have explored the Team Gleason website at length. I made my first order of "No White Flags" shirts and some other items. The Gleason Foundation from this day forward, will be my primary organization for personal monetary donations. I Love how Steve and Michel made the mission and goals of their foundation to help those living with ALS, "Live with ALS."
Two last comment, we need to explore "voice banking" that I know is available due to the Gleason Foundation. I need to watch Gleason on Amazon Prime. I know I will need tissues!
This entire review has been hidden because of spoilers.
June 17, 2024
Some books are challenging to review, requiring days of contemplation before I can share my thoughts. I realize that speaking too highly of a book can cause expectations that are hard to meet, but in this case, I recommend you research the book and read other reviews. I don't want to hype it up, but I do want to point out that the book ranks high on my favorite book list.
In his memoir co-written with Jeff Duncan, former NFL player Steve Gleason delves into various aspects of life. Don't let the football aspect deter you if it's not your cup of tea; the book delves into themes far beyond the realm of the gridiron.
Gleason initially caught my attention by offering a glimpse into his current life. From there, we back up to his early family life, college experiences, dating, football career, honeymoon adventures, and aspirations for the future.
His narrative is remarkably candid and captivating. One unforgettable moment is his honeymoon experience, evoking both cringes and smiles. The memoir is a multi-layered journey. His emotional response to being diagnosed with ALS, also known as Lou Gehrig's disease, is truly poignant. It's a testament to the emotional depth of the book that can leave readers grappling with their feelings.
What stands out the most is how Gleason and his wife candidly share their reactions to the diagnosis and navigate the challenges ahead. Their journey since the 2011 diagnosis, with the grim prognosis of a five-year life expectancy, is detailed with its highs and lows, showcasing what can be achieved despite limitations.
One Concern
A possible concern is that those uninterested in football may shy away from this book. Despite not being a die-hard football fan (unless my KC Chiefs are winning), I can't stress enough how this book transcends sports. It's a compelling read for everyone.
Final Thoughts
This memoir is a blend of so many things. It's interesting, informative, inspiring, heart-wrenching, uplifting, honest, and sometimes filled with raw emotions.
The resilience shown by Steve and his family will make you reflect deeply on your own life. Whether or not you're a football enthusiast, Gleason's memoir is inspirational. It's bound to leave you wondering about the human spirit and resilience in the face of overwhelming challenges.
Don't hesitate to pick it up – you won't be disappointed.
In his memoir co-written with Jeff Duncan, former NFL player Steve Gleason delves into various aspects of life. Don't let the football aspect deter you if it's not your cup of tea; the book delves into themes far beyond the realm of the gridiron.
Gleason initially caught my attention by offering a glimpse into his current life. From there, we back up to his early family life, college experiences, dating, football career, honeymoon adventures, and aspirations for the future.
His narrative is remarkably candid and captivating. One unforgettable moment is his honeymoon experience, evoking both cringes and smiles. The memoir is a multi-layered journey. His emotional response to being diagnosed with ALS, also known as Lou Gehrig's disease, is truly poignant. It's a testament to the emotional depth of the book that can leave readers grappling with their feelings.
What stands out the most is how Gleason and his wife candidly share their reactions to the diagnosis and navigate the challenges ahead. Their journey since the 2011 diagnosis, with the grim prognosis of a five-year life expectancy, is detailed with its highs and lows, showcasing what can be achieved despite limitations.
One Concern
A possible concern is that those uninterested in football may shy away from this book. Despite not being a die-hard football fan (unless my KC Chiefs are winning), I can't stress enough how this book transcends sports. It's a compelling read for everyone.
Final Thoughts
This memoir is a blend of so many things. It's interesting, informative, inspiring, heart-wrenching, uplifting, honest, and sometimes filled with raw emotions.
The resilience shown by Steve and his family will make you reflect deeply on your own life. Whether or not you're a football enthusiast, Gleason's memoir is inspirational. It's bound to leave you wondering about the human spirit and resilience in the face of overwhelming challenges.
Don't hesitate to pick it up – you won't be disappointed.
July 17, 2024
A difficult book to rate and yet a very important book to read if you are anyone that knows about someone struggling with a disability plus anyone that is a sports/NFL fan will want to read it. There is much to admire and like about the book, but a couple things rubbed me the wrong way. I got tired of the consistent use of four-letter words. I got tired of him pronouncing to the world what an oddity it was that he was a virgin when he met his future wife. There are many of us that can claim that Steve-O and it is not that extraordinary or uncommon. Also, he appears to be quite dogmatic on his conclusion about Christians, God and the afterlife. But he does go into great detail to notate his life-long struggle to find ultimate meaning. And this was a part of his young life way before ALS based upon how he viewed his dad's church and its "fundamental" beliefs. But the fact that it must have been extremely hard to write the book and be so transparent about his life and the journey once ALS settled in is quite extraordinary. It should speak to thousands. His thoughts on meditation should be helpful to many and his obvious love for his kids, wife and family is inspiring. I am sure his foundation does great work and to have been awarded the Congressional Gold Medal speaks volumes of the impact he and his team have had in our country and the world. The speech he gave at the ceremony along with the speech he shared in the book that he did back in 2016 to a local parish in New Orleans are memorable and show great thought and introspection. I just cannot imagine their life with ALS, so all due respect is due.
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