Silence and healing stories described in Introduction. Re: silence: "It is the source of the feeling of loss, but also a sense of awe." Re: healing stories: "They come together to create our own personal mythology, the system of beliefs that guide how we interpret our experience. Quite often, they bridge the silence that we carry within us and are essential to how we live."
"Perceiving foreknowledge of one's fate is one way to [heal trauma]...This longing for a connection deeper than random defines the human condition" (40-1).
"Feeling without knowing, that is our fate" (46).
"Perhaps intense trauma reaches back into memory and erases what needs forgetting. Maybe it's like the precise moment one falls asleep- remembering its passage might reveal a necessary secret" (48).
"Dr. McMeken performs an essential healing task. He relights my imagination" (52).
"This is a moment familiar to most of us, a time when life suddenly becomes different, like the day when getting kissed by a parent is no longer comfortable or skipping no longer feels cool. In such examples, childhood innocence is discarded- for example, the act of skipping- so that something else can be embraced; that is wanting, wanting to be a 'bigger' kid" (80).
"Living thus far has taken quite a toll. And yet, I would trade nothing. The richness and possibilities I can feel come directly from what I have experienced. I stand in awe of the transformative potential embodied by our consciousness.
This awe, however, still possesses the flavor of the moment just after gin and tonics ['Is this it?']. This fact does not weaken the drama of life. It begins it" (88).
"Living within a world created by adults is nothing new, not for me, not for any child. It is how we live" (95).
"The solution presented by the medical model- overcoming the silence with my will- reflects a deeply embedded healing story. Thus far, human survival has been a confrontation, whether with nature, other animals, or each other...The process has not been pretty, nor has it been easy, but the ability to overcome adversity through the exertion of our will has been crucial to our survival" (98).
"Sex for me was not a lusty, backseat experience. It had to be planned, thought about, and discussed. Even in these first few experiences, I was beginning to learn something that I have carried with me for a lifetime. Sexual expression is a shared exploration of intimacy and bodies. One consequence of my spinal cord injury has been a de-emphasizing of the central role played by sexual intercourse. While I am capable of it and even enjoy it, there is so much more to sexual intimacy than an explosion of physical sensation between the legs. I doubt that I would have known this as deeply had I not been a paraplegic" (144-5).
"The hardest times also begin healing. Living and dying occur simulatenously" (155).
"Where does a path begin?" (162).
"How did I get stuck in this all-or-nothing loop? Such a simple thought is a revelation. I have nothing to prove, no increase in physical strength is necessary for me to move forward. Rather, I can think, problem solve, and find my own way back from the floor...It may not be pretty or powerful or inspiring, but it works.
Finding the floor and a way back is healing. It may sound too simple, too easy to lift a damaged heart. But most of our shackles are invisible. I am leaving my wheelchair via a blue velvet chair. This is healing" (170-1).
"I am learning that my body has retained the memory; it has been holding pieces of my history until I was ready...These memories are not visual. They are not thoughts. They are experienced, something like the inward feeling of falling in a dream, only to wake up just before rolling off the bed. They are pauses of fright and held in the silence before breath. They are my body bearing witness to what my mind could not" (179-80).
"Healing, however, is not instantaneous. It is earned. There is no way to step around my body's past experience" (180).
"We all experience different levels of dying throughout our lives- the process of living guarantees it...then there are also the quiet deaths. How about the day your realized that you weren't going to be an astronaut or the queen of Sheba? Feel the silent distance between yourself and how you felt as a child, between yourself and those feelings of wonder and splendor and trust. Feel your mature fondness for who you once were, and your current need to protect innocence wherever you might find it. The silence that surrounds the loss of innocence is a most serious death, and yet it is necessary for the onset of maturity.
"What about the day we began working not for ourselves, but rather with hope that our kids might have a better life? Or the day we realized that, on the whole, adult life is deeply repetitive? As our lives roll into the ordinary, when our ideals sputter and dissipate, as we wash the dishes after yet another meal, we are integrating death, a little part of us is dying so that another part can live" (181).
Back of the elephant parable/lesson (185-6).
"I also know to trust time...Time keeps moving. It may move slowly, it may be without contour or flare, but it keeps moving...In those horrifically endless moments in intensive care, I learned how to stay faithful to living, to trust that the passage of time brings results- one way or another...If I stay faithful and keep my head down, if I work with integrity, the Universe will take what it needs. The number of years I spend doesn't matter because my faithful consistency causes time to lose its edges" (217).
"If nothing else, my life has taught me one thing: The mind and body that I have are the only mind and body that I have. They deserve my attention. And when I give it, I receive so much more in return. Learning to fall gracefully through one's mind-body relationship is not a submission. One learns to fall gracefully in order to roll" (222).
"You are living and dying simultaneously. This is the story of our aging consciousness. It is both the beginning and the end. It is a paradox of our existence and it gives me reason for hope.
Life and death, silence and action, emptiness and fullness at the same time- these are the inward features of everyone's life. They are truths that do not lead to answers. Instead, they invite us to believe in and appreciate our own experience. When we do, when we listen carefully to what we experience, the next story begins, the practical one, the story of what happens beyond waking" (243).
"I carry an insight that transforms the experience of living with a disability. It is simple; so ordinary that is easily passed over. The experience of presence within the body is a precious gift- a secrety to living well...Simply put, this change in the quality of your inward sensation is what I mean by presnece. When mind and body intersect, the result is the sensation of presence" (248-9).
What moves a person to action? How does one transform the experience of loss? Visions grow from the center outward, not in a straight line (quotes from beginning sentences of Afterword).