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Soundtrack of Silence: Love, Loss, and a Playlist for Life

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Listening time: 6 hours and 58 minutes.

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound―and like a lot of kids who do workarounds to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But as a prospective college student who couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was his hearing was going, and fast.

Soundtrack of Silence was his determined compensation for his a typical Midwestern kid growing up in the 1980s, whose life events were pegged to pop music, Hay planned to commit his favorite songs to memory, a mental playbook not only of the bands he loved, but a way to tap his most resonant memories. And the track he needed to cement most clearly? The one he and his new girlfriend Nora―the love of his life―listened to in the car on their first date.

Made vivid with references to instantly recognizable songs―from The Eagles to Elton John, Bob Marley to Bing Crosby, U2 to Peter Frampton― Soundtrack of Silence asks readers to run the soundtrack of their own lives through their minds. And, like much of the music it invokes, it’s in the end a happy Hay does marry the girl of his dreams, complex and cutting-edge surgeries allow him via implant and linked external devices to partially hear, and he’s able to share lullaby time with his and Nora’s children.

7 pages, Audible Audio

Published January 9, 2024

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About the author

Matt Hay

1 book42 followers
Matt Hay had a long journey toward deafness and even longer journey toward learning to “hear” again with an experimental brainstem implant. He first publicly shared his story on a National Public Radio. The intimate, funny and authentic peek at what it’s like to start a career, fall in love and build a life while battling a rare disease inspired actor Channing Tatum and Paramount Pictures to option the motion picture rights to Matt’s life story. When Matt isn’t adding tracks to the soundtrack of his life, he passionately supports the hearing loss community. He’s proudly served as a Congressional lobbyist for neurofibromatosis (NF) research funding, the genetic disorder that caused his deafness, and has raised money for NF research by doing endurance events, including an Ironman Triathlon and most recently, the Boston Marathon. Matt currently serves the rare disease community as the US Director of Advocacy for a biopharmaceutical company. He lives in Westfield, Indiana, with his wife and three children.

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Profile Image for Catherine (alternativelytitledbooks) - still catching up!.
600 reviews1,114 followers
January 19, 2024
**Many thanks to NetGalley, St. Martin's Press, and Matt Hay for an ARC of this book! Now available as of 1.9!**

Do you remember the very first time you were listening to a song...and were instantly transported back in time?

If you close your eyes now and think of that special song---maybe your last dance at the school prom, maybe the first song you blasted in your car the very first time you drove on your own after getting a driver's license, or the song that was playing in a coffee shop when you saw the love of your life for the first time---can you actually HEAR it in your mind's ear, and every sight, sound, and smell of the place you were when you heard it?

Now imagine that you found out that being able to relive those experiences was no longer going to be an option...because tumors were about to take your hearing away. Would you be able to train your brain to remember the ever-evolving soundtrack of your LIFE? To remember every nuance, every lyric, and every sound in your brain as clearly as your ears ever could?

For Matt Hay, this goal became his personal mission. Struggling with hearing loss as a child, he managed to 'get by' with many workarounds that hard of hearing children use...without even realizing he was working around anything. He participated in the normal vision/hearing checks at school (which by the way, during this time were conducted IN FRONT OF THE ENTIRE CLASS (!) 😨) and learned to mimic the appropriate hand raises when he just couldn't quite make out the noise and therefore passed all of his hearing checks without alarm from any adults.

When Hay was about to go off to West Point, however, all of this caught up with him...and he discovered that his hearing wasn't up to snuff to meet their entrance requirements. After a visit to the doctor, Hay found out that he has a rare condition called NF2 that was causing tumors to grow...and would not only affect his balance, but would eventually knock out his hearing. As an avid music lover who was just at the cusp of adulthood and just starting out in the working world, Hay was stunned that everything he knew was about to turn on its head for good. But Matt wasn't about to go through all of this alone: his now-wife Nora was by his side, and determined to be his ultimate support.

As Hay navigates the difficult decisions presented by his condition, he makes the choice to go one step further than his hearing aids and receives an Auditory Brain Implant. This was an incredibly risky move at the time, because the treatment was new and not heavily researched....but Hay's determination led the way. With aspirations to run a marathon, become a father, and of course, to train his brain to remember music SO well he can literally hear it from the inside...will Matt Hay prove that resolve and an iron will are stronger than any outside force? Or will the cruelty of fate take the power out of his hands...and the beauty of music from his soul...forever?

First off, this cover and the premise of this memoir is RIGHT up my alley. As a life-long melophile, the concept of coming up with a soundtrack of your life is nothing short of fascinating. I see music as one of the few true connectors across the world, a universal language that is so accessible, you don't need to 'learn' a single world. To hear about Matt's condition and the shocking way it was poised to take so much from him forever was TERRIFYING to me. Music is the soundtrack to my every thought (at times!) and I felt like I connected with Hay instantly on this level: music is so important, I could not imagine life without it...and to feel like you literally were staring down a clock with how much time you had 'left' being able to physically hear music was unfathomable. But rather than wistfully playing his favorite tunes over and over and wallowing in the tragedy of the situation...Matt Hay chose to rise above and actually TRAIN his brain to remember his favorite songs and what each one sounded like.

In short? Simply MIRACULOUS.

Obviously, if you AREN'T much of a music fan, there is another aspect of this memoir that probably won't click for you: Hay intersperses the whole text with song lyrics from ALL different genres, ranging from Guster to the Beatles to Simon and Garfunkel to Guns N' Roses...and even Three Six Mafia! If your musical taste is eclectic like mine, you'll do just fine. (And if it isn't...it just could inspire you to branch out!) What makes these excerpts even more impactful is how Hay relates them to whatever challenge or triumph was going on in his life at the time, from his medical challenges and choices to the exploration of his love story with his wonderful wife, Nora. (Side note: I do wish that Matt would have included a full playlist, either on Spotify or just in print, of every song mentioned in the book. Plenty I knew, but it would have been fun to supplement the book with the actual songs too!) 🎼

There is a fair amount of medical jargon and explanations in the story at times, but I think Hay did an excellent job of not letting all of the technicalities feel overwhelming to the average reader. He even includes several helpful metaphors for the reader to get a better understanding of some of the facets of hearing loss that are hard to put down on paper. I struggled right along with him in his choice to implant the ABI (and was holding my breath the whole time!) and with his choice between other medical procedures (including one that involved surgically keeping his eye from staying open or closed all of the time...I won't say more, but it was intense! 👀) All the while, I had such a strong sense of hope for him to be able to hear and for all of the choices to pay off in the long run... but you'll have to read to see how it all plays out!

At the center of Matt's tale, though, is the love of his life, Nora. And it is no wonder that Matt and Nora have had such a long and unyielding relationship. The sheer determination present in both of these two incredible people made them a match made in the stars, and Nora is the kind of support system, confidant, and friend that we all search for in life. Reading Matt's recollection of so many happy memories (some featuring songs, and some without) and also his vulnerability in sharing times of stress and strife helped to truly flesh out the book. Aside from his own force of will and steely focus, it is the love of his family and friends that helped to propel Matt to even further heights...and he never takes a moment or a sentiment for granted.

And though I won't say how Matt's auditory journey progresses or what his 'new normal' sounds like...OR if he finally gets to complete that Iron Man triathlon, or became a dad...

As for the beautiful, moving soundtrack of his life?

It is ANYTHING but silent!
🎶 🎉

4 stars
Profile Image for Shannon.
8,406 reviews429 followers
December 28, 2023
A moving memoir of one man's slow journey to total hearing loss, experience with cochlear implants and how it all affected his relationship with his wife and experience as a father. Heartfelt and great on audio read by the author himself. This was a great look at what its like to go through hearing loss and the varied way it affected his life, from mourning being able to fully hear music, chronic pain, high doctor/hospital fees and much more. A perfect memoir to read during Disability December month and recommended for fans of books like Losing music or Deaf Utopia. Many thanks to NetGalley and the publisher for an early audio copy in exchange for my honest review!
Profile Image for Yani.
3 reviews
November 27, 2023
Initially, Soundtrack of Silence piqued my curiosity with its premise which featured common themes with one of my favorite films, Coda. I immediately got carried away into the story of Matt Hay's life. We quickly become attached to him and his wife Nora through the moments of their lives which are described throughout the book. It’s a story with a wonderful message of hope and determination. It’s a reminder to cherish every moment and aspect of life, no matter how mundane they may seem. Additionally, there is a nostalgic aura throughout the book thanks to the many songs from decades past that are woven into the story. Indeed, the lyrics of dozens of songs are integrated to bring depth to the author's thoughts. For those who are interested, I have created a Spotify playlist with most songs mentioned throughout the novel. Listening to the songs mentioned while reading made my appreciation of the story even richer and unique.

Thanks to St. Martin’s Press for sending this book as a pre-sale!

Spotify playlist: https://open.spotify.com/playlist/4j5...
____________________________________________________________

Initialement, Soundtrack of Silence a piqué ma curiosité par sa prémisse qui comportait des thèmes communs avec l’un de mes films préférés; Coda. Je me suis tout de suite laissé emporter dans l’histoire de la vie de Matt Hay. On s’attache rapidement à lui et sa femme Nora à travers les moments de leur vie qui sont décrits à travers le livre. C’est une histoire avec un magnifique message d’espoir et de détermination. C’est un rappel de chérir chaque moment et aspect de la vie, aussi banal peuvent-il sembler. De plus, il y a une aura nostalgique tout au long du livre grâce aux nombreuses chansons des décennies passées qui sont intégrées dans l’histoire. En effet, les paroles de dizaines de chansons sont intégrées pour apporter une profondeur aux pensées de l’auteur. Pour ceux qui sont intéressés, j’ai créé une liste de lecture Spotify avec la majorité des chansons mentionnées au cours du roman. Écouter les chansons mentionnées pendant ma lecture a rendu mon appréciation de l’histoire encore plus riche et unique.

Merci à St. Martin’s Press pour l’envoi de ce livre en prévente !

Liste de lecture Spotify : https://open.spotify.com/playlist/4j5...
Profile Image for Sarah.
102 reviews10 followers
October 30, 2023
[ARC received from Net Galley but opinions are my own.]
As someone with a genetic condition impacting my hearing, I REALLY wanted to like this book. I’ve had hearing loss since birth and like the author, I have a profound love of music and so the premise of this book resonated with me. Unfortunately I felt disappointed by many facets of this book. I won’t detail them here, but one thing I’ll point out to those who might see this: while the author used the phrase “hearing impaired” A LOT, it’s an outdated term and many people with hearing loss prefer the term hard of hearing. Additionally, deafness is a spectrum, whereas the author expressed deafness as a complete loss of sound, and anyone with some hearing as “hearing impaired.” I do worry that this is misleading to those who might read this book and I urge anyone who does read it and who wants to know more, to do research elsewhere to gain a better and more representative understanding.
Profile Image for Martin Maenza.
1,004 reviews25 followers
January 9, 2024
St. Martin's Press provided an early galley for review.

Hearing loss is something with which I was familiar due to family member. I also was well-acquainted with the world of the hearing impaired thanks to my college years. The Rochester Institute of Technology campus was shared with the National Technical Institute for the Deaf so I learned a bit of sign-language during those years and was the chairperson for the Deaf Awareness committee of our student orientation service one year. So, the description of Hay's book really spoke to me when I first saw it.

Like Hay, I often match songs and lyrics to key moments in my life. That really made his message have a strong resonance with me. Plus, anyone who references Prince's 7 on the first page of their book is automatically a kindred soul to me. Some of the medical details unnerved me, but that's more about my nature than how they were presented (which was in a very understandable way).

Written in a friendly and approachable manner, Hay's words are touching and informative. His story has a lot to offer readers; it is a reminder of how we can sometimes take things in life for granted.
Profile Image for Bill.
581 reviews
January 15, 2024
It’s a story with a wonderful message of hopeful determination and the courage of the human spirit.. We need to cherish every moment and experience of life. Interweaving the songs and lyrics that invoked memories was a very unique way of telling his story as he loses his hearing, mobility and even facial expressions. Fascinating story and well worth the time to read.
Profile Image for Blue.
337 reviews5 followers
November 6, 2023
Not every one can write humor. Matt Hay can write in a really funny way You have to laugh as he tells about the deafness he experiences everyday. Basically, his point is not to make us laugh but to remember the music of our time. His time is the Eighties. All of us have such a play list in our memories: the Seventies, the Sixties or the Fifties maybe. It is amazing. Songs played while riding in a car or just sitting around had more meaning than we thought. While reading about Matt Hay's hearing worsening, there is the desire to rehear the words of the songs from our past. Were the words filled with a message or just random words? If one of these is true, that means there is another place to explore our dreams, motivations and desires. Perhaps, in the end we will truly appreciate our hearing. Maybe a playlist of music can take us home again.
Profile Image for Jamie Degler.
139 reviews7 followers
January 7, 2024
This book is written beautifully! Matt is able to share his story of courage, loss, love, and living your best life. What an honor to know him and share his story.
Profile Image for Trio.
3,619 reviews209 followers
February 8, 2024
What a stunning autobiography! Matt Hay tells his story beautifully, and delivers a marvelous performance in the audio version of Soundtrack of Silence: Love, Loss, and a Playlist for Life.

Just recently I was having that old conversation with my adult daughter: If you had to give up one of your senses, what would it be? Well, me being an avid reader, I simply couldn't imagine living without reading. My daughter, however, is a huge music lover and said it would be the worst thing to never again hear her favorite songs.

Matt Hay definitely gets his message across in the early part of the book, with the way he blends his growing hearing loss with his passion for music, and his fears of never being able to enjoy listening to his favorites again. He perfectly parallels lyrics with pivotal moments in his life throughout his journey.

Hay also explains the medical reasons behind every step of his experience, but keeps this part easy to understand, and it doesn't overwhelm the book at all.

I found Soundtrack of Silence to be moving, inspirational, and uplifting. Hay has a great sense of humor, and managed to make lemonade out of a whole housefull of lemons. Bravo!

an audiobook edition of Soundtrack of Silence was provided to me by Macmillan Audio, via NetGalley, for the purpose of my honest review, all opinions are my own
Profile Image for Julia.
922 reviews13 followers
February 9, 2024
What an inspiring memoir. It was fascinating to be in Matt’s shoes of slowly losing his hearing and regaining it back through extensive surgeries and implants and the after effect.
Last year I read about blindness and this year I read about deafness. I know there’s some hype around Gretchen Rubin’s 5 senses book but I prefer to feel those senses by learning from those who know what it’s like not to have them. I think that’s more insightful.
Definitely recommend. Now just to get his music playlist…
Profile Image for Megan.
619 reviews67 followers
December 30, 2023
This is an inspiring and nostalgia-filled memoir of a man whose life has been profoundly shaped by total hearing loss due to a brain tumor. My dad, who died mere weeks after his cochlear implant was turned on, would have enjoyed this book and I thought of him constantly as I read it. His hearing loss was quite profound toward the end of his life, and Hay's story really helped me understand the frustrations of not being able to communicate fully with the surrounding world.

I received an advance copy of this book through a Goodreads giveaway in exchange for an honest review.
Profile Image for Michaela Evanow.
224 reviews
May 9, 2024
Touching medical memoir of love and many forms of loss. Loved his vulnerability and yet there was a gentle lightness about the book.
Profile Image for Mark Lieberman.
Author 3 books10 followers
June 4, 2023
This book was provided to me from Netgalley, so I can read and review it before it’s published.

The only reason I read this book, was because I liked the title (a very nice playlist of verses of songs was mentioned throughout the book). I really want that playlist! So, basically, Matt is losing his hearing, and before he loses it completely, he wants to remember certain songs.

He was diagnosed with a rare condition called NF2 which caused tumors in his brain that affected his hearing loss and balance issues. He did have hearing aids, which helped, but it was never perfect. Later, he did a get an Auditory Brainstem Implant (ABI) when he lost his hearing for good. It has helped him hear better, but again, it will never be perfect.

I will mention, and tell you, that this is much more about Matt’s story than music.

He had a lot of up and downs in regard to surgeries. It was nice that he wasn’t alone in this, as he had the support and help from his family and from his girlfriend and her family (whom he eventually married). She put her career and schooling on hold.

He persevered and ended up running in a marathon and participated in an Ironman competition. He got married and they have three kids. Would the kids be prone to NF2? That was something else they had to consider. Thankfully, the answer was no after a lot of research.

At a few points in the book, I wanted to cry in tears of happiness for him.

I really enjoyed his honesty about everything he has gone through and am looking forward to reading more about him in the future.

I can kind of relate to him as I have a rare vocal cord condition called Abductor Spasmodic Dysphonia and when I was first diagnosed in 2006, I thought eventually, I may end up not being able to speak. I was terrified and thought, well, I can learn sign language or use a computer to speak for me. Fortunately, that never happened as the treatments of speech therapy and Botox injections have helped me tremendously. Most of the time, when I speak, you can’t even notice that I have ABSD. Unfortunately, many other people with the same condition, have barely any voice at all.
Profile Image for Denise LaRosa.
120 reviews70 followers
May 12, 2024
Indiana native Matt Hay grew up with a typical childhood, going to college, and living life as a normal twenty-something. However, everything changed the moment he discovered he had been gradually losing his hearing for years. Hay’s diagnosis of NF2 brought the grim realization that he would ultimately lose his hearing completely, though he could have never foreseen the numerous additional health complications that would follow.

In his memoir, Matt Hay shares his story with candor, love, humor, and insight. He weaves numerous songs into his narrative, using them to illustrate life’s joys and challenges, as well as moments of both joy and heartbreak. Whether it's a song with lyrics that mirror his lived experiences, a song forever etched into his heart, or a song he desperately tries to keep in his memory, Hay shows how music has been an integral part of his journey.

I deeply appreciate Matt Hay’s perspective on life and the way he brings the reader into his world while educating them on our sense of hearing. I was fortunate to win an ARC copy of this sweeping memoir through Goodreads, and I am immensely grateful for the opportunity to read it.

I chat about this book over on my YouTube channel, LaRosa Reads. Check it out if you're interested!
Profile Image for Garrett.
113 reviews
March 12, 2024
Through my own NF advocacy journey, I have had the pleasure to meet Matt. His story is so inspiring and speaks to the lived experiences of people with NF. For anyone impacted by NF or wanting to learn more about it, this is a must read! Thank you Matt for your advocacy and service to the NF community!
Profile Image for Kristie.
817 reviews
January 10, 2024
The amount of challenges a body can endure is pretty remarkable. In Soundtrack of Silence, author Matt Hay takes us through his journey with NF2 (Neurofibromatosis, Type 2,) a rare disorder that has affected him throughout his life, robbing him of his hearing, and tampering periodically with his mobility and balance.

Even more amazing is the human spirit, something that Matt has curated and strengthened while dealing with NF2, empowering him with a drive to move forward instead of wallow, and to share his story with a mixture of humor and wisdom.

This is an advanced copy that I’ve had for a while and, like so many other memorable books, appeared in my mood reading queue at just the right time. Here, at the beginning of a new year, where starting fresh and making resolutions is the norm, it was fascinating to read about someone whose medical challenges have necessitated that he make life resets in abundance. RE-solutions, or “solving again,” facing old challenges packaged in new ways with determination, is a pattern in which both Matt and his incredible wife, Nora, have become veterans.

Simply put, NF2 is a (usually) genetic condition in which benign tumors grow along nerves. For Matt, the tumors’ location affects sound to effectively reach the brain. Confronting the removal of these tumors, which keep returning, is one thing. Recovery is another. The possibility of new medical issues arising from each surgery is something else. Factor in the strain on mental health, finances, and family, and this man has not had it easy.

So where does the soundtrack fit in? Despite grappling with sub par hearing most of his life, Matt Hay adores music. Melodies, lyrics, and the marriage of these elements with the right voice and instruments have sustained him in a formidable way. It may seem unfair that someone who loves music so much has struggled to hear it, but that struggle has also created insight and opportunity at different times. One of those tender mercies whose purpose unfolds when you least expect it.

This is an important book which will yield different takeaways for different readers. Some will feel inspired by Matt Hay’s dogged determination, some might decide to finally have their hearing checked, and still others will use his story as a way to put their own difficulties into perspective. Whatever the reason, it’s a book worth reading with an author worth knowing. 

My thanks to NetGalley and St. Martin's Press for this advanced copy.
Profile Image for Meghan ReadsBooks.
1,015 reviews33 followers
January 2, 2024
Thank you to both MacMillan Audio and St Martin's Press for review copies of this engaging memoir. Soundtrack of Silence is a charming love story that is grounded in many touch points for people like me who love music, hear a song and link it to specific memories, who make playlists that are more than favorite songs but playlists with a theme/milestone in mind. Soundtrack of Silence is also an excellent read for those seeking a disability awareness memoir as it focuses on hearing loss and experiences of individuals who are deaf. I loved the focus on remembering music as a way to remember important moments, of parts of self and relationships, and simply the chance to be a part of understanding the journey of hearing loss and Matt Hay's story.

The audiobook is narrated by the author himself, which is important for more fully embracing the book as well as reminding us that inclusion in audiobook narration matters too. I appreciated the chance to listen to parts of this memoir as well as read the review ebook.
Profile Image for Anne Jisca.
244 reviews6 followers
January 9, 2024
This book was excellent and engaging. The narration (by the author) really draws you in since it’s so authentic. Feels like sitting down in a one on one conversation. Matt shares his story of loosing his hearing. How does on prepare for the inevitable? He shares through the lens of music. Committing music to memory, so he can hold those memories to his heart. It is fascinating how music helped him learn to teach his brain how to mechanical sound from his hearing device.

It’s helpful to hear the day to day challenges of a hard of hearing, or deaf, person. It’s so much more than simply no sound. How it impacts sleep, balance, awareness, marriage, parenting, etc

I’m glad I picked up this book!

Thanks to NetGalley for the ARC.
1,210 reviews
December 22, 2023
I requested this for two reasons -
1) music is connected to the majority of my memories, and is of vital importance to me
2) I have lost more of my hearing than I ever imagined I would and need hearing aids


However, I didn’t enjoy my time reading this one; this was for a number of reasons, which I won’t list.




Thank you to St. Martin’s Press and NetGalley for the DRC
Profile Image for Kelli Santistevan.
1,050 reviews36 followers
December 19, 2023
An inspiring memoir of a young man who discovered he was going completely deaf just at the moment he’d fallen in love for the first time.

Thank you St. Martin’s Press and Netgalley for sending me a digital ARC of this book in exchange for an honest review! I enjoyed reading this book. It was so inspiring. If you like inspiring stories, I would recommend this book.
Profile Image for Kate Kelts.
79 reviews2 followers
January 27, 2024
"Like millions of people in the world today, I live on the edge of that roofline, a world where the promise of technology keeps hope alive while the frustrations of loss tap me on the shoulder like a steady rain."

Soundtrack of Silence by Matt Hay

I loved this book. Not only is Matt's story compelling, but the honesty with which he describes his journey living with a rare disease is incredible.

This quote I share here from the book is a great example of how Matt takes his own personal story and pulls back the lens to help himself and all of us see the bigger picture and build compassion for others.

Read it. You won't regret it.

Soundtrack of Silence: Love, Loss, and a Playlist for Life
Profile Image for Martha.
352 reviews7 followers
February 22, 2024
My thanks to NetGalley for the free copy in exchange for my honest review. Matt Hay, the author, was born with a hearing loss and growing up he never realized that was not how everybody heard until he went totally deaf. It deals with his friends, his parents and how nobody knows how to cope with this. Matt shows how different people address his hearing loss. He meets Nora and falls in love just as he has gone totally deaf. The book shows the good and bad in people and how Matt and Nora tackle this problem during their life.
Profile Image for Todd.
219 reviews12 followers
September 11, 2023
I wasn't sure exactly what I was getting into when I downloaded the DRC of this title, based on the description. What emerged was an engaging medical story, interspersed with how music and a strong support system (especially the love of one's life) can pilot a person through almost anything.

I feel like there were some super strong elements to this book, particularly the medical descriptions (both in layman's and more involved terms), and Hay's obvious love for his own family and his adopted one.

I wish that there was a bit more about the music. Random lyrics gave me an overall understanding of his tastes and how they applied to given situations/chapters, but somehow it never quite tied together. I also felt that there could have been a little more about some of the "secondary" characters in his life that were mentioned but barely fleshed out. Especially compared with Nora and his parents and in-laws. It's a tough balancing act to not delve into too much minutiae while still rounding out a book, and this one felt like it was a bit more scant than it could have been in some ways. For those reasons, a 3.5 star book, rounded up to 4 for his enthusiasm and incredible motivation to carry on against such obstacles.
Profile Image for Jennifer.
2,534 reviews164 followers
February 14, 2024
This memoir tells Matt Hay’s unique story about one with hearing loss. As a kid, he couldn’t hear as well as other kids, but a combination of being able to fake it and denial meant no one else ever knew. But as his hearing loss grew worse in college, he discovered he had a rare condition where he was growing tumors on his auditory nerves, and that he was going to go completely deaf. Then came many surgeries which made things both much worse before they became somewhat better.

I really enjoyed reading Matt’s story and his testament to both perseverance through tough times and his commitment to living as normal life as possible with all that he goes through. . Also loved the framing device of the book - as a music lover, in preparation for losing his hearing, he memorized songs he loved note by note, and each chapter starts with a lyric, and then throughout the book he sprinkles favorite lyrics as they apply to the moment.

Thanks to Netgalley and the publisher for my copy (out now); all opinions are my own.
Profile Image for Cheryl.
664 reviews15 followers
February 21, 2024
Memoir of a man who has a genetic mutation that causes him to lose his hearing. He copes by denying it at first, then begins to focus on making musical memories for his future. The surgeries that he undergoes causes him to have to relearn how to walk. So he forces himself to run a marathon. I was impressed until he enters an Ironman competition and leaves his wife home with twins and a baby. How she stayed through this marriage is a mystery. He does look back and realizes what he put her through and apologizes. A great triumph over his life obstacles.
This entire review has been hidden because of spoilers.
Profile Image for Sarah Laudenbach.
Author 3 books45 followers
May 27, 2024
Listened to the audiobook version narrated by the author, Matt Hay.

3.5 rounded up to a 4.

I didn't quite know what to expect going into this book, given that the premise seems pretty cut-and-dry: the memoir of a hearing man who goes deaf, and has to learn how to live a life without sound. And I suppose that, in the grand scheme of things, that's not precisely inaccurate - what that premise leaves out, however, is all of the little things that make this memoir a truly intimate experience to read.

What really tied Soundtrack of Silence together for me was, funny enough, the acknowledgements. One of the very first things Hay writes is that, while this book is strung together with song lyrics and titles, it's not done that way for the sake of the book itself; it's done that way because Hay truly did mark his journey through songs. When the concept of Hay's personal 'soundtrack' was first broached, I wasn't entirely convinced that I could get on board with the way this book was structured: if you were going to go deaf tomorrow, what songs would make up your personal soundtrack, and what songs would you want to commit to memory?

But really, that's not what this book is structured as, and not what the point of a personal soundtrack is. For Hays, it's all about songs that trigger specific memories at each step in his life - the songs he grew up with and loved, yes, but also the first song he ever heard after having his hearing aids put in; the first new song he ever hummed along to after going deaf; the songs his kids beg him to sing to put them to sleep. We don't realize how much music is apart of our daily lives, and how much of our personal history is wrapped up in it. For Hay to juxtapose that with his journey through hearing loss was such a phenomenal and unique way to go about it.

That being said, there were certainly points where this book dragged, and the pacing was a little bit rough. Hay is a really talented writer, and this was a fascinating listen, but Soundtrack of Silence really didn't need have to be half as long as it was. I found myself zoning out at certain points, and could tune back in a whole five minutes later, and not really have missed anything.

Still, overall, this was an exceptional book, and I would definitely recommend it!
Profile Image for Alex Rippin.
129 reviews6 followers
January 17, 2024
I received this wonderful audiobook as an advanced reader's copy from #Netgalley and Macmillan Audio. I may not have picked this book up so quickly without their generosity, and I'm so thankful to them.

Matt Hay grew up hearing impaired, and this is a picture of his life so far. Due to a rare genetic disorder, neurofibromatosis (NF2), Matt gradually became completely deaf at a relatively young age. He reads his own incredible memoir, in his wonderfully unique and upbeat voice -- which he would like to point out, is as close to a "hearing person's voice" as he can possibly get. He has been through so much, and wrote about his diagnoses, his many surgeries, his multiple recoveries, and his absolute victories, in a way that made something unfathomable, more clear.

He shares his story with wit and lyrics from songs that he memorized before becoming completely deaf. We're talking, can't even hear his devoted wife Nora softly snoring next to him. The lyrics he shares inside each chapter are perfect and recognizable, and I truly believed they helped shape his story for me. I got chills from certain lyrics he sprinkled in.

I started listening to Matt's audiobook, not knowing that he grew up in the same state as I did. He was very relatable, growing up in small-town Indiana with hard working folks, going to college at Indiana University in Bloomington, which we know has an incredible medical program. He speaks about Nora, also a born-and-bred Hoosier, whom he met young, and knew she was the one instantly. I loved their story. She is as iron-clad as they come. I could feel their devotion to each other in this story. There were some pearls of wisdom for marriage sprinkled in throughout as well. He states that their marriage took some hits because of the things that they went through together -- but they did it TOGETHER. He compares working on a marriage to "not abandoning a car on the side of the road" if it veers off track. You get it back on the road and you get it fixed.

I am beyond grateful to have read this book, and I will be recommending it to friends. A truly inspirational story.
4,120 reviews116 followers
November 8, 2023
Soundtrack of Silence is a memoir about persevering despite overwhelming personal issues. Matt Hay does an excellent job of telling his story, using music to describe his life.

Matt always had issues hearing, but never realized the extent to which what was happening to him was not normal. He ended up losing his hearing due to a rare genetic disorder- noncancerous tumors that blocked the nerves that transmitted sound to his brain. Knowing his fate, Matt set forth a mission to catalog and remember the music that was so important to his life.

Soundtrack of Silence was about his illness, but mainly how he dealt with it, fell in love, and made a life. The author used good analogies to describe what was happening to him, like having access to three crayons instead of a whole 64 count box. Though he was sometimes depressed, Matt's positive attitude and the love of his wife and family helped to see him through.

Soundtrack of Silence is an excellent read, as it reminds readers how a good outlook on life can help you in even the most trying of times. I would definitely recommend this memoir to other readers.

Disclaimer: I was given an Advanced Reader's Copy by NetGalley and the publisher. The decision to read and review this book was entirely my own.
Profile Image for Angel.
548 reviews68 followers
January 20, 2024
"Soundtrack of Silence: Love, Loss and a Playlist for Life" by Matt Hay is a great memoir! I laughed. I cried. I felt sorry for him and proud of him and happy for him. It is very well written and well told in his own voice, which is clear and easy to understand. The challenges this man went through are astonishing. He grew up hard of hearing, and it only got worse. He eventually found out it was caused by brain tumors pressing on his auditory nerves, called NF2. He found out he would eventually go deaf. After each surgery, he had major side effects, which required lots of physical rehab and time.
Matt realized how important music was to him, and he feared losing the sound when he went deaf. He spent a lot of time memorizing his playlist of favorite and important songs. He quoted bits of many songs that are in his playlist. He encourages us to create our own playlists of the songs of our lives. I'm working on mine.

I could empathize with having an eye operation and how you need to be awake during it, which is not easy!

I highly recommend this memoir to those who appreciate memoirs and nonfiction. He has many challenges, but he overcomes them with great effort and thrives. It is very inspiring!

Thank you to Netgalley, Macmillan Audio from St. Martin's Press and Matt Hay, for this audiobook ARC in exchange for my honest review.
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