Worth the Ride: My Journey with Duchenne Muscular Dystrophy

by Josh Winheld

Autobiography of a 29-year-old man with Duchenne muscular dystrophy, a terminal disease for which there is no treatment or cure. The book chronicles his life, the challenges and obstacles he faces daily. The author chose to be main-streamed through school, graduating 'cumma sum laude' from Temple Univeristy. This book is about courage, the determination to succeed, and live a purposeful life. The author is donating all book sales to Parent Project Muscular Dystrophy, a not for profit organization dedicated to helping improve the treatment, quality of life, and outlook for individuals affected by this disease.

352 pages, Perfect Paperback

First published February 29, 2008

Reviews

[Sarah Combs]

This book was a good eye opener for me. I know a lot of details about Duchenne MD and when to expect general changes to occur in my boys. But this book let me see how those changes will affect my boys emotionally and also how they will affect our entire family. I don't know that I loved his writing style but I enjoyed the insight I gained - even though a lot of it was hard to read because it is so personal for me. A great read if you want to better understand the affects of Duchenne MD.

[Lori Ware]

Amazing book about an amazing man living with a terminal illness (the same one my son has). This is a story of triumph and strength. Truly amazing and worth the read!

[Alicia]

This book was written by a friend of mine from grade school/high school whose daily struggles with Duchenne MD were a mystery to me, until now.

[Maureen]

I read this several years ago when my nephew was diagnosed with DMD. At the time it gave me an idea of what my nephew will experience. If you are a parent or family member of a child with DMD, this might be a very tough read to find out the ups and downs and issues that happen with DMD.

For me, it gave me hope. It also gives a good look at the difficulties for people with disabilities - especially a progressive disability - to get around in the world.

[Athira Rhina]

Josh was an incredible person and friend who is greatly missed, and it was a privilege to read his book.
This is a book that has earned its place on my bookshelf for many years.
The book is written from lived experience; it is insightful and warm, with a splash of humor.
I recommend this book to anyone living with DMD, family and loved ones, and carers.

[Kathryn Weis]

Incredibly well written, nothing held back.

[Louise Bodack]

a very honest memoir about a young man's life with muscular dystrophy. This young man was a student at the high school my children attended and I used to see him in his wheel chair at school events. Not only did he want to live but he was anxious to contribute something to society which I think he has by writing this book.

[Suzie]

My nephew was recently diagnosed with Duchenne Muscular Dystrophy. I learned so much about what to expect in our family's future and was inspired by Josh Winheld, the man who wrote the book.