NOTE: I stopped reading this book at just under halfway. If the second half is much better than the first, then this review may be inaccurate.
tl:dr: Hearing other autistic people's experiences of being autistic is helpful and generally positive. Hearing non-autistic Autism Experts talk about being autistic is not.
Putting my cards on the table of my perspective going into this book: I am autistic and a keen advocate of the neurodiversity movement. I believe autistic people are the experts on autism and that the medical model of autism is damaging and ableist. I am sceptical of autism ‘experts’ who are not themselves autistic.
Okay, and now getting into this book, what is good about it, what is not good about it, and why I did not finish it.
The book is split into chapters each dealing with a topic relevant to the lives of autistic people: anxiety, sensory issues, making friends, and so on. In each chapter, a handful of autistic people share their experiences and some advice that’s worked for them around the topic. This format is okay for dipping into it here and there, but makes for repetitive reading at points. For example, anxiety? Good diet, sleep well, exercise. Depression? Good diet, sleep well, exercise … and so on.
Obviously the autistic mentors’ sections varied in how helpful they were to me personally, as you would expect. There were some parts that resonated and others less so. But no problem, and I like hearing autistic people talk about their experiences of being autistic.
And that’s about it for the good parts of this book. Let’s get into the not-so-great stuff. First off, the terminology used, as you would guess from the title, is Asperger’s, high-functioning autism (HFA), and person-first language. I do not like these terms, and nor does a lot of the autistic community. Asperger’s is outdated as a diagnosis separate to autism and serves to divide the autistic community (as well as bearing the name of a man active in condemning autistic children to death in Nazi concentration camps, so there’s that). Functioning labels are ableist, loaded and simply inaccurate when all autistic people have strengths and weaknesses (almost like they’re, shocker, people). And many autistic people prefer the identity-first language of, “I am autistic!” rather than, “I have autism.” Think of the difference between, “I am gay” and “I have X illness”. Identity-first acknowledges and owns the identity, whereas person-first makes it sound like a disease.
Okay, onward and downward to some particularly jarring parts of the book. Each section of the book finishes with a snippet from Dr. Tony Attwood, a neurotypical psychologist. These are the parts I liked the least.
Point one: repeatedly Attwood rather bizarrely assumes the reader to be an adult, but also patronizingly explains to them that alcohol has an age restriction, drugs are illegal, and knives are bad. Um, right then. Does he know that autistic people do actually live in the world and not under rocks?
Point two: in the self-esteem section, he spends a paragraph telling autistic people to develop value systems independent from those who are hostile to them. And then in the next breath makes it seem like the best an autistic person can do is be good despite their autism. This will come up again, but any advice for a neurodivergent person that talks like their divergence is an unfortunate obstacle to overcome rather than an intrinsic part of them does not vibe with me.
Point three: the playing of the genius card, AKA the “Did you know that Albert Einstein/Steve Jobs/Isaac Newton/Bill Gates had Asperger’s?” card. Essentially the argument is, don’t feel bad about being autistic because, hey, you might be a successful super genius. The glaring problem with this is that the vast majority of autistic people are not successful super geniuses. And if your argument for why it’s okay to be autistic amounts to autistic people have to make up for their autism by being much smarter than the average person, then your ableism is showing.
Point four: another gem from Dr. Tony Attwood, this time in relation to meltdowns. Let me summarize the gist of his two cents: “Having a meltdown is unpleasant, but have you even thought about how bad it is for the neurotypicals around you? You’d better get writing your apology letters now because of how much your visible distress will be upsetting to them and they will be expecting you to apologize.” Won’t someone, please, think of the neurotypicals? I jest, but seriously. Guilting autistic people for responding to overwhelming stress in a way that is involuntary for them. Yeah, classy. Thanks for that, Tony.
Point five: perhaps this was the straw that broke the camel’s back and made me stop reading, idk. But I got to the depression section and Attwood gifted us with (again, paraphrased), “Sometimes autistic people are depressed because they see autism as a disability.” Okaaay. Well, that’s about enough for me. That was a good wisdom, Tony. You represent a lot of what damages autistic people in mainstream discourse about autism. Just because you scatter in some lip service to neurodiversity does approximately nothing if you’re arguing that autistic people should see disabled as a bad word they should distance themselves from.
Aaand with that, I am done with this book. Thank you for reading my succinct, not at all infuriated review all the way to the end.