We Are Not Alone: Learning to Live with Chronic Illness

by Sefra Kobrin Pitzele

This is an essential layperson-Ys guide to coping with chronic illness-- or the 50 million Americans who suffer from diseases such as arthritis, diabetes, and multiple sclerosis, and for the people who care for them.

With firsthand insights of one who has been there, Sefra Pitzele details every phase, from the frightening onset of disease through the process of readjustment to the successful adaptation to new norms. She addresses the issues that most concern the chronically dealing with relationships; participating in sexual activities; helping your doctor help you; managing pain and depression; maintaining humor and dignity; more. She details adaptive living strategies from new ways to shop and cook to ingenious modifications at home and at work. There are nationwide listings of helpful organizations, support groups, products, and services. 44,000 copies in print.

Genres: Self Help

336 pages, Paperback

First published January 9, 1986

Reviews

[Peacejanz · Rating 2 out of 5]

I rated this book as a 2 because about half of the book is about living with a family when you have chronic illness. About half is applicable to all people in all situations. And, sadly for me, I knew most of what was in the book. Of course, I have lived with a chronic condition for about 20 years and one can learn a lot on one's own during that time. Most of the book is about taking care of yourself. Her chapters may be of benefit to some. The chapter on mourning your former self does not provide much - and there is no spiritual connection to any of this. I never would have made it this far if I did not have a spiritual life. The best thing about the book is the references; places to get information about specific diseases, basic info on government assistance, advocacy groups, etc. There are a few recipes for meals in the back. I don't know why they are included and I did not try any of them.

[Rachel]

Read in 1996. My review from then: Focus on incurable but manageable illnesses, like MS, lupus, arthritis, etc. She has lupus. Clear, well-written, informational advice on coping for the ill person (and support people).