Matthew Joseph Thaddeus Stepanek, known as Mattie Stepanek, was an American poet, who had six books of poetry and one book of essays all reach The New York Times bestsellers list. He became a peace advocate and motivational speaker, and lobbied on Capitol Hill on behalf of peace, people with disabilities, and children with life-threatening conditions.
Stepanek suffered from a rare form of muscular dystrophy, dysautonomic mitochondrial myopathy, that resulted in his death a month before his 14th birthday. His sister and two brothers also died from the disease during early childhood, and his mother, Jeni Stepanek, has the adult form, diagnosed only after all four of her children were born.
The most inspiring, beautiful, poet and peacemaker. It was a sad day in the world when Mattie died. Mattie was an inspiration to me and I always loved to hear what he had to say. He was so wise beyond his years. His poems moved me, brought tears to my eyes, made me laugh, made me smile, and made my heart hurt at times. Some of his poems he wrote at such an early age blew me away. He truly was a beautiful person.