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256 pages, Hardcover
Published December 4, 2023
“VATER syndrome. It was only in my thirties that I became familiar with the term VATER or VACTREAL Association, a rare disorder which is a motley collection of three or more congenital characteristics that occur together. In my case, apart from imperforate anus (A for Anal Atresia), I was born with scoliosis (V for vertebral defects) and ectopic kidney (Renal Anomalies)."
"If there is anything I have learnt as a disabled and ill person, it is to accept things the way they are."
"Living independently as a person with a disability can be an expensive business. Crowded public transport can be difficult with my fragile legs. Cabs are expensive. Medicines, medical tests, diapers—all part of my day-to-day living—take a toll on my finances. Add to that the cost of medical emergencies and a crisis that is always knocking on the door."
"Humiliation is an everyday experience for most disabled people."
"I don't need to believe in love to write love poems. ”
"Perhaps for me, love is finding a space within myself where I can be truly free. Free from identity, from the need for validation, from the expectations of acceptance. Love, for me, is the end of all forms of yearning."
"Loving yourself is an exercise that doesn't involve any exercise."