Nicole C. Kear's NOW I SEE YOU is a funny, sad, terrifying, and uplifting memoir about her very personal battle with a degenerative eye disease. Nicole was nineteen when a doctor diagnosed her with retinitis pigmentosa (RP), an untreatable genetic condition that would render her blind within fifteen years. She went from being a normal college student fretting over things like boyfriends and disappointing jobs to worrying about what would happen to the rest of her life - would her condition mean she couldn't be an actress, couldn't get married, couldn't have children, couldn't function in the world like everyone else? For the first few years after her diagnosis, Nicole did the best she could to hide her deteriorating vision, even going so far as to pretend intoxication to cover up all-too-frequent clumsiness. NOW I SEE YOU explores Nicole's journey from denial to acceptance, from fear to affirmation that truly living requires courage, honesty, and a willingness to embrace the challenges we face.
Much of Nicole's story is very familiar and recognizable - my guess is just about every woman on the face of the earth can identify with her boyfriend issues, her sexual exploration, her hysterical Italian family, her marriage, and her pregnancies. Her first labor (with son Lorenzo) was so like my own (including the prolonged contractions and the eventual epidural) that as I was reading I forgot all about her slowly failing vision. This was a young woman who reminded me of myself - albeit thirty-five years ago! And in many ways, that's the heart of this story. Nicole has an incurable disease and she will be blind by the time she herself is thirty-five, but she's also a woman with a world of things to experience. Her decision to live in that world - including having children, raising them, and watching them grow - is what transforms her from the victim of a disease to a woman with a mission.
This is a very funny book, told with brilliant directness and unfettered honesty. Nicole's greatest challenge from the start was accepting her advancing condition and the limitations that came along with it. She couldn't stand the idea of people knowing she was losing her eyesight, whether because of vanity, pride, or just fear. What she finally realized is, "Vanity, pride, and fear were formidable opponents but my sense of maternal duty was stronger." She used the words "maternal duty," but she could just as easily have said "passion to live," because it's not just her children who benefitted from her will to persevere. She's a loving wife to husband David and a wonderful daughter, sister, and granddaughter to her family. That's what impressed me so much about Nicole's story - it's more the story of everyone who comes to know her, including those of us who share in it through this book.
At the end of NOW I SEE YOU, as Nicole Kear was faced with the reality of being legally blind, she had to also face the fact that "You CANNOT do this ALONE!" That's an important realization for any of us. For years, Nicole hid from the truth about her battle with RP, but through her loving relationships (especially with her three children), she stepped out from the shadows and embraced all that life had to offer. This is a book all of us can relate to, whether we're facing a debilitating disease or just life's ordinary everyday slings and arrows of outrageous fortune. I recommend this highly to anyone who enjoys life-affirming true stories that celebrate the positive. Great story about a woman who has a lot to teach us all about living life.
[Please note: I was provided a copy of this novel for review; the opinions expressed here are my own.]