“Stephen’s story is beautifully told through the eyes of his brother, Stuart. Steve was different, not less. You will love his story.” — Temple Grandin, Ph.D., Author & Advocate
Born premature in 1954 and diagnosed with intellectual and developmental disabilities, Steve Jones was never expected to live a “normal” life. Professionals urged his parents to institutionalize him, to forget, to move on. Instead, they chose love.
For the Love of The Story of a Boy Who Was Never Broken is a powerful sibling memoir that spans five decades of Steve’s life from the small-town prejudices of the 1950s, through public school desegregation for students with disabilities in the 1970s, to the quiet injustices and quiet joys of his adult years. It is a story of resilience, laughter, heartbreak, and radical belonging.
Through sharp honesty, satirical critique, and moments of deep tenderness, Dr. Stuart D. Jones shares the story of his brother’s courage and humanity in a world that too often refused to see it. Along the way, readers will
The absurdities and heartbreak of a system that failed people with disabilities The fierce love of a family that defied societal norms The triumphs and humor of a man who refused to be defined by labels A tragic ending that underscores the urgent need for justice and inclusion Perfect for readers of Riding the Bus with My Sister (Rachel Simon) and Life, Animated (Ron Suskind), For the Love of Stephen is both personal and universal—an unforgettable story that asks us to see differently, love fiercely, and never look away.
Stuart Jones breaks your heart with stories Stephen and his family experienced and puts it back together with the unwavering love of that same family and their community.
The way he tells Stephen’s stories, it’s like he’s telling them right to you, the reader. These stories emphasize the realities of differences, strengths, kindness, and inclusion. While this story is about Stephen, the author peppers in relevant and easily digestible research about IDD throughout the years.
This was such an enjoyable memoir and really opens the reader’s eyes and mind to a world that many may not be familiar with. Stephen’s parents didn’t back down and kept their love and motivation for their son forward facing and that shines throughout the book. When you read this book be prepared to laugh out loud, wipe away tears, and really sit and think about what you’re reading. Thank you, Stuart Jones, for sharing your brother’s story so honestly and beautifully.
I laughed, I cried, and laughed and cried some more. Steve's story is one of heartache, joy, perseverance, and resilience. it is an excellent lesson to never underestimate those with intellectual and developmental disabilities (or anyone for that matter).
I've had the pleasure to have recently joined the Jones family, and am sad that I never had the opportunity to meet Steve. It has always been clear how deeply he is loved. Thank you, Stuart, for sharing Steve's story with the world.
This book is both a tribute to a beautiful life that transcended disabilities to touch lives with love and grace, and of a family who loved him, fought for his place in society, advocated for dignity and acceptance for him, placed him before themselves, and mourned his death profoundly. Kudos to Stuart for undertaking the project of writing this book with deep emotion, and capable skill. I am grateful for this book and the lives it will touch.
“More Than a Memoir: Seeing, Loving, Including” ⭐️⭐️⭐️⭐️⭐️ 5 stars
This is a beautifully written, deeply human book and a clear 5-star read for me.
For the Love of Stephen is told in a voice that is unmistakably Stuart Jones: thoughtful, warm, quietly funny, and grounded in both scholarship and faith. His background as a PhD and former minister comes through in the way research, history, and reflection are woven into Stephen’s life story, yet never in a way that feels academic or inaccessible. Despite the depth of knowledge behind it, this memoir is remarkably easy to read, even for those without a background in neurological or developmental disabilities.
What resonated with me most was how fully Stephen (Steven) is presented as human. Not inspirational in a simplified or sanitized sense, but complex, emotional, funny, frustrated, loving, and deeply relational. I especially appreciated the author’s willingness to address the often-avoided truth that people with intellectual and developmental disabilities are sexual beings who long for connection, intimacy, and love. That honesty matters.
I’ll be honest: as an atheist, I was initially put off by the book’s strong Christian presence. However, as I continued reading, something meaningful shifted. Even when belief systems don’t align, the core message did. The book reminds us that science and systems can only take us so far, and that our most human instincts—love, care, advocacy, and responsibility for one another—are just as essential. That message deeply aligned with my own values.
Having grown up abroad in Europe and living with my own neurological disabilities, I found myself wishing for more international perspectives on intellectual disability. Countries such as the Netherlands, New Zealand, Canada, and parts of Europe are often recognized for stronger inclusion, public acceptance, and rights-based frameworks, which led me to wonder what the U.S. could learn from these models. One particularly powerful example is the Hidden Disabilities Sunflower Lanyard, used internationally as a voluntary way to signal non-visible disabilities and the need for understanding or support. It has become a lifeline for many when navigating public transportation, especially international air travel, offering tailored support through long lines, access to handicap lanes to reduce anxiety and overstimulation, and more compassionate interactions with staff from security to boarding.
From a more academic perspective—and speaking to my inner geek—I also wished for deeper historical context around IQ. Its roots in craniology and phrenology, the influence of Henry H. Goddard and early 20th-century classification systems, and the lasting harm those frameworks caused could have added further depth. I also would have appreciated clearer distinctions between Intellectual Disability and other neurological conditions, such as learning disabilities and motor disorders, which also fall under neurological disabilities in the DSM-5-TR. These critiques come from engagement, not disappointment; I wanted more because the book held my attention so completely.
At its heart, this is a love story. A sibling memoir that does not look away from injustice, does not shy away from discomfort, and refuses to reduce Stephen to a symbol. It asks readers to see people fully and to love them fiercely.
I tend to be better at reading words than writing them, but I will do my best, because this may be the most important book review I’ve ever written. When I told Stuart that I would read his memoir, I expected an inspirational and educational story that was well written. I did not, however, have even an inkling of the profound impact it would have on me.
It took me sixteen days to finish these 330 pages. As an avid reader, that is unheard of for me, but I found it necessary. I needed to prolong the reading in order to adequately process the words and feelings it evoked within me. I lost count of how many times I laughed, giggled, teared up, and full-on sobbed while reading this book.
I read memoirs semi-regularly, but am rarely impressed — this book, in simple terms, changed my brain chemistry. By that, I mean I will make a conscious effort to take notice of, digest, and alter my knee-jerk reactions to those who are different in any capacity. Additionally, I don’t think I will ever clean my car off during these countless Indiana winters without thinking of Stephen.
This memoir, better described as an impactful act of dedication, loyalty, and a desire to share a legacy, is, in fact, for the love of Stephen. Read it. Share it. Gift it. Discuss it. Not only for Stuart, or Stephen, but for yourself.
This memoir is a testament to unconditional love and acceptance. Dr. Jones skillfully reflects on the challenges his family faced raising an intellectually and developmentally disabled child in an era when little, if any, support services were available. Jones illustrates his parent’s dedication and commitment to provide the best for their son when many such children were relegated to the shadows. Dr. Jones’ authentically candid memoir takes you through a range of emotions from sadness and empathy to laughter and pride for his family as they challenged the status quo. Jones’ ability to touch his audience through his own admissions of occasional shame and embarrassment as a child growing up with an intellectually and developmentally disabled brother make his story approachable, heartwarming and inspiring. Readers will be left with a sense of optimism and a refreshing acknowledgement of the value of every individual. You will finish the book with hope and energy to continue the fight for dignity and equality. Uplifting and inspiring.
This is a heartfelt and powerful memoir told through the eyes of a devoted brother. Stephen’s life story challenges outdated views about disability and shows the strength of a family that chose love and inclusion at a time when society often pushed families to do the opposite. That foundation of unconditional love gives the story its emotional depth. The book is honest without being heavy, blending tender moments, hard truths, and even touches of humor. It highlights both the quiet struggles and meaningful joys of Stephen’s life, while gently reflecting on how far society still has to go in recognizing the dignity of people with disabilities. I recommend this book to readers who appreciate true stories, strong family bonds, and uplifting messages about acceptance, humanity, and belonging.
In this book, Stuart Jones share the remarkable story of his beloved brother, Stephen, a man who was loved and who made a difference to this world. Dr. Jones shares the way in which our culture has changed, and in some ways woefully hasn’t changed, to adapt and accept those who we perceive as “different” from us. In telling the story of his brother, he invites readers on the journey to understand how to be better advocates, more understanding listeners, and more committed learners. And along the way the reader falls in love with Stephen as well.
This book first came on my radar when I encountered the author in the comment section of a disability advocacy Facebook page. I am the mother of a disabled child and a non-disabled child and I found this book to be so touching. Stuart speaks of his brother with so much tenderness, love and respect. I can only hope that my son takes away the same lessons as Stuart from growing up with a disabled sibling. Thank you for sharing your brother with us through this memoir.
A lovely tribute to a brother that taught his family how to love and laugh but also how to fight for him when it mattered most. Dr. Jones captures his brother’s legacy as well as the historical background of the world of education and intellectual disabilities in an easy to read format with plenty of smiles and laughs along the way. Well done, Stuart.
For the love of Stephen is a beautiful, yet heartbreaking story that provides a much-needed shift in perspective. It allows us to see the human behind the diagnosis, label, or name that society gives them. This is a beautiful tribute to a boy who was never broken.
For the Love of Stephen is a worthy read that will appeal to a broad audience. From the vantage of the author’s age, experiences, formal education, and research, this memoir shares the story of his brother Steve who was born with intellectual disabilities in the 1950’s. We learn of Steve’s life, his family’s love and support, and his tragic death. By the end of the book, the reader will truly feel they knew Steve and share in the emotional highs and lows of his life. There are many insights that kept me engaged throughout the book. Here are some that stood out to me: • The lingering pain and impact from death of a family member decades ago. • The long-term support, trial & error, uncharted waters, and unrelenting determination of parents with a special needs child. • The genuine fear of who will take care of special needs adults when parents/family are no longer able to care for them. • The impact on siblings growing up with a special needs sibling. Something rarely discussed or understood. • The opportunity for the author to review his childhood through the distance and wisdom from being older. • The gift of the author’s parents, willing to discuss their most painful and joyful parts of their lives. Then generously allowing the author to put words to paper and share them with the world so openly. • The research and explanations throughout that provided helpful learning and may help readers want to learn more and find ways to be involved. • And most importantly Steve. From this book we learn what a loving person Steve was and although repeatedly mistreated he saw the world through a lens of love. What a lesson for us all.
A well-written and engaging memoir about Stephen Jones, the author’s brother. Stephen faced many challenges in his life - beginning with a premature birth and intellectual disability (IDD). The love and support of his family and well-meaning outsiders (teachers, bus drivers, coworkers, among others) provided him with the armor needed to face bullies, discrimination, and human vultures who preyed on Stephen’s kind nature.
Dr. Stuart Jones provides anecdotes, along with history and information, on how his brother was a trailblazer in a time when others like him were normally locked away in institutions. All children deserve a chance to grow, learn, be educated, and most of all thrive. Again … that is ALL children and regardless of ability. The fact that the protections offered to children with IDD today did not exist until recently, and that Stephen did not have these protections, speaks to the need to keep this conversation going.
This is a book that is so worth reading - recommended for parents or siblings (or any family members) of a child with an IDD diagnosis or of any child who may not fit society’s standards. As someone who did not grow up being around anyone like Stephen and had scant experience through the years, this book made me reflect on how I treated others - was I a helper when one was needed?