A really hopeful and validating read while still having a hard time processing my recent (ish lol, still feels raw) breakup. Slice and Cupp share their tales of their own journeys dating while disabled, evaluating potential partners, and settling down in love with their current husbands. They interview dozens of other disabled folks to include their perspectives on all the joys and challenges that come with being part of the disability community, particularly when navigating dating. The chapters each focused on a specific aspect of dating while disabled, like meeting up for the first time, making a profile and how to disclose disability on dating apps, queer and kinky disabled communities, caregiving, finances, breakups, etc.
This book challenged the core beliefs rooting in me during the last few years while my chronic health issues progress: I am a burden, my chronic illness is too much to put on anyone else, no one will want a girl who can’t have sex, I’m unreliable, my loved ones deserve a better friend, I deserve to be alone, I don’t matter if I can’t have kids.
There are so many parts from the book that made me feel seen and validated, but especially excited to get more involved in disability communities and organizing. I related to so many pieces of the stories told, particularly getting lost in the narrative that as a sick person, I should be lucky to have any relationship at all — I should accept any scraps because who wants to be with the disabled girl? My standards for a potential partner moving forward are so much higher after reading this book and seeing examples of disabled people in mutually fulfilling, loving, and caring partnerships where everyone’s needs are met. I want someone excited to love me, eager to take care of me on bad days, someone gentle, kind, and considerate who dreams of a future with me no matter what it will hold health-wise. I’m dreaming of feeling dateable again (someday not ready now LOL) and starting to believe I do deserve unconditional love, disabled or not.
A few quotes that resonated with me:
“Every time something didn’t work out, I thought it was my fault; if I could just erase my disability, everything would be OK.”
“To be equipped to manage the pain of a breakup, it's important that we enter relationships only after we have done the initial work of embracing our own worth and value. If we feel like a burden, we will accept less than we deserve.
When you are dating and disabled, it can feel like someone is doing you a favor by being in a relationship with you. And then, if that relationship ends, it's easy to wonder if anyone else will make that "sacrifice." If you take nothing else from this chapter, I want it to be this: those beliefs are societys conditioning and not based on truth. We internalize the ableism that we swim in, and it clouds our sense of self-worth. Society's power structure of bodies and minds is false, and the scaffolding is held up by fear.”
“I wish I had known that my partners were lucky to have me too.”
“Was I so worthless that any attention was good attention? Too many disabled people answer that question with a tragic ‘yes.’ We end up in relationships that are destructive because we internalize the message that we’re lucky to have someone willing to put up with us. Again, if you get nothing else from this book, please take this to heart: you deserve to be in relationships that make you feel valued, whole, and safe. Don’t ever settle for situations that make you feel awful about yourself.”
“Sure, “disabled” may be the best word for my body, but it wasn’t essentially true, at least in the way it was true for other people…I was still settling into my new body. I still thought of myself as a runner taking a long sabbatical.” 🥲
A note from the author’s (Slice) husband when asked about her decision to not disclose her disability to him, if he wishes she were honest so he could’ve chosen someone else. He told her “I don’t wish I had waited for someone else. I love you. There are things about your disability that make life difficult, yes, things I wish could be easier: go to Italy, no big deal. But I would rather not travel with you than travel with somebody else. You are beautiful and funny and wish and kind and relentless. I have learned a ton from you, and we laugh all the time, and we are compatible. You take care of me in ways that only you have and only you could…why would I wait for someone who can go to Italy but lacks all your wonderful qualities?
Being married to a disabled person is being married to a person. Maybe you know about their “health condition” upfront. That’s the main difference. The “perfect person” has “health conditions” too, or if they don’t, they will soon. Disabled people have needs. Non-disabled people have needs. Disabled people can be annoying. Non-disabled people can be annoying. Living with and loving someone presents them to you under a microscope, at a zoomed-in resolution that is unlike anything you can conceive of while swiping.
Loving you is loving a person. Your disability dictates how some of our abstract life gets concretized. But it is not A Different Thing.”