We aim to replace static diabetes management with a dynamic in the moment method.
An excerpt from Chapter 4 – A Force For Change
“… In the grand scheme of diabetes self-management, I explain to patients and families that I (the doctor) don’t “manage” anyone’s diabetes. My role is more like that of a coach, occasional cheerleader, mentor, and at times role model I suppose. It truly is the sum of your choices; not mine or your doctor’s. Simply receiving diabetes education is often not enough. I see a three step process at work, and often times we barely get past the frst step. What we call “diabetes education” is intended to result in understanding on the part of the person(s) receiving it. But that is not the fnal element. Understanding should translate into behavior or actions for the education “loop” to be intact. There are many highly intelligent and understanding individuals in the criminal justice system who are well educated and understand all too well their actions, even the illegal ones.
So what does all this have to do with using a CGM? In my opinion, it means all the difference in the world. It morphs a CGM device from a simple high or low blood alarm system (not a bad thing by itself) into the key for unlocking a vast new universe of diabetes self-realization that could once only be dreamed about.
Basic diabetes self-care can be drawn as a decision loop. This loop is actually being executed daily by most persons with diabetes albeit often in a mindless fashion. Turning this chore into a more mindful action loop transforms this into an incredible tool for attaining the best blood sugar control possible for you.
Like any loop, Sugar Surfing has no beginning or end. I tend to jump in at the point I call “monitoring”. This embodies many inputs both measurable and subjective. Most of us think of the act of measuring a blood sugar level with a meter or CGM device. But it’s more than that. It’s also being “in the moment”. That means being aware of recent, current and impending actions that are known to affect the ebb and fow of blood sugar levels in the body.
Since blood sugar levels can be unpredictable, staying “in the moment” is a about the only approach that works for anticipating, or at least quickly reacting to unexpected shifts in BG.
Once the status of the system (your body) has been sized up, either through the act of measuring a glucose level or glancing at the screen of your CGM device (or both), the next step is to analyze what is going on. This involves pulling in memories of recent actions (last insulin dose, most recent bout of exercise, what and how much was eaten (or will be soon) and more. The analysis step is where all of the little inputs come together for a final determination which is the next step: decision- making.
Deciding is prioritizing one or more actions based on all the possible actions. The one that seems to be the best option is placed at the top of the list to be acted upon. Back up options are most likely numerous, but an initial action is required.
The fnal part of our loop is execution: the act of following through on our decision. Immediately afterwards we are moving back into monitoring to determine the effect of our action and then modifying it as needed.
You are probably saying “I already do this” and you would be right. But as has been written about by many authors, many of our decisions are mindless as opposed to mindful. This loop is a skill as much as it is a process. And as such, skills are practicable and can improve over time, or grow rusty with disuse.
Before you start reading this review, you may want to sit down and make yourself comfortable. I have a lot to say, most of it complimentary.
Let's start with my background. As of this review, my daughter has been a type 1 diabetic for 9 years (she's 11) and my son has been a T1D for 2 years (he's 13.) It would be fair to say that I spend a decent chunk of time as a pancreas. Well, pancreata, actually, if one can be plural. Anyhow, I have spent years learning about diabetes. We've done MDI and pumps, been through surgeries, illnesses and the diagnosis of additional auto immunes. I make all changes, evaluate all Dexcom reading, manage foods, oversee carb counting, change sites, wake up sleeping kids to feed them, stay up late to watch a temp basal kick in and then spend my free time researching ways to do it even better.
I first heard of Dr. Ponder on Facebook. I became a follower because I liked his tips/posts. At some point, I realized he was writing a book about his approach to diabetes and when he started to raise funding, I contributed. Going in, I expected to like the book. But, please note that I was not GIVEN this book - there is no giveaway and this isn't a review based on a freebie. I paid my money and I'm very happy to have done so.
So on to the book. Basically, I loved it. In 9 years, I have tried many, many things. People that don't live with T1D have no idea how hard diabetes is. It's 24/7/365 and there are no days off. Ever. There is no afternoon off. Most parents of T1Ds are just happy when the stars align and they are able to sleep through an entire night without an alarm. We don't have the disease but we have to have the knowledge because we feel this pressure to make sure our kids are given every opportunity to have healthy, complication-free adult lives without being constantly in their faces about diabetes.
I remember when my daughter was diagnosed and I found carb factors in my research...and then had to explain it to the CNP at the next four endo visits. And implementing the TAG idea in meal planning so that fats and proteins were covered appropriately...and then explain it to the CNP. As you can imagine, I decided to do my own thing fairly early on and the habit has stuck. I see the endo as a prescription source and like to figure out things on my own.
And then along came this book! And I realized that I wasn't alone. That there is an endo out there (who is a multi-decade T1D himself) that gets this. That experiments and tests and keeps an open mind. That takes his results, figures out WHY they happened and then figures out how to repeat it. And then SHARES it with the world.
I'm going to touch on a few topics that might help reviewers determine if this is a book for them.
First, basal rates. Dr. Ponder is a bit pushy about the idea of a single basal rate, or at least a small number of them. It's not a rule but it's something he appears to value. I have varied basals greatly over the years but I've never used a single basal rate. Perhaps it's because we did split dosing on long-acting insulins and I timed the overlap to cover dawn effects and bedtime growth hormones...so we never really had "one flat line" even on MDI. But I have learned over time that I gradually add basal rates until I become overwhelmed by them, at which point I scrap them all and start minimal again. With both kids in puberty and a son that is that teenage stage where kids 'forget' to bolus, one rate isn't right for them...but I have really given some thought to it. My son has three different levels - lower at night, really high in the morning, and high all day - and it's working well, so point to Dr. Ponder. My daughter's basal rates have been incredibly detailed before so while it's not three, I have reduced them by 3. Again, it's working well and it's easier to remember, so another point to Dr. Ponder.
Second, I needed a good reminder that a flat line means a basal rate is right, and that it means the other details need changed. I had been struggling with nights and had been changing them so often...and it was completely the wrong approach. I changed my mindset and the results have been wonderful.He slept 12 hours last night and was between 75 and 100 the entire time with no eating, no temping, no bolusing. Thank you, Dr. Ponder.
Third, pivot points. He talks about the idea of using micro-boluses and small amounts of carbs to turn the line, and to do it before a high gets high and a low gets low. It's an idea I first introduced to the kids when my daughter tried a low carb lifestyle a few years ago and it was fabulous. For whatever reason, the pivot point made it much clearer to my daughter and she selected 100 as her cut off, with 70 as low and 140 as high...but she doses by 130 and eats or temps by 80 so she's been able to head off more highs and lows. My son has zero interest in that level of self-management so it's not a point against Dr. Ponder - just that I only have one kid that utilizes that idea.
Fourth, hollow highs. It's something my kids don't grasp yet - the idea that some highs aren't 'real' highs and need to be left alone to drop. Giving it a name has helped get the idea across, however. And, with my son at basketball camp every evening, we've had some great examples (adrenaline highs that drop within an hour of the end of a game). Dr. Ponder's approach to handling these hollow highs has been spot on for us.
Lastly, the images in the book are incredibly helpful. Actual, real results with explanations, labels, arrows...they add so much to the book.
Now, the few negatives. The book layout is confusing. It reads like chunks of data that have been organized into larger chunks and then combined into chapters. It lacks flow, basically. I realize that it's a quasi-manual but it's just a little too choppy. And I'm not a fan of the surfing analogies. His idea, his book so his terms stay but there were so many sections and examples and phrases that were forced into a ocean theme and it made it feel a little gimmicky. The section where ketones are "sharks in the water" did me in. I had to stop reading for awhile. Which is a shame because the ketone section was fabulous. No negatives outweigh the awesomeness of the book, though, so it's a five star book for me.
I just got my first pump and continuous glucose monitor (CGM) after 30 years on multiple daily injections (MDI) and someone recommended this book to me, so I read it. It’s excellent, but mostly I say that because it agrees with the method I figured out for myself entirely on my own for the last 20 years. My method has long been to test often and treat accordingly. I’ve long micro-bolused, long stacked insulin for high carb/fat meals, long been able to feel very small blood sugar changes and tested repeatedly to watch trends. I’ve long believed that carb counting is not effective, and that insulin needs are not based strictly on carb counts. I’ve long learned to dose for foods I enjoy eating by experimenting and figuring it out for next time. I can eat an Impossible Whopper from Burger King without going high if I want!
So I took to this pump/CGM lifestyle very well. I definitely glance at the CGM 25 times per day or more, like this author does as well. So, I’m happy to have my methods echoed back to me, which makes me feel good about myself. And there are a few new things I got from this book. One is the idea of having a phantom high sugar. I forget what he calls it. I believe that having treated phantom highs have caused many lows in my life. I never realized it until this book explained it.
As a type 1 diabetic of 30+ years, I recommend this book to other people with type 1 diabetes & their caretakers. It is smart. It’s really the way to manage diabetes. If you understand The lessons in this book, you can eat the food you want to eat. I did this without a pump or CGM for years and kept an a1c of 5.5, though likely with too frequent of low. Now I have a pump & CGM and barely ever go low and if I do it’s like 68 for a couple minutes, since the CGM alerts me I’m dropping before that, so it never has the chance to sit low. But it also rarely goes above 120, though it may go as high as 180 sometimes. So I suspect that my a1c will be just as low of not lower now that I have the pump & CGM, even without the lows. And I don’t eat low carb and never will.
It's good to know we are not crazy since 90% of our toddler's diabetes management is pretty much according to this book before I even read it. It is already a bit outdated, especially on the tech front, but principles are still very sound. Picked up a couple useful points and re-iterated others for my own peace of mind. Would definitely recommend to anyone with T1D.
I hate to give this book a low rating, simply because there aren't enough books out there that are candid and realistic about Type 1 care. And also there aren't a lot of Drs out there that are so realistic and helpful. I also hate to give a self published book a low rating, but honestly it could use a good over haul from an actual editor. There was simply too much in this book. It could have been cut down probably by half. There was a lot repeated and he tended to talk around and around, writing 10 sentences that could have been condensed and more direct with one sentence. That's not to say I didn't learn anything from the book. I have been a Type 1 for 33 years and have had a pump for 17, and a CGM for about 5. I really did like the concept of micro-blousing, micro-carbing and even "pivoting". It also inspired me to actually put on my alarms and narrow in on a good blood sugar. But honestly, the concepts in this book, if you have been a Type 1 for any amount of time and have a pump, and are interested in taking care of your disease, you probably have figured a lot of this out.
Sugar Surfing is a book written by Dr. Stephen Ponder and Kevin McMahon about type 1 diabetes. Dr. Ponder was diagnosed with type 1 diabetes in 1966. He is now pediatric endocrinologist, which gives care for children with diabetes and other endocrine system related issues. McMahon is co-author of this book and has a child with type 1 diabetes. This book gives detailed information about how to better manage diabetes. When Dr. Ponder was diagnosed, there weren’t many resources and accessories to help manage blood sugar. I believe what motivated these writers write this book is the journey they went through. In 1966, life expectancy was very short with diabetes, accessing insulin wasn’t easy, they had to manually check their blood sugar, in general, awareness of diabetes wasn’t much.
The target audiences are primarily people with type 1 diabetes however, this book is helpful for people following low carb diet, anyone that is using insulin pump or not, those who use a syringe to deliver insulin, families and friends of a diabetic patients, for diabetes educators and anyone that is interested in learning about type 1 diabetes. Dr. Ponder however suggests that the use of Continuous Glucose Monitor (CGM) in order to be able to make a quick decision and prevent highs and lows. CGM is a tool that diabetic person sticks on their body and can see their blood sugar number continuously. Diabetes affects the whole family, not just one person. when a person is diagnosed with type 1 diabetes, the whole family gets involved in the person's diabetes journey. When my child was diagnosed with type 1 diabetes, she was in the hospital for twelve days. Since I stayed with her, my husband had to take care of our son and the house. Even after coming home, we take turn to check on her each night. We didn’t know much about diabetes until her diagnosis, so it was and still is a learning process. We must communicate about her all-day activity and meal plan and the amount of insulin she needs without neglecting the other child. Diabetes is a journey and the patients need their loved once love and support. Therefore, it is helpful if everyone around the person gets educated about the sugar surfing.
The main goal of the work is help people and make them the best sugar surfer. In this book, Diabetes is considered as the wave and the surfers (diabetic patients) get on a surfboard (the CGM). Dr. Ponder shows in his book the comparison of a real-life surfing to a diabetic sugar surfing. The wave helps move the surfboard to go up and down. The surfer has to stay balanced on the board to enjoy the ride. The same is true for a diabetic person, their blood sugar has to stay in a certain range in order to have the best A1C. A1C is a test done every three months and it measures what percentage of their hemoglobin (a protein in red blood cells that carries oxygen) is coated with sugar. The higher the A1C level, the poorer the blood sugar control and the higher the risk of diabetes complications. Just like in real life surfing, if they don’t keep their balance and stay at a certain pace, they could possibly fall off the surfboard and drown. Therefore, it is important to become a good sugar surfer and be able to manage diabetes in order to avoid complications. Some of the main points made by Dr. Pandora are 1. Knowing basic sugar surfing skills well and to use them all the time. This means, keeping the CGM properly calibrated, making sure the basal (background) insulin is doing its job, and learning how much insulin to give at each mealtime. 2. Developing the habit of frequent CGM display glances. It is important to keep an eye on the sensor (a little phone like machine that shows blood sugar reading every five minutes 24 hours). Viewing and managing blood glucose data is one the secrets of an ultimate success as a surfer. Knowing the blood sugar gives control over the diabetes. 3. Setting personal points (range where the blood sugar has to be). This is different for every individual and it is also different for different age groups. Children have a wide range and as they get older the range gets smaller. The better the range, the lesser A1C. For new surfers, it is easier to have a wide range (80 to 350) and manage it in that range. As they develop the surfing skill however, it is important to bring down the range (80 to 150). 4. Putting pieces together. Once a week, it is important to go back to look at the trend of the CGM and make changes accordingly. If there are too many highs, adjust the insulin pump to give more at those times to bring down the lows. Or if there are too many lows, adjust the pump to give less at those times to avoid those lows. Dr. Ponder says that “experienced surfers always study the waves before paddling out on the water to attack them.” page 51. 5. Repeat the steps and keep doing it. Surfing is learning how to manage the lows and highs with the help of CGM. 6. As the surfing abilities progress, it is important to lower targets for a better A1C.
I believe Dr. Ponder and McMahan have effectively accomplished their goal. They have shared their personal experience and explained about diabetes in detail. They have tried to compare diabetes experience to a real-life surfing experience in a way that everyone can understand. I recommend that diabetes patients, families of diabetes patients, friends, healthcare providers, doctors, and anyone that is interested in learning about diabetes should read Sugar Surfing. There is on specific time to read this book, the sooner it is read, the better management of the blood sugar. My co-worker with type 1 diabetes suggested that I read this book so I can learn more about managing diabetes. However, when I read the book, not only that I learned to better manage, I also learned we are not the only ones that struggle with the situation. Therefore, this book is for anyone who is interested in better managing or helping a loved one to better manage their diabetes.
This is a great resource for diabetics who want to maximize the use of their CGM to achieve tight control of their blood sugars. When I first heard about the CGM, I imagined that it would lesson the need for multiple finger sticks each day and help me manage my blood sugars minute by minute. But, when I was initially trained to use the CGM, it wasn't for much more than as a back up to the usual multiple finger stick routine. There is soooo much more and, using the strategies outlined in Dr. Ponder's book, I'm now getting the support I need to achieve the tight control that I imagined I would get from my CGM.
First of all, kudos to anyone spending their life figuring out the complexities of Type One and the fact that this book is crowdfunded is impressive (also, best title!). That said, this book is outdated (because let’s face it: medical advances are outpacing publishing which is a happy problem) and the book could really use some editing. So five stars for the great stuff (wonderful, clear chapter explaining ketones medically; phenomenal definition section in the appendix, etc). Skip the first 67 pages or so because it’s basically a very verbose introduction with a lot of vague phrases that aren’t explained and it comes across as a bit condescending and arrogant since it keeps repeating over and over that this is a revolutionary method that the reader has never heard of and we’ve (the reader) have all learned to handle type one an old-fashioned, outdated way and he’s going to explain the right way to handle it. The author is an amazing doctor and probably did revolutionize endocrinology but an editor needs to fix the text so it reads clearly and concisely with a more humble truth without alienating the reader. The reality is that most type ones are taught at least a variation of this method from the start (my daughter’s Endo even recommended this book) and a lot of the method is actually intuitive: as soon as my daughter had a CGM, we immediately began giving her a half unit of insulin as soon as she reached the glucose number where a .5 correction would be the proper correction factor (we were MDI at the time) which is what Ponder would term as “pivoting” and using a “micro-bolus.” When my daughter was at school, whenever she went under 100 with a downward trend (although we considered low as 70), she would eat one 4carb glucose tab or half of one to bump her BG up so she didn’t have to watch over it during school (what Ponder terms as “nudging “ and “microcarbing.”). I hadn’t read the book yet. Our Endo didn’t encourage us to do so. It just made intuitive sense. Also, the book is outdated because it devotes a lot of time to calibrating meters/sensors and double checking CGM with a blood meter pretty much always. It also never mentions (understandably since it was published a few years ago) how to handle his methods with Control IQ (which basically does a lot of what he’s touting automatically within the insulin pump’s algorithms). The book was evidently revolutionary at the time but simply needs to be updated (and please take out some of the forced surfing terms). I’m glad I read it, though, because I enjoyed the refresher on ketones and the way insulin works within the body…and it even explained in beautiful detail why my daughter’s face was so flushed constantly for the month before diagnosis (one of her only symptoms) which even the specialists at our hospital said was unrelated to her diagnosis. I had previously read an explanation of it in another T1D book post-diagnosis but this one was more in depth about it. Isn’t it a beautiful thing that pumps now take out partial basal doses on their own, etc? The fact that we have advanced beyond some of this book’s instruction is simply delightful.
This challenges the way diabetes (insulin dependent) is managed. Putting the responsibility back into the patient (instead of the doctor). Empowerment not paternalistic one-size-fits-all prescription.
The result? The “power” to deal with hypos and hypers with “advanced” techniques like insulin stacking. Goes beyond what DAPHNE teaches, in fact, this extends and builds on that.
Then suddenly, HbA1c is no longer an adequate measure of sugar control. Making the standard deviations over an increasingly normal average sugar level.
“Would you bolus when faced with a sugar level of 6.9mmol/L?”
The author has the credentials and the experience and shared his experience. Much of this is simple to understand and may take some time to master.
Sugar surfing is possible with a meter and MDI. But a rtCGM or at last a flash CGM (not the blind CGM) is highly recommended. Using a pump reduces the number of injections and allows for some fancy programming, using MDI (even the regular, non-analogue, insulins can lead to amazing results.
I bought the ebook. Will probably order a hard copy also.
PS: with power comes great responsibility... there is a learning curve (how steep depends on how involved one previously are with regards to managing diabetes) and a fiduciary component to this— sourcing of funds to support the sensors and use of technology can in itself be hugely daunting.
This entire review has been hidden because of spoilers.
There are some great ideas in it for evening out your blood sugars and graph on your CGM. I am currently trying the "wait for the bend" before I eat my breakfast but it is now 45 minutes since I took my breakfast bolus, my toast has gone cold and my graph is stubbornly straight!!
On this point, who has time to wait and respond like this? The author seems to be a bit OCD when it comes to his bg control. Every tiny movement of his graph is monitored and acted upon. Even a slight rise from 5.6mmol/l to 6.8mmol/l is given a correction bolus. And yet he doesn't seem to be that bothered about getting the carb counting overly accurate in the first place. Who is awake at 4am responding to a tiny rise and fall in their blood sugars? And then stays awake to see what the response is. Does he ever sleep??
I will be using some of the techniques but I'm not going to be soooooo obsessed.
This book is not for beginners. It is for people who know their body and the way it functions, people who are at a level where they can safely experiment. This book has given a name to most of my actions, giving a reassurance that what I've been doing is correct. The book aims at maintaining perfect sugar levels, probably better than those of a non-diabetic, by using data and analysing it. Also, it seems achievable because the author himself has been following these methods, and has refered to his own graphs for examples. It gives strategies which can be used in daily life. However, the author does speak a lot about the cgm. It is a must read if you're using a cgm. It gives information about ketones and how blood sugar gets affected by the smallest of things. Overall, the information given in the book is extremely useful but the author could've articulated better so as to avoid repetitions.
I have 2 kids with type 1 diabetes. Yeah, it’s fun. Our daughter is also disabled so we completely manage her diabetes for her. With CGM use becoming more common, the premise behind Sugar Surfing is very helpful. We manage her diabetes a lot differently than we used to before CGM. There are a lot of great hints and suggestions for those with type 1 or have a loved one with it. The writing style was a bit not to my liking and I found myself skimming in areas where it felt like there was a lot of repetition or just too many examples. That being said, it is a very helpful book.
I consider this a must read for any diabetic who uses a continuous glucose monitor. The principles can be used without a CGM but if you do have a CGM this book can help you use it to its maximum potential.
I’ve read it cover to cover several times and still refer to it at least once or twice a year.
I have a pretty extensive collection of books regarding Diabetes and this is in my top three list.
Dr Ponder has been an amazing source of support since our daughter's diagnosis in 2014. As a leading pediatric endocrinologist and fellow T1D, we have been blessed to have Dr Ponder as her primary physician. This book summarizes his revolutionary perspective as it relates to proactive diabetes care. I highly recommend!
Loved the subject/concept. Totally worth reading to get the knowledge and technic. Started applying and results are great. Really enjoyed the surfing references, but I have to mention that it needs a serious editing job; way to many repeats and going in circles.
Every insulin dependent diabetic or family member of a diabetic should have a copy of this book. Learned so much. Full of examples of situations that we’ve all had as a type 1. Why not learn how to decrease your chances of complications and live a healthy life like those that don’t have diabetes
The concepts in the book are great, the tone and repetition and “salesy” voice drove me a bit crazy. That being said if you or someone you love are learning to live with T1D, applying the ideas found in the pages have been very helpful.
This book has so much information. I wish I knew all this when a was diagnosed. Since reading this book my numbers have improved dramatically!! It’s a must have.
I think it could have been more succinct but there were *so* many helpful tips and strategies within this book. A huge help to a parent with a T1D child. I'm really glad this book exists.
I've been using a CGM (Dexcom) for almost 2 years now and had figured out a lot of this on my own--but I am going to be more diligent about micro-bolusing and micro-carbing when possible, and hunt up the control solution for my meter. :) I also look forward to experimenting with "waiting for the bend."
I echo what others have said--the drawback of this book being homespun and self-published was that it's poorly edited. I feel like it could have been half as long and still contain all the relevant info. Also, I struggle with authors (of all kinds!) who come off as though they have All The Answers. While I really appreciated his pointing out our need for patience, resilience, and consistency, I feel like he doesn't acknowledge how much mental effort this level of diligence requires. Sure, you can do very well with this system--as long as you're willing to glance at your CGM 40-50 times a day and take action (or decide not to) accordingly.
I was surprised that he didn't mention the importance of being properly hydrated for your CGM to work properly. Also, I was surprised that he gives actual doses in his examples without offering constant caveats that everyone's doses, ratios, sensitivities, etc. are different. Someone new to diabetes may glance through the book and take his doses as guidelines for themselves, which could be dangerous.
Required reading for anyone who wants to make the most of their CGM info. I am now a proud Sugar Surfer!
This book does a great job simply explaining the science behind type 1 diabetes (insulin action, comparisons to non-diabetic BGs, how glucagon works, etc.) and diabetes tech (insulin pumps, MDI, CGMs, etc.). Then the book gives you tips on strategies to use all the tools available, including your brain, to achieve dynamic care.
It is a little repetitive at times, but I learned new things with every iteration so it is worth every word. Don't even skip the Terminology section at the end; there are gems in there too.
Some basic takeaways:
-- Be patient, consistent, and resilient. No shame or guilt, we're just doing our best. Some factors are harder to predict than others, and the unpredictable will happen.
-- Glance at your CGM frequently. Ask: 1) How do I feel? "Practice guessing the trend line direction before you glance. The brain can sense subtle BG shifts up, down, or steady. Practice!" 2) What am I doing? What will I do next? If eating, will the food act fast, medium, or slow? 3) When did I last eat? When did I last take insulin? 4) Do I need to check my blood sugar? Do I need to micro-bolus or micro-carb? (Micro-carb and micro-bolus around your upper and lower pivot point. Be patient. Remember that insulin takes more time to work than carbs do.)