This book was so good that I immediately recommended it to a friend who is a Texan politician, telling her that I think this book could be helpful to her work, if she has yet to read it. There was so much in here - some I'd already known, but so much more that I now understand even better or have learned for the for first time. Most of the book focuses on the consequences of medical racism for Black people, but there is also time dedicated to Indigenous, Asian, Latinx, immigrant, transwomen, and disabled populations (probably in that order).
A lot of books I've read on systemic medical prejudice has been from the perspective of women being excluded from data collection, and the intersectionality of the other demographics are layered on top. This book does the reverse, and it started with the author having a very common skin condition (eczema) that went untreated her entire life because the white doctors in the countries she'd lived in couldn't recognize it for what it was, given her skin was Black and that her condition presented slightly differently than any cases they'd seen or learned about in medical school. When she finally got a diagnosis from a Black doctor, she started asking questions.
Something else that surprised me was what the author calls race normalizing in terms of data. Actually, it shouldn't have surprised me. Yet...race normalizing adjusting the data for Black people which puts them at a significant disadvantage. I was especially interested in the chapter on eGFR readings. Mine are consistently high within the normal range, as is my BUN. As a result, my ratio of the two is always just over the line and presents as outside of normal range. My doctor explained that since both numbers are within normal, the ratio itself can be ignored. I had no idea that doctors had been instructed for who-knows-how-long to skew data for Black people by a factor of roughly 1.2, which has had an impact on how well their kidney issues have been treated in the past. This was one example. There were others that were deeply troublesome and appalling - cases that were taken from today's times in developed countries.
I knew racism and sexism play a role in the efficiency of care people get. I was particularly disturbed that even Black women doctors were subjected to dismissal by medical professionals at every level (EMT to surgeons). While reading this section, I kept remembering how my mom's cancer diagnosis was overlooked by doctors for years, she being told that she was being overly emotional about a problem they thought was insignificant (her inability to eat) and that she should take the antidepressant pills they were diagnosing. She used to call me in tears about being unheard. And I reflected also about my recent experience where my primary care physician dismissed my concerns as "in my head" because that was the only logical conclusion, given he wasn't able to help me with it (literally what he said - yeah - I don't see that doctor anymore). I thought if my mom and I, as two Asian women who are unfortunately higher up in the race hierarchy are treated this way commonly, then the frustration that people lower on that hierarchy must be so much worse. And with the evidence presented in this book, that seems to be sadly true.
One other topic I'll touch on here is how harmful stereotypes can be, and I'll use a couple of the ones I've had to face. We may think that some are "positive" - like how all Asians are good at math. However, I'm terrible at it. And weirdly, one of my symptoms of grief after my parents died was that my computation abilities have completely disappeared. I can barely calculate tip without a calculator. Sometimes, simple arithmetic escapes me. Yet, I'm expected to have a high cognitive function in math just because of the way I look, the last name I hold, the heritage I talk about proudly. So when people discover the truth, they often look at me like there's something wrong with me. This results in loss of professional confidence from people at work who don't really know me, and opportunities I might've been given based on a false stereotype are suddenly out of reach, even if computation capabilities have nothing to do with them. That tiny microagression can compound and multiply into longer term frustration, stress, and anger, because now that also limits my promotion and raise potential. (My parents only died a few years ago, so this didn't apply to me, but it could have. Hopefully, that’s evident by the way I’ve drawn it out.)
Another more dangerous stereotype I've frequently had to fend off is the idea that Asian women are always sexually submissive and pliant. This has resulted in everything from verbal sexual harassment to physical, illegal, and traumatizing sexual assault. These are two slices of my life that I’m willing to share because talking about it openly will maybe help someone else who’s been victimized, though I’m unwilling to share details. Stereotypes in medicine can be even more life threatening. Even a common one like how Black people suffer less pain because of the false idea that their skin is darker is very damaging to them and can lead to dismemberment, chronic unnecessary pain, or even death, because they are often under diagnosed, misdiagnosed, or completely ignored. The author starts out with a fairly famous case in the US where Serena Williams nearly died after delivering her baby because the doctor wouldn't listen to her about a chronic condition that she knew she was dangerously heightened in that moment. Multiply her experience by the 1.2 billion Black people around the world, and it's impossible to ignore the medical injustices carried out every single day as a result of medical racism.
There were so many other profound moments, but if I share them all, then I'd be stealing the discovery process from you. I chose these three because I could absorb them relative to my own experiences, which I am ok to share here. I think this book is really important for everyone to read, if for no other reason than maybe you might be surprised to find out your own prejudices might be buried in there that you may have been unaware of until now.