An ordinary family is faced with an extraordinary challenge a child with cystic fibrosis. This is their story, rich and moving, as they laugh and cry and learn and grow. Their love, faith and commitment to each other carry them through battles with depression, anger, despair, and the ravages of the disease as they join a race with death for a cure. What emerges is The Spirit of Lo, which enables the family and their community to face each new day of life's dance on the edge of mortality
The book does not go into much detail about the parents emotions during the time Lo was diagnosed nor thoughout her life and struggles. As a parent of a child with Cystic Fibrosis, I would have like to see more focus on the emotional toll her illness took on them. I felt like the book was lacking many details of the CF life.
The book is narrarated by the mother and the father. It flips back and forth between their perspectives much too often and it is sometimes difficult to keep up with who is currently narrarating.
I felt this was playing to my sympathies possibly to get money for research. I spent the entire book thinking that "Lo" would die before age 5 which I found very disappointing. Every life has its ups and downs and I felt they attributed too much of life's usual chaos to the CF instead of letting it be life.
As someone who has lost a family member to cf,I like to be kept informed about the cf community.This is a great book and Lo is a wondrful person,as is her whole family.I hughly recommend this amazing book.