Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage and perseverance.

by Katie Jackson, Vicki Owen, Pat Wolf

Living the unimaginable, twelve Huntington's disease patients and caregivers share true stories of struggle, devastation, and life-shattering events as they travel the journey that is HD. Along the way, you'll meet ordinary people who develop extraordinary strength, courage, and perseverance as they try to counterbalance the chaos of lives falling apart as HD shows up like an out-of-control wrecking ball. One woman struggles for years to find her biological family, then discovers more than she expected. Agonizing parents watch helplessly as their children endure years of pain, lose every bit of their quality of life, and die far too soon, some from the juvenile form of HD. Couples fall in love, marry, and start their families just in time for this horrific disease to step in and rip everything away, eventually taking their soulmates' lives and leaving them with the knowledge that their children, too, may face the same terrible fate. Witness the strength of these families as they rise to the challenge and advocate to be the last generation ever to live with the horrors of Huntington's disease, a genetic neurodegenerative disease that has often been called the worst disease known to mankind.

382 pages, Kindle Edition

First published July 27, 2015

Reviews

[Nora · Rating 3 out of 5]

The book is a great concept -- sharing stories of several families who have dealt with Huntington's disease. I read about half a dozen of these chapters. Since I was looking to learn more about HD, this approach to the topic wasn't as helpful as I'd hoped. In particular, I was hoping to learn more about late-onset HD.... and many of these stories focused on much younger people.

[Carol Stark · Rating 4 out of 5]

Non professional writers for the most part give a short story of their involvement with HD, twelve in all. Hard to read because of the sadness of the disease. But worth the read for a couple personal applications. Let’s hope for the good research to end HD.