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The Emotional Journey of the Alzheimer's Family
An empathic and clear-eyed discussion of the emotional journey of family and friends who care for people with progressive forms of dementia
232 pages, Paperback
First published March 22, 2015
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Displaying 1 - 4 of 4 reviews
August 1, 2015
I won this book from Goodreads.
My mother calls me Kathy. When I try to tell her that I am her daughter and that my name is NOT Kathy, she SCREAMS, "I didn't have any babies..."
This book is about caregivers, & people like me. The "family" are also friends and neighbors - anyone whose life touches the Alzheimer patient. Our experiences are bad, more bad and even worse! It is 24/7. We go through our own stages, such as denial, grief, and shame. This book thoroughly explains words and topics and descriptions we've never heard of, such as displacement, intellectionalization and minimization. How do we handle our anger, our guilt, our depression?
If you are a caregiver, or a back-up caregiver-relative, you'll find many, many descriptions of real people, & their everyday experiences physically and emotionally draining, and apparently never ending. As the book's cover says, it is a journey.
NOTE: This is NOT about the person who is ill. There is no silly oft repeated "advice" such as "get rid of throw rugs" and "buy soap-on-a-rope."
If I had to pick one fault: I disagree with the invented term "caregiver partner." (I may not BE alone, but it will ALWAYS feel that way.)
A VERY WORTHWHILE, EDUCATIONAL, HELPFUL BOOK.
My mother calls me Kathy. When I try to tell her that I am her daughter and that my name is NOT Kathy, she SCREAMS, "I didn't have any babies..."
This book is about caregivers, & people like me. The "family" are also friends and neighbors - anyone whose life touches the Alzheimer patient. Our experiences are bad, more bad and even worse! It is 24/7. We go through our own stages, such as denial, grief, and shame. This book thoroughly explains words and topics and descriptions we've never heard of, such as displacement, intellectionalization and minimization. How do we handle our anger, our guilt, our depression?
If you are a caregiver, or a back-up caregiver-relative, you'll find many, many descriptions of real people, & their everyday experiences physically and emotionally draining, and apparently never ending. As the book's cover says, it is a journey.
NOTE: This is NOT about the person who is ill. There is no silly oft repeated "advice" such as "get rid of throw rugs" and "buy soap-on-a-rope."
If I had to pick one fault: I disagree with the invented term "caregiver partner." (I may not BE alone, but it will ALWAYS feel that way.)
A VERY WORTHWHILE, EDUCATIONAL, HELPFUL BOOK.
July 18, 2015
I received this book as a first read. It's an interesting look at how families cope with Alzheimer's - the emotions they feel, the questions they ask, and their relationship to the ill family member. It provides several looks at different case studies to bring the issue to life. Fans of Oliver Sacks will find this book both an informative and interesting read.
May 7, 2016
what Paul is saying here is, HEY, you guys! What Jesus initiates, he perpetuates! Jesus is not only the one who gets you going, he is the one who keeps you going! How you began this life is how you live this life.
August 3, 2015
Very informative and eye opening- a must read for any caregiver of someone with dementia.
Displaying 1 - 4 of 4 reviews