A fascinating look at what happens when the brain is injured and its amazing ability to rebuild itself after injury. The science of neuroplasticity is incredible but the stories of people relearning how to speak, move, connect and regain pieces of themselves are what make this book so powerful. Along with the way Orlando Swayne never loses sight of the person behind the diagnosis.
The key takeaway for me is that while recovery and outcomes can vary and the work can be gruelling, people should be given the opportunity to discover what recovery their brain is capable of before the system decides on their behalf that nothing more can be gained.
His broader criticism is that scientific understanding of neuroplasticity has moved much further than the clinical care most people actually receive. Access to rehabilitation remains patchy and declining in some places.
If you find yourself or a loved one in hospital with a brain injury, it’s important to know:
- we should not be accepting a lack of input after discharge from hospital
- ask what rehabilitation is available
- push for specialist neurorehabilitation and multidisciplinary therapy
- question decisions to reduce or stop therapy
- don’t assume that “this is as good as it gets” simply because somebody says the conventional recovery window has passed.
“The argument that proper rehabilitation for stroke and brain injury is a luxury that we cannot afford in straightened times doesn’t stand up to scrutiny. Early, intensive therapy saves long term care costs.”
“As a society if we can afford cars, TV streaming services, holidays and ever smarter computers, then we can provide the means for millions living with acquired brain injuries to achieve the best outcomes their conditions allow. To do otherwise makes neither moral nor economic sense.”
This book is educational, compassionate and also quietly infuriating. We know better outcomes are possible. We should be demanding the care that gives people the opportunity to reach them.