Here is a marvelous guide for anyone affected by Parkinson's disease--patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson's disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's.
Parkinson’s is a neurodegenerative disease that means death of neurons where dopamine-producing (dopaminergic) neurons of the substantia nigra die prematurely. People with Parkinson’s are deficient in dopamine, and the result is loss of smooth, full-range motion.
A great read for those suffering Parkinson’s and for those who are living with or who is a caregiver to those suffering Parkinson. Navigating Life with Parkinson Disease is an easy read and easy to understand for those with no medical experience.
This is the second introductory book on Parkinson Disease that I have read, the first being Nutan Sharma's Parkinson's Disease. Sharma's book is shorter and older, published five years before Parasho's in 2008.
If you are looking for an introduction to understanding and coping with the disease, either of the books will be fine. Navigating Life with Parkinson Disease includes more recent information on medication and deep brain surgery and is, in my opinion, better suited for readers with little or no medical knowledge -if forced to chose between the two books, I would go for Parasho; Sharma's book holds a slight edge for the more medically knowledgeable reader -it includes more careful reviews on the strength of medical research evidence on several aspects of the disease and its treatments.
Navigating life with Parkinson Disease may be skimmed over at a first reading, slowing down and reading in more detail those chapters which you feel are closer to whatever stage or problems are closer to your worries, especially as a caregiver or care partner, as the preferred term in the US now appears to be. It is superior as regards non-motor symptoms (sensory, cognitive, emotional, sleep, skin, autonomous and nervous system dysfunctions and problems), speech therapy, and assistive devices, the importance of exercise and care partner fatigue. Incidentally some of the chapters (particularly the last two chapters on community resources and legal matters) are very geared to a US audience. I also agree with the Goodreads reviewer who finds that the case studies sound stilted and contrived.
All in all, a good introductory book to dip into from time to time if someone close to you suffers from this disease.
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Some good background information on the disease but it assumes you are already taking medication. A lot of detail about reactions to medications which really begs the question: why start.
I read this to be better informed for my step-father and it helped a bit but also did not delve into many alternative remedies.
It was a good primer but I still feel I need more.
Basic--if you have never had long term care issues this is a good start. Allows for what needs to be done to manage early stages-- not as helpful for discussing coping of the deterioration over time and possible coping strategies. Usually first person narratives are interesting but these feel stilted.