Genetics at Heart

by Philippe Amouyel, Héloïse Chochois (Illustrator)

A little spit, a short wait, and soon you’ve got the results of your DNA test, and with them a statistical peek into your ancestry. This sort of test is illegal in France, but that doesn’t stop the curious from having it done anyway. Besides, it sounds harmless and fun, doesn’t it? When a brilliant geneticist's daughter has the tests performed, she learns that it can lead to an upheaval of her world. As she struggles to cope with the results, she also learns of the uses—and misuses—of genetic testing. Family drama and an education in genetics intertwine in this fascinating look at the complexity of DNA, modern science, and the human heart.

Genres: Bande Dessinée, Graphic Novels, Comics, France, Science, Nonfiction

176 pages, ebook

First published April 28, 2023

Reviews

[BookBabeNails · Rating 4 out of 5]

»—-Booksta ¸.•´*¨`*• Book Blog •*`¨*`•. 25+ Book Discord-—«

I think it should be clarified that this is an educational and scientific book above all else. Judging by some of the reviews, I think the book’s summary doesn’t clarify that well enough and many readers are going into it expecting more of the drama side of things instead of the scientific perspective of the benefits and risks of genetic testing that they’re getting. This definitely throws readers off and I was in that boat as well before I quickly realized this was going to be an educational book and readjusted my expectations accordingly.

The artwork and color palette in this graphic novel is great. I was getting high school biology class vibes at first, although this would have been an admittedly more exciting way to learn about DNA and genetic testing. The first half of the book leans heavily educational, the second half is still educational but leans a bit more into the emotions that are intrinsically wrapped up in genetics testing.

If you go into the book with that in mind, it’s quite a good read! It has some humor to keep things going and I loved the true crime podcast section because I’ve heard about DNA testing in that capacity many times.

I think at the heart of it, this book is about informed consent when it comes to genetics testing. There are major benefits to genetic testing, but there are also potential risks in terms of who could have access to the data and how it could be used against you. Of course, when doing genetics testing you may also find out things that you later realize would have been better kept hidden away. At the same time, it can be used for preventative health and disease treatment purposes to save lives.

Overall, I enjoyed this graphic novel. I think the marketing just needs to be a little clearer so that readers know what they’re getting into because I do agree that the info dumps are off-putting, especially in the beginning.

Thank you to NetGalley and Europe Comics for providing an eARC in exchange for my honest review.

[Katharine · Rating 4 out of 5]

Thank you to NetGalley and the publishers for an advanced copy in exchange for my honest review!

I won't lie, the plot blurb had me thinking the story of this would be way different from what it actually turned out to be. For the most part, this graphic novel is an educational story that explains almost everything related to DNA and genetics, both scientific and social. It explains both the pros and cons of having your genetic testing done. It goes into explaining how DNA testing home kits work, how your genetic ethnicity is interpreted, as well how those companies can abuse your genetic information. It makes sure to hammer home some of the dangers of having your DNA tested on your own, and how it could possibly negatively affect you in the future. It also shows how DNA testing people within the family can reveal long-buried secrets that might be better off not being known. But the novel also explains the good parts of DNA testing. Genetic testing can help cancer patients have custom medical plans to help them have a high chance of beating their cancer. It can also people see what deadly diseases they are at risk of developing, and they can try and prevent them. This novel also really tries to hammer home that DNA tests should be handled by professionals and medical professionals. This graphic novel sort of has an over-all story, but for the most part, it is educational. The ending is very sweet though. The only downside is that it sometimes falls into the "wall of text" info-dumping, but they're explaining DNA and genetics. It's a bit hard to not have a wall of text. The art style is very cute, and I did enjoy looking at it.

[Irene ➰ · Rating 2 out of 5]

2/5

- Thank you to the author and the publisher for putting this title as a "read now" on NetGalley. -

Another read that started off very interestingly but fell unfortunately very flat.
The main problem I had with this was that it was too heavy texted.
It was definitely informative, and despite using very specific medical terms, they all were explained to our protagonists who dont't know all these words.

At some point I was so full of infos that I lost the plot somewhere in the middle.
Right now, I still have no idea what this book was about, if not that for an hour and a half I had a private science lesson by myself.
Drawings didn't help making the book more dynamic and the super small text definitely didn't either.

A missed apportunity for something different.

[☽｡⋆ Shells (jlreads_) · Rating 3 out of 5]

Genetics at heart is a pretty intriguing and perhaps educational graphic novel kind of in a sense of how it was delivered. Particularly with the DNA subject and how it was very informative— pretty info dump - than I'd prefer that it turns quite confusing at times.

This also touches on the importance of ethics in the field of medicine, research, etc, that is very important and is needed to follow— which kind of didn't happen here.

Overall, I think this is a miss for me. I honestly expected a different kind of storytelling.




~Thank you, Netgalley, and Europe comics for the e-arc.~

[Anya Smith · Rating 3 out of 5]

2.75*

[Camille B Tessier · Rating 3 out of 5]

3.5

[Veronika · Rating 3 out of 5]

an exploration of benefits and risks of the dna tests. I liked the mix of the personal family history and scientific explanations and the art style but wasn’t really hooked

[Bookmeaway · Rating 4 out of 5]

3.5/5

La génétique au cœur nous transporte à travers plusieurs histoires, celles de deux sœurs, celle d'un généticien et des patients qui sont passés par son cabinet, celle de la recherche sur l'ADN, de la génétique et comment ces informations sont et seront utilisées par les gens, les entreprises et autres...
C'est une bande dessinée très fluide, qui se lit rapidement. La narration est intéressante, une histoire se transforme en plusieurs qui mènent au présent, au passé, aux souvenirs du papa, à l'expérience de personnes qui ont eu accès à des informations sur leur génétique, qui ont probablement changé ou auraient pu changer leurs vies. Ce qui mène à la réflexion sur l'utilisation de ces données.
J'ai apprécié comment les histoires ont été mêlées les unes aux autres dans une lecture fluide. Les couleurs sont très agréables, le rendu donne une ambiance transportante. Le sujet est très intéressant et passionnant. On a un rappel et des explications sur plusieurs thématiques de la génétique. Y sont développées, mentionnées les dérives, avancées, opportunités, les exemples des conséquences sur les vies des patients.
On y notera quand même que le passage sur le covid est discutable, cela dépend de quand est-ce qu'est censée se passer cette histoire...

[Hagar El Husseiny · Rating 4 out of 5]

I loved this book because of the simple and profound way of explaining genetics. For me, it was a review of everything I had studied about genetics at university, and this made me excited to recommend it to everyone interested in this science.
The book begins with a question about the identity of the heroine as a result of her genetic analysis, and the writer completes his presentation of the origins of genetics from the beginning through wonderful drawings, moving on to the importance of genetics in treating diseases and finding solutions to the diversity of organisms and stopping the spread of viruses and other things in a dramatic narrative framework, all the way to the end that made me emotional with the drawing in the last pages that illustrated the relationship of the girl with her father and the link between the past and the present.
Good job I look forward to more from the author.

[Keila · Rating 3 out of 5]

Genetics at Heart by Philippe Amouyel and Héloise Chochois explores the good, the bad, and the ugly of genetics and its related studies. As a bio student and a bit of a science nerd, I loved how this graphic novel explained the concept of genetics in simple terms and by using real-life scenarios where it's used, such as in crime investigation and in identifying genes that give off inherited diseases to certain people. The art style used in the graphic novel while portraying the main storyline is simplistic yet pretty neat, and the story ended in such a cute and sweet moment between the father and his daughter who got upset over a genetic test she took.

Thank you to NetGalley and the publishers for an advanced copy in exchange for an honest review!

[Theediscerning · Rating 4 out of 5]

An unexpected graphic novel, all about the results of DNA testing – given an extra charge and frisson for being French, where the practice is illegal. Sure, the police are able to do it – and even re-do it and find their murder victim identities after decades – but at the time this was set the mail-order DNA results were not allowed. Here then is the narrative of how someone does it underhandedly, pays extra for a "free" health check, gets told he's likely to drop dead any time soon, and then finds that news is not private, not helpful, not welcome by the mortgage lenders – and not even accurate.

It's very easy to see from this then that these "wow, Mrs Blogger, you can tell the world you're 8% Persian, 2 bits Neanderthal and the rest comes from an hour's swim west of Tenerife" rubbish results are no use and should be prohibited. But this is much more of a science book than a campaigning one. It doesn't rush to drum into our minds that they're evil, for it spends a lot of time telling us how the tests – how DNA – work. And it doesn't pretend we're all going to be killing all and sundry with euthanasia because we know the genome so well.

We also see characters have a diagnosis due to genomics, first of Jolie-like breast cancer risks, and then for Duchenne muscular dystrophy, before the guy guiding us through this world tells us all a host of other good things about gene testing, just so we're all on the side of having it and assured it's generally doing us good. Throw in the over-arching narrative that allegedly inspires all this science transmission and you get a rich read.

I certainly didn't find it flawless, however. The read is very upright – many are the pages split vertically into three columns, and the artist then chooses to keep a small background the same for all three frames, or patch them together into one page-wide image, with the characters appearing in triplicate in three different parts of it at the bottom. Those tall frames took some getting used to, especially with the constant scrolling an e-book demands. But then on the credit side is the fact this decent level of science is conveyed quite well and almost with a sprightly touch. It certainly seems to have been scoured for truth by scientists and found full of it, and what we get is potentially at a higher level than the GCSE might concern.

That said, mind, I don't think it does it perfectly well for the curious chance reader, for the average browser. Only those that want to be informed of the pluses and minuses of these tests in this way could ever be thought of as having enjoyed this. But even though it's not for everyone it's very good at talking to the right audience, however much it may be preaching to the converted. And that ultimately makes me think it's worth four stars, however generous the science-adverse might end up thinking that grade.

[Kim Lockhart · Rating 4 out of 5]

The first thing I noticed was the cover. I loved how the ghosts of ancestry are embedded in the trees, which are themselves a record of life. It's subtle, yet effective.

Also subtly, the pictures are allowed to tell part of the story. There is a family photo with four people, yet we've just seen the father and one daughter. Immediately, we wonder about the mom and the other sister. (Don't worry; they're fine.)

The story begins with the father talking about trivial subjects as fathers tend to do, and the teen daughter becoming more and more annoyed. Finally, she breaks in with something important to her about which they strongly disagree: she wants to talk about a genetic test. They both know that the test is illegal in their country of France, but she's curious about what he thinks about them.

Careful what you wish for. Ha ha.

Their discussion reminds the geneticist father of a story, which of course makes his teen groan, but it's interesting to us, the readers. The memory involves the scene of an old crime, accidentally come upon by a construction crew. There is a lot of information about how a forensic pathologist can determine details about a person, just from their bones. I found that to be informative and perfectly brief. The succinctness of the text matches the spare style of the art.

As the forensic pathologist explains DNA, I realized that this graphic novel is designed to teach about the subject of genetics, as much as it is telling a story. This is exactly the way which most appeals to me, in terms of learning about a subject. The novel does a good job of explaining what DNA is, and how it can be extracted. The sequencing process was the area I knew the least about. Just as the explanations and information began to get a little dry, we are returned to the story side of the equation, which was perfect timing. I liked the examples using different families and scenarios.

The novel lays out the ways in which genetic sequencing could be beneficial and the ways it could cause harm (especially without any way to evaluate protocols). This presentation was definitely weighted against giving your DNA to just any company, but the novel also clearly sketches out examples where it would be a good idea to have your DNA checked for medical/health reasons, but only through qualified professionals and only for a specific purpose, and after receiving information about how the information will be stored and used.

It's a discussion which is extremely timely. I found it to be a good teaching tool. Thank you to Netgalley and Europe comics for providing an early copy of this graphic novel for review.

[Aubrie · Rating 3 out of 5]

Thank you Netgalley and the publisher for this ARC!

I chose to read this book because I needed something light (I usually go for a graphic novel when I don't feel like I can focus on a novel) and because the cover was just so gorgeous. Even after reading the book description, I was intrigued. Thus began my journey into this book.

Mesmerized by the first few pages of this book and its artwork, I kept reading on. I loved the way the speech bubbles were positioned, and the way the artwork showed the fatigue in the dad and the annoyance in the daughter. You can probably imagine my surprise when I realized this book was... not what I was expecting it to me, which was a heartfelt story about a dad and his daughter's genealogy.

Here's the most important thing you need to take away from my review: If you are someone who loves learning/reading about genes and how DNA works, or you're curious about the specific ins and outs of genealogy, pick this book up. If you're here for a cute and heartfelt story about family and you're not ready to read textbook-level science-y stuff, choose something else.

I am NOT a science girly. I failed Chemistry not once, but twice, in high school, and my teacher had to take time off his own summer break to help me pass. I don't mind learning about DNA, but this graphic novel was just... an info dump of everything DNA-related. Maybe it's because I came in looking for a cute story, or maybe my brain is just not enhanced enough to understand this science lingo, but I understood pretty much nothing of this book.

But again, that is just me! I am sure there are thousands of people out there that will benefit from and adore this book, not just for its artwork but for its information, too. The reason I'm giving this GN a 3 star rating is because, despite not understanding a thing, I seriously adored the art style and the storytelling.

Disclaimer: I received an advance review copy for free, and I am leaving this review voluntarily.



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[Brittany · Rating 2 out of 5]

Thank you to netgalley for providing me with a copy of this book in exchange for an honest review.

I am sorry to say that I tried to read this and put it down because of how boring and info-dumpy it was. The story starts with a young woman who is being berated by her father for taking one of those DNA tests that tells you about your ancestors. He starts to tell her a story of a detective who has to learn about DNA to help find a murderer. The basic premise of this book is: beware of genetic testing because they will sell your information and then anyone can find you.

While I have no thoughts either way on genetic testing, I was bored to tears about 20 pages in when the story starts explaining genetics to the reader. Page after page is just an info dump on DNA. This may be a great way to learn about it in a science class. But I am reading a graphic novel so I can see beautiful artwork that tells a story. In this book there were pages and pages of diagrams about DNA and genetics. It was not the beautiful artwork that I would expect from a graphic novel, and I don't really read graphic novels to be info dumped a whole ton of scientific information. I was completely uninterested in the premise. I found that even skipping the info dump sections, I still could not finish the novel, although I did get through about half.

I think this could be an interesting novel to read if you were learning about genetics in school, or if you are super into science. But personally for me I would not recommend except to that niche audience.

2/5 stars. I'm sure the author knows what they are talking about. But the artwork was uninteresting and so was the plot.

[Sadie-Jane Huff · Rating 4 out of 5]

Book 110 of 200 ~ 2023

🌟🌟🌟🌟

Given that my husband Jerrid and I have been contemplating whether to do genetics testing - but more of finding out about our makeup because we have a little bet going...

This gave an interesting perspective on a bunch of things not just pertaining to relationships that may be affected by something that you would assume was only going to affect you.

Some countries are quite intense in terms of their approach to genetics testing, and I found out a whole bunch of things about something I had limited knowledge on.

Something about the art style reminded me of an amalgamation of Guy Delisle and Marjane Satrapi.

Interesting read.

I received a complimentary copy of this book. Opinions expressed in this review are completely my own. Thank you, @netgalley

#book110of200 #amreading #netgalley #tbrpile #instareads #readstagram
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[Megan Cina-Bernard · Rating 3 out of 5]

I received an advanced digital copy from Europe Comics/DARGAUD and NetGalley in exchange for an honest review.

When I started reading, I thought the story featuring the daughter and her father would be very central. In reality, they tie the book together, but the real focus is on learning about genetics and what we do with genetic information (potential and actual). Once I realized that, I was 100% on board to be educated about genetics. I was curious about the daughter and her father and I was curious especially about Martin Dumont. I was a little disappointed that they were vehicles rather than the more crucial pieces of the book that I thought they would be.

This is a very clear and visual way to learn about how genetics work and I found myself being more drawn in by this book that I ever have been to an actual biology class.

I do wish that it had been clearer and even sited sources about the dangers of genetic testing. Some parts seemed to be based more on fear than actual practice, but that was very muddled in this story.

[Zoe · Rating 3 out of 5]

Thank you Europe Comics and NetGalley for the arc.

A young woman speaks to her father after she and her sister receive their genetic test results. What they learn from these tests leaves them angry and confused, and their father explains why he has mixed feelings about genetic tests, and how people often do not fully understand the scope of what could happen if you have the tests done. The rest of the novel is told through different short stories from the father's life working as a geneticist.

There were some really interesting points raised in this graphic novel and the illustrations style was really nice. Some of the pages were very educational which felt a little info dumpy BUT I feel like they did fit the context of the story (the illustrations for these pages were really cool!). I also felt as though the overarching 'plot' was a little disjointed but I think if you go into this expecting to be taught something as opposed to more of a typical story, you'll enjoy it.

[Sophie · Rating 4 out of 5]

This book covers a lot. The overarching story is about a daughter who has just got a DNA test sharing those results with her father. As they talk through the process we touch on the father's career as a geneticist and his reservations about at home/online DNA testing, the basic of what DNA is, its role in solving crime, the psychological impacts of our greater access to DNA testing and the information that it makes available, its role in diagnosing and treating illnesses (including hereditary illness), and finally its role in developing vaccines (with the inevitable reference to COVID-19).

It's information-dense but still accessible, and I found it pretty even-handed in terms of talking about not just the scientific but also the social and psychological benefits and downsides to genetic testing. Interesting enough to be read on its own merits, but would also make a good and accessible educational resource.

[Marte · Rating 3 out of 5]

I got this on Netgalley in exchange for an honest review!

This is a great book that discusses the function and ethics surrounding genetic home testing, as well as the many ways the results can vary depending on many different factors. It also goes into detail about how professional geneticists work and what their job entails (with a lot of great examples!). I also loved the story we see with the dad and his daughter, and how it ties it all together.

The only thing that drags it down a bit for me is that I wish it were less "infodump-y". We get SO much info all at once, and I wish it was spaced out or talked about more conversationally and as a part of the story. I think it does a great way of combining it all in the beginning, though!

If you are interested in genetics how all of this works and what research and functions working with genetics can have, this is a good one to check out if you do not want to go straight into heavier non-fiction!

[Tori Renee · Rating 3 out of 5]

This book is incredibly informative and the illustrations are helpful for grasping the concepts. Much like a lot of other readers, I was expecting more of a story aspect to the book, so the info dumps felt like a lot at time. The book is pretty fast paced and I often struggled to follow the line of information. The book is told more through genetic, situational serials to help show the pros and cons of genetic testing and results.

I think if you know going in that this is more informational and to take it slower than other graphic novels, it would be helpful for processing the ideas. However, I think the book does an excellent job of giving an overview about genetics, genetic testing, and how all of this impacts our understanding of ourselves and humanity.

Thank you to NetGalley for the copy of this book in exchange for an honest review.

[Danielle · Rating 2 out of 5]

The story in the beginning was interesting, everything else felt like an informercial for being smarter with who you give your DNA. I guess that's important, but it made the story draggy and boring. I love biology as much as everyone else, but I did not want to sit down and read long block of text just pounding information into me. If I wanted that, I would've read a textbook. I'm sure there were better ways to present the information without taking away from the story. If it had stuck to the story of the detective, I'm sure it would've been a way more enjoyable story that could incorporate all the information the author wanted us to know. It did the worst thing a book could do, it was boring.

[Anjana · Rating 4 out of 5]

I wish I could label this non-fiction because that is what this almost is. The story at the centre of the plot, which is used to talk about the topic itself, does pull it away from the non-fiction title (although I might be wrong).
We have two main plotlines. One is of a woman sitting down with her father to talk about DNA tests. She does not come out with what she wants to say exactly but meanders through multiple conversations about the practices and repercussions in the system. The one main takeaway was the idea that percentages that the companies offer would obviously change based on the data pool they have acquired thus far, making the earlier reports slightly erroneous.
When we were at school, in a few pivotal years, we would have to take a computerized test (it must be noted here that the use of computers was seriously low at the time, and maybe one in ten had a personal PC at home, making it a novelty), and based on the random answers we would get a graph of possibilities with percentages. I don't know what it was about getting your path laid out in charts, but I remember it being thrilling. The very same emotion has had me tempted to do DNA analysis at some point, but I have been going away from that notion for a while. This particular book has definitely confirmed that I have made the right choice.
In another plotline, we have a policewoman figuring out that she can use DNA analysis or at least the database to find out about skeletal remains that she found. The amount of time and energy required to do that was quite surprising. It is definitely not an angle crime shows on TV would show.
The ending was quite emotional in its own way.
I am not a great fan of the art style - else, this would have been a five-star read. It is close enough as it is. Readers must go into this book knowing that there will be a lot of information to parse through, but it is a very different approach, one that I commended.
I received an ARC thanks to NetGalley and the publishers, but the review is entirely based on my own reading experience.

[Sneha Jaiswal · Rating 4 out of 5]

wasn’t expecting “Genetics at Heart” by Philippe Amouyel to be an exhaustive look at human DNA and genetic testing, especially considering it’s presented in the format of a graphic novel with just 176 pages. While I was anticipating a more personal memoir with genetics as a primary theme, this novel instead serves as an almost textbook-like explainer on how genes work. The beautifully drawn illustrations by Héloïse Chochois however are inviting and make the learning experience enjoyable for those who are curious about genetics.

Full review - https://abstractaf.in/genetics-at-hea...

[Matthias Hernandez · Rating 3 out of 5]

Un livre entre le magazine et la fiction, il y a un ton didactique entrecoupé d’intrigue qui ne fonctionne pas du tout. Les enjeux de la génétique sont abordés de manière superficielle, mais ils ont le mérite d’être couverts.
L’auteur a décidé de mettre des références en bas de page qui pointent vers des articles du monde. J’ai trouvé ça très bizarre, en particulier parce que les URLs sont très longues et que le monde n’est pas vraiment un média scientifique.
Finalement, ce livre n’est pas particulièrement mémorable, et il va probablement prendre la poussière sur une étagère pour plusieurs années avant que je le resorte.

[Emily Shark · Rating 3 out of 5]

Thanks to NetGalley and the publisher for this arc.
I’m sad to say that I was a little bit disappointed by this graphic novel. I find genetics to be a super fascinating topic, but this book just didn’t do it for me. The story around the information wasn’t very intriguing and while the book touched on many important and interesting topics it was all at the same time very surface level and very confusing. Parts were in my opinion really well written and a great introduction to the topic, but other parts felt a little needlessly convoluted. However, I still think the overall idea was good and I really liked the artstyle.

[MJ Strayer · Rating 3 out of 5]

I honestly thought that it would be a different book. It’s way more informative on genetic than I had hoped for. I thought it would follow the girls story. Overall I enjoyed reading it. It just took me a little longer to get through because of all of the information.

I do think this would be a fun and interesting book to read in science class when going over the topic of genetics. It is a little advanced with the scientific vocabulary so I recommend it for older classes. But if you’re a teacher looking to have a fun book I would recommend this one.

[Christina · Rating 5 out of 5]

What an absolutely lovely book. I came across it by chance in the "humour" section and I had doubts as it's not my typical genre and started reading by curiosity. Let me tell you, it's one of the most informative and heartwarming graphic novel I've ever read, so well written. I felt what the characters were going through and ending warmed up my heart so much.. I wish I could give it more than 5 stars! I'll have to check out the authors other works and expand myself on a new genre simply because of this one!

[Gabrielle · Rating 2 out of 5]

Thank you to netgalley for providing me with an e-copy of this in exchange for an honest review


The art style was pleasing to the eye and I enjoyed it very much. It's the type of art style I enjoy seeing in graphic novels. The contents of the novel itself was very info dumpy for the very beginning. I felt the biological info needed to understand the book could have been delivered in a more thematic way that flowed with the plot more instead of feeling like I was in an AP Biology class. Other than that, the story itself was pretty simplistic and I was hoping for some kind of twist at the end but there was none and it ended quite abruptly and not in a good way more in a way that felt choppy. Another thing I want to note is that the whole message of the novel a whole felt like one big PSA warning against the dangers of Genealogical sites which I also did not enjoy. The synopsis betrayed nothing in that it would be making any kind of political statement with respect to DNA sites and I did not sign up for that I just wanted a fun fictional story with the smart inclusion of genetics weaved throughout.

[Meg (reading_meg) · Rating 4 out of 5]

Thank you Netgalley and Europe Comics for this ARC!

- This was such an interesting way to explore such a scientific topic! I loved the way that the information was woven throughout the story.
- I liked how it took the pros and cons of genetic testing/analysis into the ways they affect people instead of keeping them as statistics
- The font style was a little hard to read at times, especially with how thin the font was.
- I liked the art style, and there were some techniques used towards the end of the book that were so well done!

[Opal Edgar · Rating 4 out of 5]

An educational graphic novel explaining what is DNA testing, the various benefits, but also the risks, which I thought was very interesting as we don't often delve into the ethical debate, the psychological ramifications, and the very real social impact that could arise in the future.
The book is well made as it remains very simple and easy to understand, it also highlights the right of choice to know and not to. This is obviously an important point for the authors, that this should be a personal and private choice.