Because Multiple Sclerosis is a disease that someone will live with for years, or even decades, it is important for family and friends to understand what the person is going through and learn how to give support. Multiple Sclerosis used to be feared because it was so unpredictable and doctors knew very little in how to treat it. Thanks to good research and great doctors, people can live with MS even though there is not a cure yet. The Electrifying Story of Multiple Sclerosis is written to help people understand what it feels like to have the disease, how to help, and what symptoms people feel.
Vanita Oelschlager is a wife, mother,grandmother, former teacher, current caregiver and, for almost ten years, author and poet.
She was born and raised near Pittsburgh. She is a graduate of Mt. Union College in Alliance, Ohio, where she currently serves as a Trustee.
She has also supported and helped Jim as he built Oak Associates, ltd. into a successful investment management firm.
Today, as an accomplished author, Vanita shares openly the experiences that she, Jim and their families have had with multiple sclerosis. She has likened MS to living with an elephant, one that won't go away or be ignored. Together, she and Jim have found ways to live with this "elephant", and to share some of the larger lessons about life they've learned through the disease.
Thank you NetGalley and VanitaBooks, LLC for this DRC.
This is a fantastic book to share with everyone who knows someone dealing with MS. It's informative without being overwhelming and breaks down common terms, symptoms and treatments. This would be an easy way to help kids, teens and even adults learn what MS is and how it can affect their loved ones. I do think kids under 10 years might need to have someone read this with them to answer any questions they may have as they go along. I especially enjoyed the activities at the back of the book so readers can understand some of the struggles their loved ones deal with everyday.
The Electrifying Story of MS is a short but powerful guide that I wish every person’s spouse who was diagnosed with MS was given upon diagnosis! I also think friends, children and even bosses and coworkers should be given this to look over, to truly understand what someone with MS goes through! There is so much misunderstanding in the general public about what this disease truly is. This book is informative and easy to understand. I love that the author is donating a percentage of the book sales to research! I highly recommended this to those who have family members, friends or colleagues suffering from this disease! I received a copy of this book from Net Galley, but this did not affect my rating. I have provided an unbiased and honest review.
This is such a wonderful book. It explains MS in way that children will also be able to read and understand. It was very informative. I learnt quite a few things. The artwork is wonderful and enhances the reading experience.
Highly recommended to those who have friends and family suffering from this disease. The author is also donating a percentage of the booksales to research.
Thank you Netgalley and the publisher for providing me with the opportunity to read and review this book.
When I was diagnosed with Multiple Sclerosis (MS) 20 years ago, the one thing I wanted was for someone to explain this disease to me like I was a human and not a scientist writing a thesis paper for my PhD. Such a book did not exist. Even the resources at the National MS Society couldn't simply explain what this disease is, how it operates, what symptoms you may have and how to deal with being diagnosed. I wish The Electrifying Story of Multiple Sclerosis had been available 20 years ago. Vanita Oelschlager does an excellent job of breaking down the basics of this disease for anyone, no matter what your age, to be able to understand. Being diagnosed with MS is electrifying and terrifying enough, being able to understand what it all means shouldn't be. The author has stepped in and provided a phenomenal resource where even the doctors have failed to explain. In addition It Like To Live With MS" was especially interesting, This section is a great tool to help one understand some of the most common symptoms a MS patient suffers from. Twenty years ago as a college student, getting diagnosed with a disease I had never heard of before - this book would have been immensely helpful in my journey and understanding. I also want to applaud the author for donating a portion of the proceeds from this book to help with MS research. This book will be one I give future people who get diagnosed.
Thank you to Vanita Oelschlager and Vanita Books for providing me with a copy of this book in exchange for an honest review.
I received an eARC from VanitaBooks on NetGalley in exchange for an honest review:
"The Electrifying Story of Multiple Sclerosis" is a must read for anyone who has a family member or a friend who has been diagnosed with MS. It's a quick and simple read that helps the reader understand what MS is, and what it's like to live with it. The writing is easy to understand, and I can honestly say that I've learned a lot from reading this.
Thank you to NetGalley and the publisher for this ARC. A great informative book for those with no real knowledge of what MS is and how it affects people. It provides the basics and you don't have to have MD behind your name to understand. I recommend it if you have been diagnosed with MS or know someone who has been, it's a great starting point for more complex information.
"The Electrifying Story of Multiple Sclerosis" by Vanita Oelschlager is a good book for people to read if they have a family member or friend with Multiple Sclerosis . The book is easy to understand and is informative.
I have had Multiple Sclerosis for 12 years now and there are still friends/people that do not understand what's it like to live with something intangible, cant be seen, felt, or touched. Constantly I am told but you don’t look sick...
Because Multiple Sclerosis is a disease that someone will live with for years, or even decades, it is important for family and friends to understand what the person is going through and learn how to give support.
Multiple Sclerosis used to be feared because it was so unpredictable and doctors knew very little in how to treat it. Thanks to good research and great doctors, people can live with MS even though there is not a cure yet. The Electrifying Story of Multiple Sclerosis is written to help people understand what it feels like to have the disease and how to help.
This I requested and received an Advanced Readers copy from the publisher and Netgalley. All thoughts and opinions are my own
This book is absolutely brilliant - from the image on the front I assumed it would be targeted at kids, but actually this is a useful read for people of all ages. Whether you know someone suffering with MS or not, it allows a great insight into the illness. The book is short and concise, therefore good for keeping the attention of younger minds. It's brightly-coloured and really well illustrated, making it a pleasure to read. Additionally, the language is not too complicated, with short paragraphs, and includes a glossary, which is really helpful. I could not recommend this book more! I had a brief understanding of MS before reading this but have found it really helpful, and will recommend it to others to whom it may apply.
The Netgalley page for this lists it as Nonfiction (Adult) so I was thinking it was going to be an intense read. But it's easy to follow along that a younger person could benefit from it. It has simple illustrations almost cutesy with some.
Easy to follow and learn from. Even goes into detail on how to try to see how someone with MS deals with everyday chronic issues.
Recommend? Yes, great for people who have someone in their life with this. Or, just for something to learn about in general. It doesn't go into great detail but it's good information.
I received an eARC of this from the publisher on NetGalley in exchange for my honest review.
I have a personal fascination with neurological disorders so when I saw this as an available ARC, I had to request it. I love that this is an educational picture book. It read like a fun infographic. It was only 20 pages on my kindle but it was full of amazing information that could be so beneficial to someone who does not know much about the disease!
i really liked this book. having known someone with the disease, it was interesting to learn more technical stuff about it. i learned alot. i would definitely use this book to explain MS to my children. thank you for writing this book!
I must start by saying that not all pages showed for me, some partly, some not at all.
Well done, informative, easy to read, everyone can understand. You don't need to be a doctor or in the field to get what is said. And even better with the photos.
What I felt was lacking... unless it was in the parts that didn't show in the pdf file I received was the family. You talk about how the family can help the person, but you don't mention what it does to the family... Let me explain... My mother was diagnosed with MS 2 years ago, at 58, but I believe she's had it for a decade since she started complaining about her vision, weird tingling feelings in her fingers, loss of balance... doctors never did a thing until 2 years ago when she finally got an MRI, pet scan, lumbar punction or puncture or tab (? sorry english isn't my language) then they saw the white spots in the brain...
She can walk fine, let's say 95% fine, her memory loss is horrible, mostly short term, so I get it when you say it's a desease people don't see, unless you can't walk or need a cane or a wheelchair... that I understand. But the big problem is her mood and she doesn't notice it. So I think this well done book should have a part about how the person acts and destroys the family. Not just think that it's our job to take care of the person and just deal with it. She's so mean you wouldn't believe it. I do everything for her and she's moody and yells at me (her 35 y/o daughter) and acts like a child slaming doors and crying with no tears... tells me I do it all wrong, I clean, cook for her but it's either too salty or not enough or this or that... She does nothing but sit in front of the tv all day! And that's not because of the MS trust me! And makes it all worse by going to bed at 4 am (or 4.30) and drinking... not the MS either!!! And smoking of course. So all that to make her memory work better... she won't listen to us...
You should mention the stress on the family. She really destroys us! Now I am aware that maybe it's not the MS or not just that, maybe borderline or bipolar, never diagnosed, I don't know. Our neurologist never said it was or wasn't the MS making her act, behave, such an awful way with us so I really don't know.
But when I say it's bad I mean BAD! Like she wishes us gone and we tell her the same, but with her memory loss she then doesn't remember what she told us or what we said. She acts crazy and mean then it's forgotten and she's calmer. It's "easy" for her, but us we don't forget. So much stress from the moment I wake up, not knowing what mood she's going to be in, how she will bring me down again and again and treat me badly...
And her inability to make ANY decision, that I can believe is the desease. She will stay in front of her wardrobe for an hour to decide what underwear (yes you heard me) to wear... and again will get upset and throw stuff around and violently shut doors... she will ask me ten times a day if I've seen a tv show to know if it's good and she should watch it, that I don't mind I don't point it out that she's already asked I just answer again but my father does point it out and it makes it worse, I don't believe you should tell the person "you've already asked this yesterday or earlier today..." She acts slow in everything she does (aggravated by her alcohol use/abuse, lack of sleep... no more than 4 or 5 hours a night), but she doesn't need help getting dressed or anything, her case is mild, but really slow even to eat, like you can see her brain trying to tell her to get the fork with food in there...
Trust me when I say that it's not only the person suffering, I bet us the family suffer more than she does. And I mean no direspect to anyone, I believe every family and every situation is different.
Her MS is so "light" so far she's not on meds or anything, the doc said it would do more harm than good, she goes to the physical therapist once a week for 30 minutes to do some gym, YES that's her only treatment (30 mins of gym), and she hasn't gotten worse in 2 years! So I can't even imagine how she'd behave if she was 'worse'.
We have a good neurologist, from the start she explained it so we could understand and what I got from it was there is a line between 2 dots in the brain and when those lines are broken the info can't go from point A to point B...
She goes to the neurologist (with me) every 4 months, has a full scan or pet scan or MRI once a year...
Again, no direspect for anyone and I hope it didn't come accross as me being a bad daughter or anything, I do EVERYTHING for her and I don't even care I never get a "thank you" but she never says anything positive to me or show any affection and it really is like I don't have a mother anymore. It is that bad, yet her MS is "mild". Situation is bad to the point that in the house we all stay as far from her as possible to avoid her, avoid conflicts... so bad I barely eat (90 lbs) or sleep do treat myself badly (SI) and am so nervous, anxious, tense... 24/7 the only time I can breathe is when she's not around, meaning on vacation, I don't go with them, god no!
One person told me there should be support groups for family members... maybe it's not just me then. I do everything for the woman and just wished I felt some kind of affection, like I have a mom and not just a thing to take care of!!!
Thank you to NetGalley for the opportinuty to read this book for an honest review.
Children's book about Multiple Sclerosis. Gives a good explanation about how the disease affects the body and what the treatments are and how to help a person who has MS. Well written and illustrated.
A short but well-put-together little book that gives you all the basic information about the disease itself and about the experience of having it. I recommend it to everyone, but especially to those who have a family member or a friend that's suffering from MS.
My free review copy was provided by NetGalley in exchange for an honest review.
I received a free copy of the book from Vanita Books via Netgalley in exchange for my honest review. Make sure to read more reviews at Katherine's Book Reviews.
The Electrifying Story of Multiple Sclerosis is an informational book by Vanita Oelschlager that focuses on multiple sclerosis. Although The Electrifying Story of Multiple Sclerosis is a very short book, it still carries a lot of valuable information about the painful disease. Wonderfully, it manages to cover an array of topics in a short amount of time such as citing ways you can help those with MS. I personally do not know anyone who has MS but after reading this book I believe I am now able to understand the disease more, and sympathize more towards those who suffer symptoms everyday. Oelschlager’s writing is simple and straightforward which works really well given the subject matter; it is simple and I think young kids would be able to read it and understand what is going on. I found it interesting that Oelschlager managed to create a guide that can be enjoyed by a variety of ages, such as kids and even elders. My favorite part of this book is the illustrations. They are informational, well-drawn, inviting and colorful. Again, kids and even older adults alike will appreciate the illustrations because they give a visual insight into MS. These drawings are just another way to make the reader feel connected to the disease and I was thankful I was given lots of great material to learn from. Again, this book definitely made an impact on me. It helped me realize what MS is and how important it is to try and help to find a cure. I recommend this book to any person who has or knows someone who has MS, or even anyone who is just interested in learning in the disease itself. This book teaches you that although a MS diagnosis can be hard to digest, with the right coping techniques and support system you will be able to live a normal, day-to-day life.
*Got this book courtesy of NetGalley* It's a good little book to learn basics about what is MS. I'm not sure who is it aimed for, as at times it feels like the author is talking to a child. As I've said - it gives you basic information, but it's enough to start from. The book is a bit repetitive, but maybe that's the point - to make readers remember. I very much liked section, where the book suggests ways in which you can try feeling like a person with MS. Those ideas are good and they will make you feel like people with other neuromuscular diseases, believe me. Everything is great, but there's this: IT'S YOU ARE FFS!
I received a free copy of this book from NetGalley for an unbiased review.
First, I'd like to state that it's difficult for me to remain completely unbiased about this book, as I am a patient living with MS. I'd like to follow that, though, by saying I would love to buy several copies of this book to hand out to friends and family members, and one to keep in my purse at all times to show people who have questions I don't always know how to answer.
The illustrations are basic yet eye catching. The explanations themselves are simple enough for even a child to understand (mostly) yet would not feel dumbed down to an adult. There were even a few symptoms of MS I had never known could be related to MS, and I marked them down to further discuss with my neurologist at my next appointment.
The book even includes a list of things someone without MS can do to see what it feels like to live in the body of someone who has MS (which can be useful for spouses, or those who live in the same house as a patient with MS), and several ways to get involved with helping on a broader scale than just one patient.
This short book explains the basics of multiple sclerosis (MS) in an accessible way. It is appropriate for older children, although some of the science may be lost on younger ones. Its pictures and comparisons to help someone understand what MS feels like may help demystify the illness and make the experience of diagnosis less scary.
Growing up I had a friend whose father had MS and I know it was hard on her. I learned about the basics of the disease in my neuro-psychology class, but a lot of this was new information for me. I had no idea it affected children. The geography of the disease is also odd.
I found this informative and helpful. A few of the facts repeated themselves, but not overly. This could be a good resource for many families. Additionally, 10% of each book sale goes to the Oak Clinic for MS.
I received a copy through Net Galley in exchange for an honest review.
This is a picture book geared towards younger readers to inform them about Multiple Sclerosis. With that said, I feel like this book would be a good resource to pass around (almost like a pamphlet about the disease, but better) to anyone who is curious. As a middle school teacher, I would appreciate having this book in my classroom library so students to pick up and read through when they have a few spare minutes. It is informative and easy to read. Honestly, I just finished reading Ann Romney's book about her experience with MS where she describes her struggles with almost the same amount of detail in this children's book. In other words, this book may seem like it over-simplifies the disease, but there is actually very little known about it and I think it does a good job going over the main points.
I received an ebook copy of this book from NetGalley in exchange for an honest review.
As a daughter of an MS fighter for 35+ years, I found this book to be a wonderfully instructive part of understanding MS as the complicated disorder it is. Easy to read with wonderful illustrations, this text is a must have for those recently diagnosed and wondering what comes next as well as caregivers and family of those diagnosed with MS.
I received this book from NatGalley in exchange for an honest review!
This is a short but very informative book about Multiple Sclerosis. I learned a few new things about this disease and I think it's great for patients/ families as a first resource to get to know the disease.
The art work is stunning and helps to get a better understanding of the disease. I think this book is great for everyone, including children because the drawings support the given information and help you grasp the main ideas. It gives great background information about what the disease is, how it affects the patient and how common it is. It also provides information on cures and what you can do to support research and sufferers.
As someone who has MS the information in the book was not new to me. However, this book lays out a lot of things that most people wonder about regarding the disease. It is explained in very simple terms and should be helpful for both adults and children. I would imagine that this would be particularly helpful for younger people as it has a section in the back about how to put yourself in situations to 'simulate' what certain symptoms could feel like so that you have a better understanding of some of the challenges people with MS may experience. Though a medical article may be more effective for some people, they can be taxing and difficult to get through for many. This book is easy to read and understand, plus there are illustrations which should help with a younger audience.
This is a short read with illustration. I found it to be interesting specially the part where you could show what it's like to have MS, for those for don't understand it. A lot I already knew like who gets it and how etc etc. I myself was diagnosed in 2014 but I'm sure I've had it a lot longer. Going to this doctor and that doctor I was basically told I was psychotic so when I would fall or run into walls at work, I would just right myself and continue on. It was the fatigue that really was the kicker, finally I couldn't work anymore and now on disability. I recommend this book for anyone who has MS and for people who think they know everything about MS cause you don't.
Thank you Net Gallery for this short, insightful read. I enjoyed it. Well written.
A book that will explain what multiple sclerosis is. I did not know what this disease does to the body. It helped me to understand multiple sclerosis is. If you know someone who has it, you will understand what to do and what not to do. I recommend everyone reading this book even if you don't know anyone with this disease. It is an important subject that is for the most part not discussed.
Disclaimer: I received an arc of this book free from the author/publisher from Netgalley. I was not obliged to write a favorable review, or even any review at all. The opinions expressed are strictly my own.
This was definitely not what I expected, in an amazing way. I have dear friends that have MS and I wanted to learn more about the condition. I was honestly expecting a dry, medical-style book, that would have me looking up terms often to understand what was being said. If that's what you're looking for, then this is NOT the book for you. Brilliantly designed, written, and illustrated, this book explains MS in a way that someone with no medical background can understand. At the end you leave feeling like you've learned a lot, without even realizing you were doing so. Brilliant!
* I would like to thank NetGalley and the publisher for the opportunity to read and review this book. *
The Electrifying Story of Multiple Sclerosis is a children's book aimed at explaining what multiple sclerosis is and what effect it has on the lives of people who have it. The information is clear and accurate, although it is most relevant to children in the USA. There are a few pages of suggestions for kids to get a feeling of what things are like for MS sufferers, but some of these are pretty silly ideas. That apart, this is a very worthwhile book and will hopefully do well in raising funds for MS research.
4.5 stars! This is an accessible overview of MS both for those newly diagnosed and those living with someone with MS. As someone who has had this disease for 6.5 years at this point, I often struggle to explain my day to day symptoms to people who are unfamiliar with autoimmune diseases. I will be sharing this guide with my loved ones to help them better understand me. I very much appreciated the exercises shared for people without MS, so they can understand what our symptoms truly feel like and better emphasize.
A huge thank you to Netgalley and the publisher for providing me with a copy of this invaluable book for review!
I have MS for twenty years now and there are still people that do not understand what's it like to live with something can can not be seen, felt, touched or heard. Close family and friends always get a better understanding of what might be like living with this disease, but outsiders have a hard time. This book is a helpful guide for people surrounding patients. It should be a must read if you have to deal with this type of silent diseases. f you have it, read it and buy it for your loved ones. If not, have a look because its always good to know whats going on.
This is a short (40 pages) and simple, yet thorough and informative overview of multiple sclerosis. The colorful, sometimes humorous illustrations add charm and lighten the mood of the otherwise serious subject matter. As someone living with MS for the last two years, it has never been easy to get across to others what exactly MS is, and what living with it feels like. This book accomplishes that task perfectly.
This is a GREAT book to read even if you don't have or know someone with MS! It gives very great insight and advise, as someone who's best friend has MS, I know this struggle (not like SHE know her struggle though).. I try to read as much as possible to know as much as I can about this because I would also like to make her two teenage daughters aware of what's happening too. Great book, definitely worth the read! MS is more common than you think, it's good to know about these diseases.