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The Sjogren's Book
Afflicting one in seventy Americans, Sjögren's syndrome is an autoimmune disease that commonly causes dryness of the eyes, mouth, and nose, and that can lead to complications including profound fatigue, depression, and lymphoma. While there is no cure for Sjögren's, much can be done to alleviate the suffering of patients. This extensively revised handbook offers everything you need to know to cope with this disease.
The Sjögren's Book , Fourth Edition is a comprehensive and authoritative guide, produced by the Sjögren's Syndrome Foundation and its medical advisors and edited by physician Daniel J. Wallace, a leading authority on autoimmune disorders. This expanded edition provides readers with the best medical and practical information on this disorder, bringing together the current thinking about Sjögren's in an easily readable and understandable book, with an entirely new section on lifestyle issues aimed at improving the quality of life for Sjögren's sufferers. With more than thirty chapters written by leading experts, the handbook illuminates the major clinical aspects of the syndrome and is loaded with practical tips and advice. Indeed, it offers a wide-ranging look at the many faces of Sjögren's, covering diagnosis, the various organ systems that can be affected, the possible psychological problems, and the many treatment options, as well as a concluding chapter listing the web, print, and media resources available. It is a valuable aid that patients can use while discussing their illness with their physician and an excellent resource for family members. And because Sjögren's is greatly underdiagnosed, this handbook is a particularly valuable resource for healthcare professionals.
Recognized as the bible for Sjögren's suffers, this reliable and informative guide is the first place for patients to look when they have questions about this little known but serious chronic disease.
The Sjögren's Book , Fourth Edition is a comprehensive and authoritative guide, produced by the Sjögren's Syndrome Foundation and its medical advisors and edited by physician Daniel J. Wallace, a leading authority on autoimmune disorders. This expanded edition provides readers with the best medical and practical information on this disorder, bringing together the current thinking about Sjögren's in an easily readable and understandable book, with an entirely new section on lifestyle issues aimed at improving the quality of life for Sjögren's sufferers. With more than thirty chapters written by leading experts, the handbook illuminates the major clinical aspects of the syndrome and is loaded with practical tips and advice. Indeed, it offers a wide-ranging look at the many faces of Sjögren's, covering diagnosis, the various organ systems that can be affected, the possible psychological problems, and the many treatment options, as well as a concluding chapter listing the web, print, and media resources available. It is a valuable aid that patients can use while discussing their illness with their physician and an excellent resource for family members. And because Sjögren's is greatly underdiagnosed, this handbook is a particularly valuable resource for healthcare professionals.
Recognized as the bible for Sjögren's suffers, this reliable and informative guide is the first place for patients to look when they have questions about this little known but serious chronic disease.
- GenresMedicalHealthNonfiction
413 pages, Kindle Edition
First published August 9, 2011
57 people are currently reading
112 people want to read
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Displaying 1 - 8 of 8 reviews
November 18, 2017
Sjogrens help
This is the manual for anyone with either Sjogrens Syndrome or a family member suffering from it. Best resource available at any price.
This is the manual for anyone with either Sjogrens Syndrome or a family member suffering from it. Best resource available at any price.
May 24, 2021
Great info - much more than sicca. Some sections repetitive and it's a shame how little we understand about the illness, but will be a good and reliable go to resource for me.
July 7, 2018
nonfiction; medicine (autoimmune disease)
Comprehensive explanations and descriptions of Sjögren's and so many of its potential complications, written by doctors (hypochondriacs probably shouldn't read it, but if you are seeking info on specific aspects of the disease, this is worth checking out even if you've been lucky enough to find a doctor that recognizes autoimmune conditions). This isn't written for laymen--you will want to have a dictionary on hand, or at least make heavy use of the glossary at the end, as unfamiliar terms like "lymphocytes" and "purpura" are thrown about with abandon--though one of the editors has contributed a chapter that explains the molecular biology of DNA and genetics to you, in case you missed that in high school.
The back of the book contains a list of further resources, including support groups, that you may want to seek out, though the web addresses in this 4th edition may become outdated (from 2012):
www.sjogrens.org and www.facebook.com/SjogrensSyndromeFoun...
www.livingwithdryness.com (patient resources)
www.sjogrensforum.com
www.dry.org
www.sjogrensworld.org (2 listservs, forums+)
http://sicca.ucsf.edu/intl-usa.html (International Sjögren's Syndrome Registry)
Comprehensive explanations and descriptions of Sjögren's and so many of its potential complications, written by doctors (hypochondriacs probably shouldn't read it, but if you are seeking info on specific aspects of the disease, this is worth checking out even if you've been lucky enough to find a doctor that recognizes autoimmune conditions). This isn't written for laymen--you will want to have a dictionary on hand, or at least make heavy use of the glossary at the end, as unfamiliar terms like "lymphocytes" and "purpura" are thrown about with abandon--though one of the editors has contributed a chapter that explains the molecular biology of DNA and genetics to you, in case you missed that in high school.
The back of the book contains a list of further resources, including support groups, that you may want to seek out, though the web addresses in this 4th edition may become outdated (from 2012):
www.sjogrens.org and www.facebook.com/SjogrensSyndromeFoun...
www.livingwithdryness.com (patient resources)
www.sjogrensforum.com
www.dry.org
www.sjogrensworld.org (2 listservs, forums+)
http://sicca.ucsf.edu/intl-usa.html (International Sjögren's Syndrome Registry)
January 4, 2013
I'm not going to say that I liked this book. Who likes to read a book about their own condition? Their own life altering, debilitating condition? No, I did not like it. Was it enlightening? A bit. Educational? Definitely. There are lists of products that would be most useful in treating certain symptoms. That was useful. It gave me lots of questions to ask my Rheumatologist. He seemed amused that I was referring to this book. It's written with both providers and patients in mind. Seems my provider isn't a great advocate of the book. Oh well. I'm not married to it so it didn't matter to me. It was a good source of information and I'll keep it on my shelf for awhile as reference.
August 4, 2012
Although this book can get very scientific at times, it is an excellent reference book for those suffering from Sjogren's. Family members of Sjogren's patients will benefit from reading this extensive book as well.
November 9, 2014
Very technical and a great reference, this book is a definite for anyone diagnosed with Sjogrens.
August 6, 2023
Excellent Book with details on every aspects of the disease. The book delves into the physiological mechanism of disease progression with medical terms in it. But a reader from a non-medical background will also benefit from it, so lucid is the writing.
The disease is incurable, and chronic in nature. And the book attempts to analyse the psychological states of the disease and how to handle it. More than the patient, the caregiver will benefit from getting a better picture of how the patient feels.
My takeaway from the book is "the patients looks better than they feel. And it confuses the caregiver as to 'why aren't you fun like before'. And the patient continually tries to push herself to live upto the pre-diagnosis image of herself". This is perhaps the most important aspect to understand the mental state of any chronically ill patient.
The disease is incurable, and chronic in nature. And the book attempts to analyse the psychological states of the disease and how to handle it. More than the patient, the caregiver will benefit from getting a better picture of how the patient feels.
My takeaway from the book is "the patients looks better than they feel. And it confuses the caregiver as to 'why aren't you fun like before'. And the patient continually tries to push herself to live upto the pre-diagnosis image of herself". This is perhaps the most important aspect to understand the mental state of any chronically ill patient.
June 19, 2017
Like most medical literature, it is dry but very informative.
Displaying 1 - 8 of 8 reviews