I was so excited to find this book. And given the casual racism in so many of the reviews, I was determined to like it, and did find many of the earlier essays interesting, informative and edifying.
But, with that said, I get the sense that the author somehow does not understand that we are still, actively, in a pandemic (because if she did, wouldn't she have said so, in no uncertain terms, even just ONE TIME?! Wouldn't this have been the *perfect* book to discuss this reality plainly and openly?? I therefore have to assume the omission of such a conversation is an endorsement of denialistic logic) and there are *millions* of chronically ill and disabled people who have been eliminated from society, do not have freedom of movement, and are effectively being held captive (albeit under vastly different circumstances than the forms of captivity discussed in the book, such as concentration camps or enslavement) for the sake of 'back to normal.' Given the extent to which the author focuses on and reiterates the centrality of all three of these experiences to her thesis - but does not even a single time connect them to the present day, or the covid pandemic she devotes an entire chapter to - I have to assume she either did not see a need to ground her research in disability justice...or just doesn't care. I don't get the sense she really considered chronically ill, immunocompromised and otherwise covid-conscious disabled people, as a comminity, at all. Either way, it is a galling, unfathomable omission for a book like this to make - a book, fundamentally, on the violence of historical erasure, enacting erasure.
I subsequently found this book deeply spiritually and psychologically painful to finish as a result. Disappointed isn't even the word. It was soul-crushing for me, a chronically ill and disabled person who has lost tremendous access to society since the onset of 'back to normal' under Biden in 2021, to realize, as the book wound down, the author was never going to engage with the pandemic of today thoughtfully or realistically. Superficial is, alas, the only word for her foray into the coronavirus pandemic.
Her concluding message of "just live life" vis a vis covid is not only offensive to chronically ill/immunocompromised people barred from society against our will, but outright reproduces and perpetuates far-right rhetoric (this is literally a far-right script that has been absorbed into the mainstream & normalized thanks to Joe Biden and establishment Democrats funded by corporations and billionaires with a vested interest in fascism & eugenics for economical and political purposes), whose rise she calls out in the post-script without, again, bothering to acknowledge its relevance to present-day narratives of denialism and eugenics. She profiles one chronically ill person in the covid essay, which initially had me optimistic, but concludes that essay with nonsense about this person eventually capitulating to just 'living her life' after she - a cancer survivor just coming out of chemotherapy (eg severely immunocompromised) - was told by her doctor that getting vaccinated would reduce her likelihood of contracting covid. The author does not understand this cancer survivor was not only gravely misinformed by her doctor, but put in harm's way; and thus does nothing to address this tension whatsoever. Moreover, she does not caveat for how the vaccines have failed to keep up with the rapid mutations of covid...due to denialism and the complete removal of precautions from society in the name of 'back to normal', otherwise known as 'living [your] life' (where the 'your' can never apply to high-risk groups who are informed of the risks, impervious to propaganda, and desperate to survive in the absence of adequate support and/or access to care; we've been left to "fall to the wayside" as a matter of policy). A complete and utter mess.
Rather, Bonhomme, who has spent much of the book rightfully explaining the historical violence of medical doctors and the medical industrial complex broadly (as a legacy of colonialism, and particularly against Black people), and arguing in defense of medical distrust as historically-relevant & thus valid, nevertheless takes this Dr.'s word as fact, even though there is by now a bounty of published scientific and medical research that demonstrates covid vaccines *do not* prevent transmission, only aid in the reduction of severity upon contraction - in immunocompetent people. I am not antivax (!!!). I am anti-misinformation, and the belief that vaccination is all one needs to never again worry about covid is *precisely* the reason chronically ill and IC people have not been able to access society in 5-6 years. Why did the author's research not extend deep enough to confront this? The information is not hard to find, and disabled people of various experiences and backgrounds have been toiling for going on six years to educate the public about this. I have lived this - this is my lived experience and the lived experience of SO many other disabled people I encounter online. Would it have killed Bomhomme to pay attention to us? To heed our experiences for a book written about how the experiences of the most disproportionately impacted members of society in a plague are so routinely minimized and/or erased? The irony is too painful to bear. The inclusion of only a single quote from Leah Lakshmi Piepzna Samarasinha (as an acknowledgment of the need for a disabled perspective) betrays the halfheartedness, at best, of her effort to weave disability justice into a book that so clearly beckons the utter centrality of such a lens.
In failing to acknowledge, in any way, the interminable nature of the covid pandemic, the very fact of this reality as an act of socio- and geopolitical violence against the disenfranchised (as Bonhomme repeatedly refers to the most marginalized), as well as the way her themes of captivity, un-freedom of movement and elimination from society are never connected with or exemplified vis a vis covid, ironically renders this book on plagues complicit in present-day pandemic denialism.
I am not trying to trash someone's hard work, especially when it covers other important histories that have been buried or minimized by a dominant narrative shaped in the image and likeness of power. That was precisely the reason I was so excited to have found this book in the first place - I appreciate the urgency of such a campaign of historical memory, because I am living, in real time, the devastation, pain, struggle and consequences of a history being warped and revised for the purpose of eliminating inconvenient realities entirely from that narrative. I also know my criticisms are complicated as a white reader critiquing a Black femme writer covering a book largely moored in Black histories. That is not lost on me, and I've done my best to be careful to shape my criticism around this complicated dynamic. I don't want to diminish or ignore that tension. But this pandemic is, for all the Black disabled/chronically ill/immunocompromised people who've been among those of us toiling to educate deniers about how pandemic denialism has eliminated us from society and directly expedited the rise of fascism and eugenics, also Black history. I just don't see how these interconnected histories ever stand a chance of being truly reclaimed, learned from, and returned to everyone they belong to if we can't even rely on each other to stand in solidarity and be honest about how past erased histories remain ensconced in our present and continue to limit our collective capacity for awareness.