"Graceful Strength" is your essential guide to thriving with Ehlers-Danlos Syndrome (EDS). Co-authored by EDS patients and experts, this book combines real experiences with professional advice for managing symptoms, advocating for yourself, and building a strong partnership with healthcare providers. It tackles challenges like medical gaslighting and insurance navigation with practical strategies. A source of empowerment and community, "Graceful Strength" equips you to live a dignified life, full of resilience and grace, amidst the complexities of EDS.
The best reference book for newly diagnosed EDSers! Many books about EDS are overwhelmingly long and written by and for healthcare providers, but this book is unique in that it was written from a patient perspective with a lot of input from EDS specialists, patients, and community members who live or treat EDS every day. Recommending to anyone who is new to EDS & related disorders as a gentle but empowering introduction to living well and understanding self-advocacy.