Because this is a pre-publication review, I want to be thoughtful and thorough. This is a topic that is very close to my own life, and I was eager to hear the voices of others who have walked through similar situations.
Mauldin's book is clearly an outworking of both her own personal experiences (as a caregiver to a girlfriend with leukemia) and as an academic in the field of social studies (social work? social justice?) and disability studies. Unfortunately, I don't think those dual roles serve the book well. If Mauldin had written a memoir and focused on her own story, or if she hadn't personally walked through the subject she was studying and could separate her interviewee's lives from her own experience, the book--either iteration--would have been much stronger. As it is, it seems pretty clear that Mauldin is attempting to work through her own trauma and guilt, and she can only see other caregivers' stories through the lens of her own experience.
It's a book that is heavy on feelings and outrage and ivory tower academic identity politics, and is happy to ignore its own inconsistencies or any facts that don't fit the narrative that the author seems compelled to create as a way of coping with her own guilt.
Ultimately, I found myself disappointed. This was not the book I was hoping for--one that would say, "You in the trenches of caregiving and illness--I see you. You are not alone. Be encouraged, even in terrible hardship." Instead, it left a lingering despair and a bitter finger-pointing in its wake. It is understandable, and I do want to extend compassion to Mauldin, who (spoiler) can't seem to forgive herself for abandoning her girlfriend at the end of her life and leaving her alone to die. She is honest with the fact that she is still crushed under the guilt of that decision, so it makes sense that she is desperate to blame anyone else. But that desperation clearly impacts her ability as a researcher to take a step back and look at the broader picture with clarity and accuracy.
It is possible that there are those who are in the caregiving trenches who would find this book helpful--again, it's very heavy on feelings, and sometimes, it seems, Big Feelings are what readers want out of a book. But it's not one that I would recommend. I hope that Mauldin found some measure of comfort through the process of writing the book, and will be able to find true healing.
(And, a very small note that will hopefully be corrected in the final publication--in one section Mauldin mixed up the alias of one of her subjects, and he is referred to by two different names, which led to a very confusing couple minutes as I flipped back and forth trying to decide if there were two men or three in the relationship.)