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Be Patient: Life, loss and laughter from behind the hospital curtain

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'Darkly funny as well as deeply shocking, [Be Patient] is an antidote to This is Going to Hurt... This is what it's like to be on the other side of Britain's hospital wards' -The Times

'Tilly writes beautifully, with such compassion... the insight that she gives the reader is astonishing.' -Donna Ashworth, poet and author of Wild Hope and Growing Brave

'A story of perseverance, the importance of advocating for yourself and how the kindness of strangers can have a huge impact... A lesson to us all on what it is to have hope, even when we are at our most depleted. Shocking, brave and raw.' - Giovanna Fletcher, author, podcaster, actress and activist

'What a sensational read. A real, heartfelt, and insightful look into the lived experience of someone managing their chronic health issues.' -Dr Nighat Arif, author of The Knowledge

'I found this book both heartbreaking and uplifting all at once. A true story of resilience, hope and unwavering courage. A reminder to us all that life is worth living and that love really can conquer all.' -Frankie Bridge, presenter and author of Open

'An inspiring account of a patient journey. Recommended for all.' -Dr Ed Patrick, comedian and author of Catch Your Breath

'Nothing short of a literary miracle... I loved it.' - Abi Morgan (OBE), screenwriter and author of This is Not a Pity Memoir

***

It's the sleepover from hell that no one prepared you for. The doctors have gone to medical school, the nurses have gone to uni - but what about the patients?

Be Patient is a warm, darkly comic account of Tilly's desperate search for a diagnosis, against the backdrop of a hilariously funny, heartfelt and, at times, shocking insight into patient life.

A 'medical mystery' for over 20 years, Tilly has spent a lifetime navigating GP waiting rooms, A&E departments and hospital wards. She has been given a front row seat watching humanity at its worst (or its best, depending on how you look at it). Along the way, she has become highly qualified at two being a patient and being very patient.

Now, she is shining a bright hospital strip light onto a space that none of us want to occupy but one we know, with some certainty, that we will. Complete with 'survival tips' and fuelled with humour (the best medicine of all), Be Patient is an extraordinary memoir on resilience, hope and finding strength in the face of adversity.

Audible Audio

Published April 17, 2025

78 people are currently reading
677 people want to read

About the author

Tilly Rose

14 books18 followers

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Displaying 1 - 30 of 72 reviews
8 reviews
April 22, 2025
Be Patient by Tilly Rose is truly one of the most powerful books I have ever read. Rose’s ability to make you feel hope and resilience in the darkest hours is incredible. The book somehow had me laughing, crying, and in complete disbelief in the space of about three paragraphs, with me wanting to punch a wall in anger on the next page. I don’t think I can write a review that does this book justice but I think it deserves a try.

The book is a memoir of the author’s 20 years’ as a patient in the NHS. This is a voice I haven’t heard told before in such compassionate detail and I really believe this is a must-read for doctors, politicians, patients, and everyone. I have followed Tilly’s story on Instagram for a while now and as she has pointed out - we will all be patients at some point in our lives. She sadly has had more experience of a struggling NHS than most.

Without giving away spoilers - I think everyone should read it without them - the book is split into three parts, each a different stage of her experience in and out of hospitals in the UK. The humour scattered throughout keeps a heavy subject very readable and will have you laughing at the darkest subject matter.

The closest comparison that a lot will make is to Adam Kay’s This Is Going To Hurt - both are a funny and deeply political look at the state of our health system. Being from a patient’s perspective, however, means that this hits so much harder on a personal level.

I encourage everyone to read this book. If you are a patient it will make you feel heard and less alone. If you know a patient, it will help you know what to do to make them feel less alone. If you are a doctor, hopefully it will help you remember that in your most stressful moments, patients are still human beings struggling through life. As for politicians - hopefully this will encourage the change Tilly is advocating for in the NHS.

If I could give this more stars I would!
Profile Image for Pippa.
Author 4 books101 followers
May 27, 2025
Tilly’s story paints a vivid picture of what it’s like to exist in a medical system that simply isn’t equipped to accommodate rare diseases. The struggles she’s faced make this one feel like a difficult read in parts, especially for readers who’ve also experienced medical gaslighting in some shape or form, but it’s so important that stories like these are told. An absorbing book that I hope has a place on every medical professional and policymaker’s reading list.
Profile Image for Zara Harper.
757 reviews5 followers
April 28, 2025
I’m not really sure what to say about this book but it put me through so many emotions. The anger, the sadness, the hope, the frustration, the hopelessness. By sharing this journey, it brought to the front all the feelings I have gone through with my own health battles of late, as well as those of two of the people closest to me and how broken our healthcare system really is. This book is such a raw and honest look at the authors journey and battle to be seen as a person, not just a patient or a bed number and really is eye opening, as as well as tear inducing. Thank you for sharing your story.
1 review
May 3, 2025
I've been following Tilly for the last few years on Instagram - @thattillyrose. Her writing is another level, bringing such warmth and great pacing across the extreme highs and lows of hospital and patient life. This is the book everyone needs to read - but most of all doctors, patients, and politicians! I couldn't put my copy down and finished it in a day. A must read
Profile Image for Mark.
1,749 reviews
May 6, 2025
An incredibly moving and informative book about Tilly Rose who has been dangerously ill for 20 years yet has had to fight all the way to eventual diagnosis

Having resonated very much with the book re being a patient and illnesse’s that do not fit set criterias’s I can say 100% Tilly writes correctly re the experiences of hospitals and appts,wards and Dr’s,she from the heart and everything she describes and writes about I found at some level I had experienced…..I loved the part about the Dr who not only believed her but wanted to help and resolve her health crisis….sadly I recognised as many will the soundbites given to patients when we do not tick the boxes that are given them to tick

But this book is not a downer,even with the above mentioned it is a book of hope and love and good shining through and also of shared experiences and hope and will give comfort to every one who is or has struggled to be believed and receive care from a system not always capable of doing so….I loved the fact Tilly was sure to chart the all positives as well and say how even a tiny positive can change a day

It is a very personal account that many will be very grateful she has shared and cant recommend it enough for anyone struggling or trying to cope with illness

Thanks Tilly for writing this book
1,196 reviews50 followers
April 13, 2025
Thanks to Anne at Random Things Book Tours for the gifted copy of this title in return for an honest review.

As someone who has had their fair share of health issues and hospital visits, this book went straight on my wishlist. And I really identified with her story so much. Not in terms of the diagnosis, but in terms of her experience. Being moved from pillar to post, this doctor and that doctor, this scan and that scan. And the fact that she reads in order to cope with her situation - I felt that.

I read it in less than a day. Some non-fiction, especially medical ones, can be a bit dry and feel difficult to get through but not this one. It reads like a thrilling novel, you're so hooked on it.

As someone with a potentially incurable condition (different to Tilly's), it can be hard to explain to people, even your nearest and dearest, what it's like, what you need, how they can help. I've been ill since 2017 and I'm still unsure how to approach it really and then this book comes along and its like a godsend. I thoroughly recommend reading this, whether you're the sick one or you're a friend or relative, or even if you don't know anyone sick. It's an emotional but vital manual.

I don't want to compare it to other books because it's important as it is, but I couldn't move past my comparisons to Alex Kay's This Is Going To Hurt. It's got that dark humour about it but it's full of heart.

I don't want this to come across as corny, although maybe it is, but I don't think I've ever read a book that spoke to me so much about something so few people understand, and I can't explain just how important that is.

I'm going to get a bit personal here. I took an overdose in September 2024 due to worsening mental and physical health and I really think I would have been better if I had this book then. This book could be a life saver.
Profile Image for Rebecca Lobb.
197 reviews
November 20, 2025
Tilly is a refreshing writer, and she writes with such elegance which is thought provoking. Her story is hard to read at times. The frustration and despair at just being left to manage all her symptoms is a hard read.

As a nurse myself we are taught the importance of a holistic/individualised approach to patient care. But the NHS system is running in fumes, and quite simply it just can’t happen. Which is so sad and for people like Tilly, debilitating.

My only critiques of this book is the last 20% is incredibly rushed. And to be honest this book should have been released once she did find her answers, surgery and final diagnosis. It puts the book out of kilter.

Secondly, unless she has the most impeccable memory how she recalls all of conversations she had and what was said is mind boggling. It just felt a little insincere and dare I say it ‘moany’ at times.
Profile Image for Kimmy.
49 reviews2 followers
November 24, 2025
Everyone should read this book. If you have ever been a patient (and it’s impossible not to have been one), it’s a must read. For all of the healthcare providers, this is a must read. And to all of the support people to anyone with a chronic illness, this is a must read.
My own struggle to get diagnosed with Addison’s disease was tricky (I was also told my symptoms were in my head - I was even signed up for out my patient psych!) until I finally told my attending doctor on my second week long hospital visit I wasn’t leaving without a proper diagnosis. I wish this book would have been there with me then but I’m glad I was able to advocate for myself, I’m glad Tilly did too.
“The reality is we will all be a patient at some point in our lives it will affect each and every one of us.”
We need to learn what questions to ask and how to advocate for ourselves. This book gives hope when the medical system fails us time and time again.
Profile Image for EmJu .
86 reviews
November 30, 2025
Our NHS is amazing, but this is the story of Tilly and what happens when the NHS aren’t able to diagnose and manage your debilitating symptoms. I have followed Tilly on social media for a while and this is a culmination of the chapters she has been sharing online, documenting the challenges she has had getting heard and the journey that ultimately results in her seeking care in Germany.
Profile Image for Sophiesreadingbookshelf.
175 reviews6 followers
July 26, 2025
Wow, incredible story but also so deeply upsetting at how patients with chronic illness suffer within our medical system.

Tilly shares her own experience on life behind the blue curtain. It is truthful, hard hitting and something so emotional.

Profile Image for Zara Porteous.
119 reviews
October 26, 2025
You simply can’t read that and rate it any less. As a patient myself this book both broke me and healed me at the same time. Tilly you are phenomenal and have endured far more than any one person should, thank you for being to vulnerable and sharing your hardest moments 🫶🏻
11 reviews1 follower
May 22, 2025
A must read for everyone.

Tilly Rose delivers a gut-wrenching memoir that takes you through the her experience with the British healthcare system.

She delivers her memoir with class, dignity and a rationality that deserves the utmost respect. Her vulnerability and humanity throughout the book mean you cannot help but empathise with the person not limited to her story to that of another patient.

As a medical student, I was shocked by the utter lack of empathy and logic exhibited by some of the doctors. This memoir should be mandatory reading for all medical students to ensure that zebras are not alienated, neglected and harmed by our healthcare system.
Profile Image for Sophie Dixon.
132 reviews6 followers
January 30, 2026
FINALLY got to read this. I have absolutely loved following Tilly’s journey on Instagram, but the book was heartbreaking and uplifting all at once. Recommended reading for all.
241 reviews7 followers
December 31, 2025
Ha ha, this is the book my mum has wanted me to write.
I could not have done it this well, though.

First of all, I am so sorry this has happened to you, Tilly. Keep your strength and faith. 😊

This book is a part of our patient, Tilly's journey. It has been a long one. It is hard when you go to the doctor without "typical" symptoms, which I can understand. A broken arm is easier to diagnose.

It is not a "bu-hu, poor me book", this is a "this is what happened." Tilly's tale.

In one area, Tilly was lucky in the middle of it all. She had Finn. Her boyfriend, her 'college hubby'.

While struggling with school and illness and trying to figure out what is wrong, Finn was there for her.

My boyfriend at that time bought me the book 'Don't sweat the small stuff'. Oh, how I wish I was joking.😝

After every chapter, we also have "patient survival tips." I'm loving that. 😁
Profile Image for Claudia Obrien.
47 reviews1 follower
July 17, 2025
3.75⭐️ I honestly think the book could have been triple the length and I would have read it. Tillys writing is addictive to read. She captured so perfectly the feeling of being a “complex” patient stuck in a system that is dismissive and cruel to those with chronic illnesses. Her stories were TOO relatable

My only critique is that the 3rd section felt extremely rushed. I was surprised at how she crammed the Germany part into a mere page considering how essential it was to her getting her diagnoses. I couldn’t wait to read about how they figured out what she had and how they helped and the grief she must have felt after being dismissed for so long but it just didn’t go into any of that.
Profile Image for Bookworm86 .
2,071 reviews150 followers
February 14, 2026
BLOG TOUR REVIEW

Review for 'Be Patient' By Tilly Rose

This is the first book I have read by this incredible and brave woman. She has also wrote another book called 'That Oxford Girl: A Real Student's Guide to Oxford University'

The first thing I have got to say is an absolutely HUGE CONGRATULATIONS and thank you to the author Tilly Rose! She has written this memoir and told her story in a beautiful, honest and eye opening way and I truly believe that everyone should read this book! I will start by admitting that this book is not my usual choice of book being non-fiction so I wasn't sure how I was going to feel about it but I have had several problems myself trying to get a diagnosis so was intrigued in reading it. I am extremely pleased that I did as it is such an eye opening, intriguing, emotional and educational read and I would genuinely highly recommend that there should be a copy made available in everywhere.

This memoir takes us on a journey through the Tilly's life as a patient for over 20 years while trying to discover what is causing a large range of serious, scary and painful symptoms. It is an emotionally packed book filled with romance, pain, frustration, love, heartbreak, family, humour, friendship and absolutely every emotion that you can think of. I will be honest and admit that I was not quite sure what to expect when I picked up this book but whatever it was I got so much more!! Tilly's fantastic writing skills really sucked me deep into his life where I could see everything she went through come to life in front of my eyes and he left me with the emotions that she was going through. My heart went out to both her and her family on many occasions. Throughout it all you can see the strength and love that Tilly and her family have for and with each other and how they are all fighters and when most people would give up after going through just half of what this amazing family went though, they all keep fighting strong as they know they have more fight left in them. I was absolutely mind blown by some of the things that Tilly tells me and it felt like she was sitting across the table from me telling me about her life as a patient over a cup of tea going from laughter to sadness and frustration several times. My jaw literally dropped at the disgusting attitudes that she received from some of the so called Doctors and Nurses who are meant to care for her but instead assumed other things which could have genuinely left to her death!!! The amount of times that they had to ring a call bell and still nobody came which did actually result in a death and the lack of a life saving injection that she is told that she must have on her at all occasions!! This book really does go to show how broke the system is, especially when a certain Doctor wants her on his ward as he is the only one genuinely interested and trying to help but yet the system wont allow him to put her on it so she is yet again shown the doors of the hospital with no answers or help!! Throughout this book Tilly includes some brilliant and very helpful tips and advice for patients, well everyone really because as she said we will all be a patient at some point! The fact that Tilly and her family refused to accept the rubbish some of the so called professionals came out with, continued their own research and has now used this experience to help others is just absolutely amazing. The fact that many people, especially her Mum, who had no medical experiences made more effort to get answers than some of the so called doctors who get paid to do just that really is an eye opener on how broken the system is!! It is an eye opening, honest and amazing read packed with family, experiences, emotions and Tilly's incredible writing skills ensures the reader becomes completely invested as well as educated in everything she writes about. One of the things that I absolutely love about Tilly and her book is that although there is so much tragedy, pain and heartache in her life that she is so full of gratitude and thanks for what she has and her strength, hope and gratitude absolutely shines through the pages. This memoir, although filled with tragedy, pain and heartache, is an amazing read, inspirational and made me smile so many times that I would definitely recommend it to absolutely anyone looking for an educational, motivational or inspirational read regardless of what is happening in their lives.

Clear your schedules, grab the tissues and get ready to take a journey with Tilly through her patient journey!!! You wont regret it and you wont be able to put it down!!

Congratulations Tilly on a beautiful, heart wrenching, honest and, fascinating memoir! You truly are an inspirational woman and I hope to read more books about your life and hopefully soon! The best of luck to yourself and your family!! A remarkable, witty, humorous, emotive memoir!

Overall an open, honest and emotive memoir of life as a patient in many hospitals!

#BePatient #TillyRose #ThatTillyRose #ThatPatientCollective #ThatOxfordGirl #Monoray #OctopusPublishing #Hachette #RandomThingsTours #RandomTTours

@TillyRose @ThatTillyRose @ThatPatientCollective @ThatOxfordGirl @Monoray @OctopusPublishing @Hachette @RandomThingsTours @RandomTTours

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14 reviews
September 3, 2025
As a child I spent Christmases, birthdays, family-members birthdays, Easters, and many many more days, weeks and months as an inpatient. Until aged twelve I knew the hospital staff better than some friends, but then everything changed. I had a surgery and whilst unconscious was administered with high dose steroids I had not consented to receive. Over the next year I continued to be injected with them, swelling up like a balloon until my time as an inpatient dwindled. But simultaneously, so did everything else. I now got recurrent pneumonia and bronchitis, glandular fever, and everything in between. My peers wrote 'ghost' on my school books because I was never there. My anxiety skyrocketed, and so did my recurrent pain, weakness and general disposition. No doctor ever investigated past surface level. It was dismissed and so I stopped telling anyone and began to do everything I could to get myself healthy. Then, aged 18, I caught TB in Tanzania. I genuinely believed I would die, but with a mix of antibiotics and steroids, my body and medicine eventually got me through and soon I went to university, doing everything in my power to leave my health problems in the past. They never went away, but eventually they receded and for year I was able to live normally, hiding the still too-frequent pain, infections and injuries that were now containable.

Years later, I found out I still had TB in my body and needed treatment. The day after I started treatment I contracted COVID that left me coughing up blood. This marked the re-commencement of years of being gaslit and dismissed by doctors, friends and colleagues alike. So many tests came back normal. So few people listened. But like Tilly says, you have to keep going.

Over the last four years I've had surgeries to un-fuse organs that should never have been together, blood clots, a fractured spine, recurring herniated discs, sudden collapses, heart failure, recurring fevers, rotator cuff tears, memory loss, debilitating pain and fatigue, hip subluxations, concussion and so much more. I've spent far more time than I ever wished to in hospital, being pocked and prodded with needles. Yet the worst thing by far has been the loneliness and grief that comes with not being able to venture to the shops, or to travel to see a friend, or do anything at all as seconds trickle by so very painfully, washing away years of your life. Health touches every facet of your life - career, hobbies, mental capacity, and relationships alike. Only now, when I already have four diagnoses but no fully working treatments, are the pieces starting to fall together as I'm investigated for EDS. But for the improvements I've already gleaned via some rare but great doctors and loving support from my parents and partner, I am eternally grateful.

Listening to this book was a lifeline. It helped me process the health issues that I have kept hidden but that have haunted me for my entire life. It made me feel less alone and, towards the end especially, reminded me of how truly lucky I am. At times it was challenging, being transported to my own times living as an inpatient. Yet this book time and time again defined resilience, reminding me how strong people really are. Ultimately, we need to listen, and never to judge based on appearances. There is so much that we don't see in each other's lives, and to have true compassion, we need to remember that. The medical system fails too many today. Undiagnosed, complex diseases that are hard to detect impact so many people. Too many. So if you read this review, then please read this book. Tilly proves what real strength is. It is not loud, in your face bravado. It is quiet resilience in the face of darkness. Perhaps you are that person, quietly and desperately trying to keep going. Perhaps you are blessed with better health but facing other challenges. Ultimately, we all need to listen better. But if you are lucky in health, perhaps listen to this book for the people in your life who are not, even if you cannot see them. Equally, if you are the zebra/dandelion, I bet, like me, you'll feel less alone and luckier for this read.
4 reviews
May 14, 2025
This book is a must read for all. We all at some stage in life take one of the roles represented in the book. We might be a dr or nurse, or have a loved one who is a patient, or you might even BE the patient.

This was a raw and honest account, at times painful, at times so humorous, and swinging between the two that I could go from one end of the emotional spectrum to the other in the blink of a paragraph. Listening to audio book, I could hear the strength and determination in Tilly’s voice the whole way through.

The patient survival tips at the end of each chapter, they ring so true for anyone who’s ever had to deal with our crumbling NHS system. So useful for patients just starting a chronic journey. And for those further along? The emotions she describes, the way one has to fight to keep their dignity, to be heard, to have a rational and logical approach to diagnosis, the battle between letting in your loved ones to your war vs keeping g them safe from becoming entrenched in your spiders web of helplessness in the medical journey.

That ever fine tight rope between being honest about how you’re really doing vs inviting a pity party and being misunderstood by those who thankfully have not walked your hospital pathway?

This book has already been a huge source of inspiration in breaking down and understanding my own tumultuous rollercoaster of emotions. Of being able to express what I need from loved ones. Why I recoil from people who say “oh so you’re looking well, I guess things are getting better?”

I imagine if every medical professional made time to read this story and understand the things that are missed or disregarded, the medical system would be a better place.

If every friend or ally of an unwell person read this story, there would be so much more understanding and compassion towards helping those who need our support. To help patients find strength and keep fighting on.

Thank you Tilly Rose. For sharing your story so eloquently. From all of us zebras. I may not be in hospital for months on end, but drowning is still drowning whether it’s 6 inches or 6 feet. Your story gives us hope that we may not be medical mysteries for all time. Your epilogue talks of a brighter and better day, where groundbreaking research and innovation can lead the way to help us all. And the spark of joy brought by the reminder that the online chronic community is a special place, where people try to help lift each other up even when downtrodden.

5 stars for this beautiful book.
180 reviews
September 6, 2025
This book was absolutely heartbreaking in so many ways, it proves to me JUST how broken our NHS can be - at times where you feel your most vulnerable not everyone in the hospital sadly cares.

I have had horrendous treatments in hospitals with diagnosis getting missed, just told it’s my weight go on a diet, I too have hEDS so mines from hyper mobility and everything is so difficult to explain - I once had a knee dislocate and it was behind the back of my leg - I was told to go home, rest and ice it..:seriously how was Ice going to fix that??

I read this as I recently lost my beautiful mum - she didn’t even make 60 for the last 5 years of het life she was in and out of hospital with burning in her feet, numbness, she couldn’t walk properly as she said it felt like she was walking on the moon, she ended up dying of organ failure with a 23cm mass in her stomach which was missed - until it was too late. She just kept being constantly told to loose weight. Go on a diet, like cutting out carbs would solve her issue.

Having been on AMU wards as both a patient and as a patient family - honestly it is horrendous you are in no mans land, never see the same faces and u til you get a diagnosis you are just stuck. It’s horrendous.

No one of sound mind wants to be in hospital and for all those who may still be fighting their fight. Please do still fight. You know your body best, if it’s not right tell them and if the fight leaves you, find someone to fight that corner for you. Don’t battle alone.

Sorry my review isn’t much about the book but it broke me in so many ways with how familiar treatment is across the U.K. I wish my mum was still here so I could tell her how proud I was of her for fighting as long as she did as sometimes I do feel I lost my patience with her and that guilt just eats me some days.

More people need to read this whether you are patient, patient friends/family a nurse, a doctor or even someone else who could make a difference in our wonderful NHS. We don’t just stay in our beds not washing because we are lazy or are anxious, it’s because we can’t. We need help, we need humanity, don’t judge those in the beds whatever they are there for even if drunk - that is still a disease.

A brilliant book about human nature, compassion, failure and family. Some beautiful LOL moments, even if this book touched me slightly too close to my heart. It was still a beautiful read and I am only sorry that Tilly suffered the way she did because she was “anxious”
1,971 reviews32 followers
April 28, 2025
As soon as I saw this book I knew I had to read it. I have been in and out of hospitals for a long time now, having multiple conditions I am always sat in a hospital or doctors waiting room. So I get where Tilly is coming from. Also I like the fact that this a personal account of Tilly's so I thank Tilly for sharing her story. Even though Tilly and I do not share the same conditions I could totally see where Tilly was coming from and I agreed with her on so many things. I really felt for her multiple times throughout the story and felt frustrated and angry alongside her. The story is about how Tilly copes with being a medical mystery, being passed from pillar to post with the majority of doctors not wanting to get involved in her case. There are funny parts to this story too but it is a honest and raw account of a woman who was let down by the NHS many times and I am so sorry for that Tilly. The survival tips at the end of each chapter were informative too. I think if you have a loved one that is unwell than reading this might make you see it through their eyes what they have to go through. I have been through so many things Tilly went through so I totally get it. It was a read that I will remember and I really hope it brings to light that just because you look fine on the outside it does not mean you are ok on the inside, you should never imagine someone is just fine. Also if you are not happy with something in the medical world as for a second opinion, you really have to fight for what you need but never give up.
2 reviews
May 3, 2025
A remarkable memoir that injects wry humour into the trauma of hospital culture. It will resonate profoundly with anyone who has been a patient, or who has cared for a loved one.

It is well written and, at one level, easy to read yet deeply disturbing.

It is also a survival handbook with practical tips at the end of each chapter. If you’ve not yet crossed the threshold into hospital culture, Tilly’s personal experience of being chronically ill, at times acutely unwell, will cushion the shock of the fall into the sleepover from hell, unavailable time critical drugs, the depersonalisation of being bed 3 and the brief ward assessment of your debilitating, sometimes life threatening, health conditions which you are desperate to escape.

It is the small acts of kindness that help keep you afloat.  The nurse who has just absorbed an aggressive onslaught from one patient’s family but nonetheless turns to the next patient with compassion. The enduring support of family and friends. And hope for a rethink of the hospital culture so clearly illustrated here in “Be patient”. Small changes can make a big difference.
2 reviews
August 7, 2025
This raw and intimate true story about Tilly’s descent into health hell and her fight for not only answers but survival is testament to resilience and love. It is also a comment on the nightmare of navigating a healthcare system that can lose people between the cracks of specialisms, has been stretched beyond belief almost to breaking point and sometimes appears not to care at all. And yet, there are individual heroes, large and small who help her hang on. Tilly manages to find moments of lightness in the deepest pits that shine out in her writing and connection with her audience. Always trying to see the best and pass it in each chapter has a little list at the end to will us all on in our own health journeys. A powerful, powerful read that will leave you more aware than ever of how precarious life can be. Couldn’t put it down…should be be on every medical students, consultants and hospital managers reading list
13 reviews
February 8, 2026
Thank you for sharing your story. Reading Be Patient was deeply emotional and at times painful. As a healthcare professional, it was confronting to see how a system designed to heal can instead fail people so profoundly, leaving scars that are not only physical but deeply emotional. Your experience is heartbreaking — and what makes it even harder to sit with is the knowledge that your story is not unique, nor will it be the last.

This book powerfully exposes how attitudes, assumptions, and moments of dismissal can have long-lasting consequences. Every day, I try to do my best for my patients, and reading this reminded me how much weight our words, tone, and presence carry. It hurts to recognise the negative and enduring impact that certain behaviours within healthcare can have on someone’s life. Be Patient is an important, courageous reminder that beyond protocols and efficiency, compassion and truly listening are not optional extras — they are essential.
404 reviews12 followers
February 19, 2026
This is an honest, heartfelt, heartbreaking memoir of the author’s journey as a patient. Tilly Rose spent many years searching for a diagnosis to her medical problems - tests, hospital admissions, pain and frustration with a system at breaking point. I really felt for her and her loved ones, battling for answers. She highlights brilliantly how it impacted on her but also those closest around her. She also brilliantly describes the hurdles through which she had to jump through, even crawl through at times, trying to be diagnosed. I was left reflecting that whatever the training no one knows us and our bodies like we know ourselves. I felt the exhaustion and despair through the pages but I also saw the resilience and determination to not give up. This is a relatable, raw, humorous, humbling read. I loved the Patient survival Tips at the end of each chapter. I wish Tilly and all those navigating a similar battle well. Keep fighting, keep asking questions, keep up the cups of tea.
1 review
April 26, 2025
This is a book that EVERYONE needs to read, a book thatvwill stay with you for life. ‘Be Patient’ can be seen as a response to Adam Kay’s ‘This is Going to Hurt’. Tilly shows us the other side of the hospital curtain - life as a patient - showing that is did hurt. It hurt a lot. This book is full of stories to make you laugh, cry and ones that will break your hearts but ultimately it is is story of HOPE and a faith in human beings even when every system is working against them. The government and NHS need this book to impact change. It should be on every medical syllabus in the country for doctors and nurses. This is a book that will stay with you in your heart and mind, long after you close the final page. Cannot reccommend enough!
17 reviews
June 14, 2025
I heard about this book as the author went to the same school as me. The book is well written and engaging describing the challenges of both living with a chronic illness and being a medical mystery. There's a saying in medicine "when you hear hoofbeats think horses not zebras" because common things are common but sometimes it is a zebra, that is, a rare condition. Another saying in medicine is "the system is designed to fail the doctor and the patient" and sadly there are times when the system lets Tilly down. There are also examples of wonderful, clever, compassionate care.
A very thought provoking book about the limits of medicine and the challenge of medically unexplained symptoms.
I would love to read more books by this author.
Profile Image for Mil.
29 reviews
July 11, 2025
Dandelion

Tilly’s story is all the more powerful because it’s about hope, love and a desire to live in the face of neglect, indifference, wilful ignorance and helplessness. She somehow manages to be empathetic and shows the courage of the staff who try to do their best as the system crumbles around them. And most of all, it shows the contrast between having people fighting your corner versus having to do it alone. Despite all the bleakness, the book is funny too! She brings the sketches of the people she comes in to contact with to life and it provides much-needed levity amongst the horror. I hope it gives patients hope, when they have had it stripped from them, and inspires change.
Profile Image for Emma Ashley.
1,546 reviews54 followers
February 6, 2026
🩵 Blurb-
Be Patient is a warm, darkly comic account of Tilly Rose's desperate search for a diagnosis, against the backdrop of a hilariously funny, heartfelt and, at times, shocking insight into patient life.
A 'medical mystery' for over 20 years, Tilly has spent a lifetime navigating GP waiting rooms, A&E departments and hospital wards. She has been given a front row seat watching humanity at its worst (or its best, depending on how you look at it). Along the way, Tilly has become highly qualified at two being a patient and being very patient.
Now, she is shining a bright, white hospital strip light onto a space that none of us want to occupy but one we know, with some certainty, that we will. This is one girl's extraordinary story about becoming the expert no one wants to be. Complete with 'survival tips' and fuelled with irony and humour (the best medicine of all), Be Patient is an essential memoir on resilience, hope and finding strength in the face of adversity.
💛 Review -
I don't always read non-fiction books but this book caught my eye. I found the book interesting and entertaining and I couldn't put it down as it was so good and I wanted to know how it ended. It's definitely a must read for anyone with a Chronic Illness and has dealt with the health care system or even anyone who hasn't as it was so interesting and thought provoking. Overall, a brilliant read that I highly recommend to other readers.
🩷 Thank you to Random Things Tours, the author, Tilly Rose and the publisher for my copy of the book in exchange for an honest review.
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