With Every Breath: stories by and about people living with cystic fibrosis

by Katherine Russell, Margot Russell

Over 30,000 people in the US have cystic fibrosis, a life-threatening genetic disease that affects the lungs and digestive system. Physically, fighting it is a very perilous struggle. Emotionally, coping can oftentimes be even harder. With Every Breath consists of stories by and about people living with cystic fibrosis. Created to motivate, inspire, and generate positivity for those living with cystic fibrosis, this book is something you can open time and time again. Designed for all ages, this collection of diverse stories offers unique perspectives from patients, a CF doctor and nurse, and family members of those living with the illness. Patients aren't the only ones who will want to read With Every Breath as family members, friends, and doctors can all find inspiration when they open it. The stories range from overcoming challenges, understanding the disease, lung transplants, diagnosis stories, and more. The book is filled with fun artwork, uplifting quotes, and photography. Celine Dion contributed the Foreword, and there are chapters by people of all ages and walks of life. This book is sponsored by the Boomer Esiason Foundation, and all proceeds will go to cystic fibrosis.

Paperback

First published November 1, 2006

About the author

Katherine Russell is a writer and activist from Buffalo, NY. She graduated with a BA in Creative Writing from SUNY Geneseo and currently works with local nonprofits on various projects and freelances for companies all around the world. She is a double lung transplant survivor and writes about her experiences with cystic fibrosis. Her other writing themes include cultural interaction, challenging the American criminal justice system, and social change. Her debut novel, Without Shame, is now available from FB Publishing House.

Reviews

[Alex · Rating 4 out of 5]

This was such a wonderful, inspiring and uplifting book. I was feeling really down today and these stories made me feel so much better.

A big thanks to my dad for getting this book for me. This is definitely something I'll be pulling off the shelves in the future when I need to surround myself with stories of people who understand what I'm going through.