Although the author did say at the beginning, the narration would appear a bit chaotic, it still didn't explain and excuse for how much it was chaotic. I struggled to see any thread which could have made it a whole. Switching between past and present wasn't the problem. The problem was with not much concept for it. And I understand that it wasn't easy to write it for Katarzyna Rosicka-Jaczyńska who at the time of publication was in the last stadium of ALS (amyotrophic lateral sclerosis), but there should be a redactor/editor, someone from the publisher to help with it. It would have been a better book then.
The next thing: Catherine (the author, it was her memoir) seemed a horrible person, also her whole family. It was awful how her kids (father, friends, etc.) sometimes behaved. And I understand, they had to cope with a totally changed life and Catherine lived a very (let's call it) specific life before the illness. But the problem was that the author didn't manage to show them as humans coping with her illness. From her pen, they looked to me like simply horrible.
Also, she obviously chose what to tell us about her past. I am not sure if she wanted to paint herself as a better person or just at the time of writing subconsciously forget what didn't fit her vision of herself. The sad thing was, that despite it, she painted herself as a unkind, awful woman (I am pretty sure, she didn't see it).
The last big issue I had with the book was the sermons or rather her religious thoughts. Again, I understand that she found consolation in it, but putting it all in the book wasn't a good idea.
Still, I don't regret reading it, because there were many important moments and descriptions. It showed me the point of view of a person who step by step, lost control of her body. And not only her but her whole surrounding, family, healthcare had to cope with it. We need more such voices, not only to better understand them but also because they teach us many things.
Poruszająca książka i dająca do myślenia jak wiele rzeczy wygląda z perspektywy chorego i niesprawnego... A zwłaszcza podoba mi się samokrytycyzm autorki, która o swoich wadach i błędach pisze szczerze. Czy książka zasługuje na 5 gwiazdek czyli max? Nie wiem może nie ale ciężko mi ocenić niżej, bo jak ocenić czyjeś życie?
Podziwiam autorkę za to że postanowiła podzielić się ciężkimi doświadczeniami ze swojego życia. Myślę że każdy czytelnik wyciagnie z tej lektury coś dla siebie. Ksiażka daje dużo do myślenia, pokazuje świat oczami chorego.
Pomimo stwardnienia rozsianego, kobieta napisała bardzo wzruszającą książkę, która niesie w sobie akt odwagi (pokazując światu swoje prawdziwe oblicze)