To Exist As I Am by Grace Spence Green arrived in my hands at the Wellcome Collection last week, as someone navigating my own chronic condition - and I looked at is as a kind of pre-emptive reckoning of what disability might mean for my life. What I really didn't expect was to finish with something much more expansive than reassurance.
Grace's advocacy for disabled people (in particular for me, those with invisible or fluctuating conditions), is both rigorous and deeply human. Her insistence that difference does not dimish worth helped me to dismantle the heirarchies that I and many around me continue to absorb without noticing. Upon reflection, I realised that I wasn't drawing comparisons but arriving at a new quality of attention to my own AS-ridden body and its limitations. I'm inching towards the radical act of accepting myself without apology!
Grace Spence Green you are fantastic and I am in awe of you.