... Learning to Dance in the Rain: A Parent's Guide to Neuroblastoma Diagnosis, Treatment and Beyond

by Rachel A. Ormsby

When Nathan was first diagnosed with neuroblastoma in 2006, our family entered a world we knew nothing about. The world of childhood cancer is terrifying and complicated. We had a lot to learn and quickly. We had to learn about treatments, scans, blood draws, labs, medicines, and side effects, including how to handle them. We looked for help from other parents and Nathan’s medical staff. One thing that would have helped was a guide that we could have read and made notes in as we traveled this path. A guide to all those things other families have already learned. Something we could have carried around with us that would help us make sense of this new vocabulary and the things we needed to know. This book is for just that purpose. It is intended to help navigate some of the things you will find during your child’s treatment and recovery from cancer. It is not intended to be inclusive or to replace the doctors; it is intended to share experiences and knowledge, parent to parent. This book contains what my family has learned from the medical staffs we have worked with, other parents, and the kids we have been privileged to meet on our journey.

212 pages, Kindle Edition

First published January 1, 2013

Reviews

[Sabne Raznik · Rating 4 out of 5]

http://contributor.yahoo.com/user/649...

[April Schmaltz · Rating 5 out of 5]

This book is a great read for anyone going through the awful fight of neuroblastoma. It is very informative and helps you understand all the things you will it could go through during treatments