Well worth the read from the perspective of one interested in spreading the word on how individualised services, learning and living is possible given the right resources and encouragement, as well as from the insight it gave me to the Jewish faith. And from one who loves learning from others biographies.
Sadly it took me so long to take the book from the shelf to read this book. Once I did though I didn't want to put it down.
It's peppered with insights into the film industry and what goes on behind the scenes as well as the main theme of how a mum brings up her child and the impact this has on a range of relationships; hers, her son's, his school mates, her friends etc.
I did get a little annoyed/frustrated with early references to 'special' kids as all kids are unique and have their own quirks, challenges, abilities and challenges. From the perspective of a lass who has grown up with a disability myself, and been involved in self-help groups linked to my own congenital disability, and who continues to now advocate with and on behalf of others this was annoying.
But I'm glad I persevered and came to overlook this.
Elaine, the mum/writer came to see that the secret to community is all about working together and not imposing one's own views on others.
I loved hearing examples of Neil expressing himself with his mum and the 'coaches' who we'd call support workers, joining Neil in his activities. (I now prefer the term coach.) I was so proud of him independently and safely walking home when his school refused to listen to him.
As Neil grows up his mum offers pithy snippets and cameos of a journey. She gives poignant tips that seem common sense once expressed, but comments and statements that far too many people just don't understand or even have an inkling of.
I'm off to explore the useful links at the end of the book and take a look at the youtube clip of the miracle group's play to decide if it was done as sensitively and person-centred as it seems or if my initial fears of it being what Stella Young called 'crip pawn' sensationalising the good and bad of life are highlighted.
The struggles of families faced with introducing difference into their traditions and family customs are covered in a range of ways and the fears and hopes of families dealt with sensitively.
I appreciated the insight into Yiddish traditions and customs some of which I knew of and others that were new to me. They are explained well with many old and new words given a fuller meaning. Again it is a case of ' see the good/look for the true meaning/don't assume perspective.
I'll be reading this again.
Like many readers, I suspect, I will also endeavour to focus more and more on 'enough is enough', 'I have done my best' and be less critical of others (and more of relevence - like Elaine, myself).
The openness of the writer explores many positive and negative lessons as she grows herself, just as her son blossoms into a young man. I see the moon, challenges readers to to look at life and see it in all it's various facets. Don't take things at face value.
Spend time. Be patient. Believe.If something seems too far away or unattainable don't give up. Persevere- yes, but be willing to change direction too. Stubbornness does not need to be pigheadedness. Realise the struggles, fears, hopes and desires of people who live with disability, be it themselves or their family, and don't do for, do with.
I'm keen to read how the young songsters, musicians and actors go in over the next period of their young lives and beyond.
Maybe Neil and his team will be the ones to reveal it.
ps Interestingly tomorrow night the moon is set to be a 'super moon' and the closest to us for the next 20 or so years. Another unique opportunity to glimpse possibilities and find the constant in life. And consider what truly is important to you and what is not negotiable or where compromise is to be considered.