Kaleidoscope: Rare Disease Stories

by Kerry Wong, Karen Duffy (foreword)

Kaleidoscope Rare Disease Stories is a collection of true, first-person stories from people around the world living with a variety of rare diseases. The writers in this book, like the rare diseases they live with, span all ages, ethnicities, genders, religions, and ability levels.

Each story shares an aspect of their the journey to diagnosis, what they've learned, how they've grown, changed, and connected with others in the rare community, how they embrace life, and more. These rare warriors show strength, courage, creativity, humor, and so much more. They are living proof that even through the darkest of times, through the unthinkable, through the fear - there is always hope.

Features a Foreword by Karen Duffy Lambros, NY Times best-selling author of Model Patient, Backbone, and Wise Up.60 Stories44 Patient Writers3 Caregiver Writers59 Rare Diseases4 CountriesAges 2 - 76*Net proceeds from sales of this book will be donated to the National Organization for Rare Disorders (NORD).

320 pages, Kindle Edition

Published February 29, 2024

Reviews

[Anne · Rating 5 out of 5]

As someone with one of the rare diseases (disorder) mentioned, I was excited to read this book. I hope it is read by many as it provides insight into what we “zebras” experience and also helps us know we are not alone.