從絕望到希望：一名醫生與罕病戰鬥及共存的長征

by David Fajgenbaum

一場莫名的大病打斷了大衛風光明媚的人生，
逼著他暫停了實習醫生與美式足球選手的身分。
從助人的醫生到無助的病人，身分180度轉變後，
躺在病床上的大衛為何不再相信醫學的奇蹟？
 
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大衛・費根博姆在正值青年之時罹患了罕見疾病。2010年，年僅25歲的大衛是一名實習醫生，更是綽號叫「野獸」的美式足球隊員，還與人生的摯愛凱薩琳交往甚密，這些看似美好的願景，原本應該鋪出幸福美好又令人生羨的康莊大道，但這一切卻在一夕之間驟然瓦解。
 
有一天，大衛在值班實習時突然倒地昏厥，不但淋巴結腫大，更全身無力到難以站起，即便經過了多次的開刀與檢驗，醫生們也只能得出「主要器官正在衰竭」的結論，沒人知道原因，只知道大衛即將死去。
 
驚恐充斥了大衛全身，瓦解了他原有的生活，他不但難以完成醫學院的實習課程，甚至一次又一次的在鬼門關前徘徊，各種臆測與治療處方完全無法挽回大衛的生命，他甚至已經做好了臨終道別，將遺愛人間──但突然地，他的疾病忽然自己好轉了起來，但疾病從未遠去，而是在他體&

214 pages, Kindle Edition

Published November 1, 2022

About the author

David Fajgenbaum, MD, MBA, MSc, is a graduate of Georgetown University, the University of Oxford, the University of Pennsylvania, and the Wharton School. An assistant professor of medicine at the University of Pennsylvania and the associate director for the Orphan Disease Center, he is cofounder and executive director of the Castleman Disease Collaborative Network, as well as the cofounder of the National Students of Ailing Mothers and Fathers Support Network. Dr. Fajgenbaum has been recognized with multiple awards, including the Forbes “30 Under 30” for healthcare and the RARE Champion of Hope Award for science. He has been profiled by major media outlets such as The New York Times, Forbes, Science, Reader’s Digest, and the Today show. He lives in Philadelphia with his wife, Caitlin, and their daughter, Amelia.