MMMMMMMKAY. Problematic book review ahead:
A woman with a chronic illness marrying her bff for health insurance seemed like SUCH a great premise. And it is. But there are sooo many issues with the portrayal (and lack of) of disability.
1. Mia feels she is a burden to people in her life. Cool, common feeling among people with disabilities. But we are NEVER shown how much of a burden that is. She happily goes to her weekly infusions, is positive about it all, and we never see the work, emotional labor, the physical and psychological pain her disability causes her. So it is very hard to buy her "I'm a burden" personality when we never are shown how it is a burden on HER. We never know, emotionally, how she feels about it. She worries about being a financial burden....cool, provide people numbers on the expenses, examples of how navigating the insurance system is infuriating (also, see point 5.)
2. The author, upon quick searching, appears to be physically abled. NO disability content readers are credited at the end (oh, but she credits someone who corrected her on architectural careers smh.) She works in the medical field, which frustrates me, because of how many books (Ali Hazelwood, looking at you) are written by STEM authors who do NOT have actual experience with disabilities. As someone with a disability, there is a BIG problem with doctors, researchers, and medical professionals thinking they "understand" what a disability is like...when they don't. And patients receive all kinds of abuse from these professionals who do not have understanding or empathy. And it's very clear this author doesn't understand.
3. Her chronic illness isn't labelled. It's kept a mystery, which feeds into feeling like fictional bullshit created for the sake of drama. It appropriates disabilities.
4. HER CHRONIC ILLNESS IS EXPECTED TO BE CURED AND THAT IS THE END GAME. With a magical kidney transplant. Big. Fucking. Yikes. I don't even know where to begin with this, the author needs to take some fucking disability sensitivity training. "Fixing" disabilities is a harmful, unacceptable mentality. You're rejecting people, telling them they aren't allowed to have as equal access to quality of life than able-bodied people. ACCEPTING them is how we change society, to make people with disabilities' lives easier. You can't cure most of them but we sure as hell can accept all people and actively introduce changes to make their lives less of a goddamn struggle. Half the battle is society's attitudes. ALSO she does not address the lifelong WORK and drugs a transplant has - not until the very end, after she's had it. It's held up as this grand solution, "fixing" her when all it does it probably prolong her life but give her new medical concerns and challenges.
5. THE FACT THAT SHE NEEDS HEALTH INSURANCE TO LIVE IS NEVER ADDRESSED. NO commentary about how fucked up our fucking system is in the US that people die and are suffering every fucking day because they cannot access healthcare. And no portrayal of how many hours you end up on the phone with insurances companies, bickering over bills and advocating for yourself because all you are to these companies is a source of profit. Fuck right off, if you're going to appropriate the struggles people with disabilities have with insurance and the medical system and NOT talk about it and how to change it.
6. Minor fucking quibble but she gets a tattoo. It is NEVER addressed that she is LIKELY immunocompromised (well, we don't know for sure, since the author refuses to label the illness.) NO discussion on the risks having an open wound (a tattoo) has with being immunocompromised. Or how her tattoo likely could fail because it won't heal right.
xoxo, a reader with several disabilities