Well worth reading. The sad title comes from a comment made by a Wisconsin governor Scott Walker staffer in response to a scandal concerning mental health institution abuses. Don't worry about it affecting your career, she advised, because "no one cares about crazy people."
Powers is an accomplished journalist, and in this book he examines the history of treatment for mental illness and the history of attitudes toward the mentally ill through the lens of his own experience as the parent of two sons with schizophrenia, one of whom is dead.
The book alternates between reporting/synthesis and memoir. One basic catch-22 in treating the mentally ill that Powers knows well is that not being able to see that you're ill is part of being mentally ill. Which in turn feeds the paranoia... if the only authority on your illness is outside you, how do you know they aren't out to get you?
Meanwhile, the history of treatment is difficult even for Powers to parse. As he reports, the initial treatments were heavy-handed and quickly co-opted by the marketing departments of the pharma companies (as have been, to be fair, all drugs for all conditions).
But Powers's resentment about this seems a little disproportionate to me. The drugs for MI have offered a great deal of quality of life over the years to many. Yes, there have been many missteps and many side effects. But in the past the mentally ill were dragged to sacred springs, locked in asylums and attics. We have a long way to go, and the suspicion and hostility toward the few treatment protocols that actually can work is not helping.
For example, Powers is outraged that some anti-convulsants are being used off-label for bipolar disorder as if this some sneaky money-making trick. So what? Anti-epileptics are well understood and have been used safely among epileptics for many, many years. They are WORKING for bipolar. In fact, it’s turned out that many epileptics were bipolar all along and their symptoms weren’t manifesting because of the stabilizing effects of the meds they were taking for epilepsy. So it’s no surprise that some of these drugs are now being used, in some cases first-line, for bipolar. They’re cheap and effective and IMO a better choice than the newer atypical anti-psychotics, which really aren’t as well tested, and which can cause weight gain. I don’t think Powers has any business questioning the list of “off-label” uses as if this is all about strongarming by the pharma companies, without first understanding the rationale for this application on the medical side. It’s not as if these drugs—generics almost entirely—are expensive. In fact, there’s a strong push from the pharmas to move away from them and toward the atypicals, which are still branded and more expensive.
What’s interesting to me is that there are many big-gun drugs used against serious medical conditions. Cancer, say. These have SERIOUS side effects. In many cases, side effects far worse than those of psychotropic meds. Some people living with certain kinds of stage 4 cancers have found really long life expectancies—going so far as to have children or launch business—with newer drugs. There isn’t anywhere NEAR the hostility toward the pharma companies for the compromises they’ve have to make living with these awful illnesses and taking these terrible meds. Nor am I saying there should be.
WHY then, are people SO ANGRY at the pharmas for what they offer regarding mental illness? Not only patients are angry, but all of society seems to be angry. Everyone seems to get in the faces of those who are mentally ill… not only does the general public not want to take care of those who are sick in this way, they also don’t want them taking care of themselves. There is a great deal of disapproval of being ill, but there is also a great deal of disapproval of taking meds.
Even Powers doesn’t seem to think that doctors and medical manufacturers can be trusted. And neither do I, wholesale. I mean that in any relationship with medical providers, you have to be your own advocate or find someone you trust to help you. All the same, this ESPECIAL paranoia regarding the treatment of mental illness is something all of society shares, not just the mentally ill.
It’s not helping.
Otherwise, there is a great deal to be learned here. The one weakness of the book is that Powers’s treatment of his family material fails a bit in that he sentimentalizes his memories of his sons. It’s hard to blame him for this. What he aims to do is show the human impact of the collision of issues of around mental illness—the lack of education—the blindness of those who suffer from it, the blindness of parents, the blindness of communities, and the blindness of society at large. The trouble is that he can’t help but go on about what geniuses his children might have been had they not fallen prey to this devastating illness.
And that’s not really the point, is it?
He’s grieving his losses and he wants us to see what he lost. I get it. But what’s important here is not the GIFTS of his children but how they were failed.
It doesn’t matter if they were the next Bob Dylan or Einstein. What strikes a parent to the marrow is the thought that they failed a child. Helping us see how we are all involved in that failure—well, the other chapters have established how the illness works, how the system miscarries, how society colludes. So now, to break our hearts, it’s just a matter of showing how alone the child was.