Trigger warnings: discussion of inhumane treatment of women and BIPOC community, abortion, miscarriage, fertility issues, cancer, and multiple medical topics
I’ve been in debilitating pain since I was 9 years old, and I was always told it was “normal.” It’s not. We need to stop normalizing suffering and start talking about it. These conversations are vital, because silence is exactly what keeps people from getting the care they need.
As someone who is 27 and recently had surgery for fibroid and polyp removal and may still need a hysterectomy in the coming months, I feel this deeply. Women’s health, and health for trans men and non-binary people with uteruses, needs to be researched and taken seriously.
For centuries, people with uteruses have been mistreated, dismissed, and outright harmed by medicine. Women were literally called “hysterical” and had their ovaries removed for it, in the late 1800s, which wasn’t that long ago. And even today, society still pressures people with uteruses to think they must have children, that they’re “too young” to make decisions about their own reproductive health, or that they’ll inevitably regret something like a hysterectomy. It’s sexist, it’s controlling, and it ignores the reality of our pain.
The truth is, the uterus can cause an immense amount of suffering. Endometriosis alone can cause organ damage, kidney failure, migraines, fatigue, and infertility. PCOS doesn’t even make sense as a single diagnosis because of how widely the symptoms vary, yet it’s often treated dismissively. Ovarian cysts are the most common finding with pelvic pain, many are harmless, but others rupture or grow large enough to cause serious pain. PMS and PMDD need to be recognized and validated instead of mocked or minimized.
And still, the average diagnosis for endometriosis takes 7 years. That’s seven years of being told it’s in your head, that it’s “just bad periods,” that you should push through it.
Fibroids are another massive issue. They’re benign tumors caused by a cell rapidly multiplying, and they affect 70% of white women and 80% of Black women in their lifetime. They can cause hemorrhaging, crushing fatigue, and severe pain. They are not the patient’s fault. But fibroids will often grow back after treatment, and hysterectomy remains the only definitive option. And yet, despite how widespread and devastating they are, there’s still no known cause and no cure.
And here’s where systemic racism and misogyny comes in: if 80% of white men were developing tumors that caused pain and hemorrhaging, there would have been a cure decades ago. But because it’s primarily people with uteruses, especially Black women and other BIPOC communities, the suffering has been minimized. Black women are also at far higher risk of maternal mortality than white women, a gap rooted not in biology but in racism and bias in medical care.
The stigma around menstruation and reproductive health only makes this worse. If we don’t normalize conversations about periods, pain, and reproductive health, people won’t get treatment early. As a society, we must destigmatize period talk and validate people’s experiences.
And it’s crucial to emphasize: sex and gender are not the same. These conditions don’t only affect cis women. Trans men and non-binary people with uteruses are impacted too, and they’re often excluded from both research and care. Inclusive, affirming treatment is non-negotiable.
At the end of the day: it’s not hysteria and it never was. It’s very real, very physical, and it deserves attention, funding, and solutions. If we want true health equity, we need to dismantle the sexism and racism that is rooted into gynecological care and finally take people’s pain seriously.
We don’t need to suffer in silence anymore.