It’s very hard to write this.
I bought this book a few years ago at the the time of my diagnosis when I got my back brace, as a means of trying to cope and figure out what my life would look like. I love literature, and see it as an escape so turning to books at a time when i couldn’t bring myself to write just sorta made sense.
the thing is, this book sat in my shelf unread for about 3 years.
I know, not my proudest moment ¯\_(ツ)_/¯
So now i’m this very experienced teen with scoliosis who has full on /mastered/ the art of having a brace, Taking it off? like two seconds. The back pain, discomfort, and weakness that are a part of my daily life? Give me a pillow, heating pad, and some ibuprofen and i’m thriving.
what i’m trying to say, is i’ve been there.
i’ve been at that doctors office, i’ve gotten my fitting, adjusted to life etc, and from that point of view, i couldn’t stand this book.
i had such high expectations when i bought it, it’s hard to be let down.
maybe i outgrew this literature style, maybe my maturity and experience with my brace impacted my views, i honestly don’t know, but what i do know, is i couldn’t get myself to finish this book no matter how hard i tried, and i swear i did try.
so, what i disliked.
- why. why why why why why would a doctor ever introduce braving the way it’s written here? as someone who’s been there, it felt cheesy and stereotyped and incredibly over dramatic. a brace isn’t a tragedy, and no matter how the girls mind might warp it, the dialogue caught me off guard
- bracing is very hard at first. i cried, at some chocolate, worries about whether i could continue studying ballet, and a whole bunch of other stuff, so the reaction felt slightly familiar, but what didn’t was the reactions, the way she’s treated like she’s dying, and acts like she’s dying. i want positive messages about scoliosis out there, this didn’t do it for me
- starting off in a brace is difficult and very very uncomfortable, but her reaction and the way she’s coping are SO FRUSTRATING. there are healthier ways to approach this as a new scoliosis warrior soccer player person, so the introduction to bracing was annoying and unsettling
- the way they talked about scars as if they aren’t beautiful [scars are beautiful].
- i’m big on tone and voice and i generally dislike writing written to sound like it’s a preteen, and this was no different
i saw within a few chapters that this book wouldn’t be right for me, but obviously everyone will have a different experience. this is just my point of view.