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The Spectrum of Hope: An Optimistic and New Approach to Alzheimer's Disease and Other Dementias

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Imagine finding a glimmer of good news in a diagnosis of Alzheimer’s. And imagine how that would change the outlook of the 5 million Americans who suffer from Alzheimer’s disease and other dementias, not to mention their families, loved ones, and caretakers. A neurologist who’s been specializing in dementia and memory loss for more than 20 years, Dr. Gayatri Devi rewrites the story of Alzheimer’s by defining it as a spectrum disorder—like autism, Alzheimer’s is a disease that affects different people differently. She encourages people who are worried about memory impairment to seek a diagnosis, because early treatment will enable doctors and caregivers to manage the disease more effectively through drugs and other therapies.

Told through the stories of Dr. Devi’s patients, The Spectrum of Hope is the kind of narrative medical writing that grips the reader, humanizes the science, and offers equal parts practical advice and wisdom with skillful ease. But beyond the pleasures of great reading, it’s a book that offers real hope. Here are chapters on how to maintain independence and dignity; how to fight depression, anxiety, and apathy; how to communicate effectively with a person suffering from dementia. Plus chapters on sexuality, genetics, going public with the diagnosis, even putting together a bucket list—because through her practice, Dr. Devi knows that the majority of Alzheimer’s patients continue to live and work in their communities. They babysit their grandkids, drive to the store (or own the store), serve their clients, or otherwise live fulfilling lives. That’s news that 5 million people are waiting to hear.

 

324 pages, Hardcover

First published October 31, 2017

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450 people want to read

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Gayatri Devi

11 books5 followers

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Displaying 1 - 30 of 41 reviews
Profile Image for ij.
217 reviews205 followers
April 9, 2024
A Spectrum of Hope is a very insightful book about the treatment and new approaches to dealing with Alzheimer’s disease and other dementias. The author, Gayatri Devi, MD, is a neurologist, and these diseases are a significant part of her specialty.

Devi provides essential information for patients and caregivers. In the book, she uses stories about her patients to paint a picture of how she deals with them. I learned about many types of memory diseases and what tests are necessary to reach the proper diagnosis.

Many patients can continue to care for themselves, work, and socialize with little or no problem. Some need either part-time or full-time care. In most cases, Devi recommends that her patients remain in their homes. Remaining in the residence helps reduce patients' confusion about their whereabouts.

My paternal grandfather and my father both had Alzheimer’s disease. A lot has changed since their deaths. There is better testing and medications. One thing that I learned is that I am not necessarily prone to their disease by heredity.

I recommend this book to anyone interested in gaining more knowledge of these diseases and anyone who is a relative or caregiver of a person with any of these diseases.


Update:

When I read this book, I believed that one of my loved ones (her/she) might have this disease and wanted a better idea of what to expect, what help was available, and how I could help prepare for her future health. Also, I would be the person living with and helping her in this situation.

However, it took me about two years to convince her to see a neurologist. Finally, I talked to our primary physician, who helped persuade her to get a neurological workup and recommended an outstanding neurologist. Unfortunately, I was right about this situation, and the diagnosis is dementia. There is a difference.

It is often difficult to live with the challenges of dealing with the changes a person with dementia may go through. They frequently do not recognize that a caregiver is trying to provide help or believe they need help. I am currently looking for a virtual caregiver support group. The group can share experiences and help each other survive.

This update is a personal reflection of the positive impact this book had on my understanding of Alzheimer’s disease and dementia.





Profile Image for Sue.
1,425 reviews650 followers
October 26, 2017
When I saw the title of this book, I was immediately drawn to it. I felt the need to find what this doctor has learned, what there is that is cause for optimism in her approach to Alzheimer's and other dementias. What I've learned does give me hope and a measure of optimism. Within the Alzheimer's classifications of rapid vs slowly progressive, Dr. Devi has broken down the disease into further levels, and evaluates major cognitive areas and current level of function. Using multiple case studies, she makes the case for various forms of intervention and how they can markedly affect the speed of progression of the disease. As a former Occupational Therapist who worked in home care for many years, I wish I'd had this resource for patients and families. Of course, most of the people I saw were further along the spectrum by the time I met them, but there is valuable information for those families here too.

The book provides information on the diagnostic process, the various aspects of the treatment process recommended by Dr. Devi along with results seen in case studies (and some of patients who opted not to participate). There is also a nice section on the difference between memory and intelligence, very useful for anyone who has had a patient or family member say "How did I get so stupid?" There is a chapter on the genetics of Alzheimer's and also the use of diet, physical activity and social engagement as means of prevention. Other chapters deal with such common problems as fear of bathing, depression, apathy. Also--when is it time to hire private help. And each of these are shown through multiple case studies, each from a slightly different perspective. And there is much more.

One of the major public mis-perceptions is that ALL of Alzheimer's IS the most severe cases. In truth, there are very likely many undiagnosed people functioning well in society around you every day, working, driving, socialising without any perceptible problem. Their symptoms are so sub-clinical that they and their significant others don't notice them. Many of Dr. Devi's patients continue to work, with some adaptation, for years, some in very high level positions. Of course, as the doctor emphasizes, no two people are alike and no two cases of Alzheimer's are alike.

I hope that, should I develop the tell-tale symptoms of Alzheimer's, I am fortunate enough to find a physician as intelligent, as humane, and as caring as Dr. Devi who obviously has acted with her whole and best self as much as possible on behalf of her patients and their families.

I recommend this as a resource for libraries, for individuals in health care and for those with interest in this area, be they patients or family members.

A copy of this book was provided by the publisher through NetGalley in return for an honest review.
Profile Image for Maureen.
620 reviews
June 7, 2018
I've started reading two or three other books about Alzheimer's, but didn't get very far. This book is an absolute GEM. It weaves information, reflections, stories, advice and encouragement. Beautifully written! Thinking about writing to the author, not my usual practice. Definitely on my ten best ever books list. Bought it before finishing reading the library copy. P.S.: This book is not just about Alzheimer's. It would be of benefit to ANYONE who is alive.
Profile Image for Esther .
938 reviews197 followers
July 25, 2017
ARC provided by NetGalley and Publisher in exchange for an honest review.

Sadly I found this to be uninformative and dry.

The information is repeat of what's been published. Information that is found in pamphlets handed out by doctors and nurses.

My expectations might have been too high or what I thought would be informative with solutions and options for help didn't evolve, sadly.

I do a lot of reading and researching for new information as my Mother has alzheimer's and had hopes for some new and enlightening solutions and answers.

Profile Image for Chris.
863 reviews181 followers
December 5, 2018
A Very Important Book!!! So wish I had read this a year ago, I could have had some info in hand to be more aggressive in getting my Dad in for evaluation & treatment. Easy to read, do not need any kind of medical background to understand. Highly recommend for anyone concerned for themselves or others about developing dementia or have seen concerning behavioral changes. There are a lot of highly functional people living with dementia. Its important to address cognitive and brain reserve and maximize a strong immune system. Dr. Devi with 2 decades of experience, uses cases to highlight different aspects of her evaluation protocol and various treatments: medication, behavioral therapies, cognitive exercise and transcranial magnetic stimulation. She identifies whether someone has She also discusses that there are a few other diseases that if not ruled in or out, can lead to a misdiagnosis of dementia. I was particularly struck with how she teases out whether someone is having memory issues, changes in language or life skills and how that is important to tailor individualized treatment plans. She advocates staying in the home if possible, discusses caregivers hospitalizations, and living & dying with dignity.
Profile Image for Joy Wright .
124 reviews4 followers
January 27, 2020
As I support my grandmother with dementia, this book was extremely helpful understanding the disease, effective treatment, and the caregiver’s role. Dr. Devi’s book was a well written explanation of Alzheimers on a spectrum with patient experiences.
Profile Image for Megan  Honaker.
272 reviews8 followers
August 31, 2023
"It's more important to know what person the disease has rather than what disease the person has"

I loved this. This book has really impacted my life and the outlook I'll have as my parents age and as I age.

I've always felt very drawn to older people. I like talking to them, sitting with them, hearing their stories, and helping them. I spent so much time with my grandparents growing up that it didn't seem weird to me if I had a friend who was in their 80s and I was 12. When my grandma went into a nursing home as her dementia progressed, I'd wander the halls and talk to everyone after she fell asleep on our daily visits. I made so many friends that I still think about. Some days I'd have to reintroduce myself 3 times but other days, they recognized me with a huge smile and we'd just sit and talk or hold hands. That was my first interaction with people who had memory disorders.

This book focuses on Dr. Devi's research that Alzheimer's is a spectrum and every person and diagnosis is different. When we think of Alz we think of people sitting in nursing homes who don't know their loved ones names. And sometimes, that is the reality. But what Dr. Devi argues is that most of the time, it isn't. Most people get their diagnosis and they immediately start a treatment plan that tackles and often IMPROVES their daily life. They continue to lead fulfilling lives, working, spending time with family, enjoying their hobbies. It was refreshing and hopeful to read these stories and case studies of real people.

Dr. Devi also provides advice on what sorts of documents should be in order, her view on hospitals vs. in home treatment, and so much more throughout this book. I loved it. I hate hate hate when we think of someone with a memory disorder and say "I miss the person they were." They're still that person. They're just having some problems accessing the language or memories to articulate now and it's our privilege to be able to help them and get them through this chapter. Spend time with your elders. Appreciate them, no matter what stage of life they're in. I'd give just about anything to spend 1 more day with my grandma and grandpa. <3
Profile Image for Leyla Johnson.
1,357 reviews16 followers
February 20, 2018
I was very interested to read this book having had both my parents die from the result of Alzheimer’s, my mother from early onset, my father had Lewy body type.
The disease has intrigued me due to both going this way - and wonder if it was hereditary, environmental or medical factor had something to do with it.
This book really did give me hope for the future of Alzheimer patients, my mother tragically spent many many years in a chair not speaking, occasionally you would see tear slipping down her cheek. and her eyes would sparkle and we knew she understood, but no-one had any idea how to treat the people with this distressing disease.
If only we knew, if only other knew she would have had some dignity in her last years.
Anyone with a relative or friend with Alzheimer’s should read this book, anyone who fear it should also read this book, and find some hope within it. Everyone should read this and understand that the people with Alzheimer’s can live fruitful lives not be stuck in a chair and hidden away.
Profile Image for Suzanne.
1,835 reviews41 followers
September 1, 2017
A welcome and much-needed alternative to the dire picture of the one-size-fits-all Alzheimer's that exists in the popular media, this book offers an alternative: a spectrum with room for lifestyle changes + medicine that offsets rate of change. The message is wholly inspiring. There is no question about it. Especially when the author, a noted neurologist, takes the time to explain the facts, genetics doesn't turn out to explain much, even though somehow everyone assumes they do. Once the reader understands that big piece of the puzzle, the spectrum of dementia makes so much sense it's amazing we haven't heard of it before. The case histories are wonderful; they thoughtfully expand on ideas that otherwise would remain just outside our grasp. We wouldn't think of them unless someone we knew had experienced them. I had one struggle: I wished more was said about dementia and apathy. It was just too briefly mentioned. Otherwise, this is a gem and should be widely shared. Too many friends and relatives live in quiet fear of their future and need not. I received my copy from the publisher through NetGalley. I am deeply appreciative.
115 reviews13 followers
February 11, 2018
Reading this book made me realize that Alzheimer's Disease isn't necessarily an immediate death sentence. There are degrees of symptoms. The disease can progress rapidly or slowly. Dr. Devi's approach to her patients is centered on maintaining their sense of dignity and self worth and she concentrates on how best to achieve a satisfying way of life for them. She seems like the kind of physician/healer we all need. If you know of someone who has been diagnosed with this spectrum of disorders or just want to advance your understanding of Alzheimer's this is the first book you should read. It's amazingly comprehensive and offers lots of practicle suggestions.
4,087 reviews117 followers
January 6, 2020
Workman Publishing Company and NetGalley provided me with an electronic copy of The Spectrum of Hope. I was under no obligation to review this book and my opinion is freely given.

The Spectrum of Hope is a new approach to the way that individuals with Alzheimer's and other dementias are treated. By classifying the disease as a spectrum disorder, the author feels that Alzheimer's will be better understood by health professions and sufferers alike. In the author's note at the beginning, Dr. Devi explains that the words dementia and Alzheimer's will be used interchangeably, but they are not the same disorder. Labeling individuals with Alzheimer's under a spectrum disorder does a real disservice to those who have the disease, giving a rosy glow to that which is very unpredictable.

I thought this book was going to be about the medical approaches to Alzheimer's, but it is more like a self-help book or a diagnostic guide. It goes through subjects like how to maintain independence and fight depression, among other topics, but it does very little in describing the disease itself. It is important to have hope when facing a debilitating illness or disease, but the author should have balanced these subjects with the medical realities. My Grandmother had Alzheimer's and I would not have recommended reading The Spectrum of Hope to any of my family members. The author spent too much time on her own patients and their case studies, without giving enough medical information to give the book a solid footing.
Profile Image for TS.
55 reviews
September 15, 2018
My family is new to this disease. This book gave me a great proscriptive during this new journey. All caretakers should read this book.
52 reviews
March 18, 2018
easy read but I fear it offers false hope to the majority of Alzheimer's sufferers-- for example, vitamin deficiencies should be the first thing ruled out in the differential diagnosis
Profile Image for Anastasia.
1,241 reviews24 followers
May 8, 2018
I enjoyed listening to her stories of those with Alzheimer's. She did a very good job of proving her point that it is a spectrum. Each person is an individual who is affected differently by this disease.

It has opened up more avenues of understanding for me. I volunteer in a nursing home with my dog. We see many people with dementia. Some days they repeat many of the same conversations as before. Other times they reveal fascinating insights into a world gone by. They of course love the visits with my dog which she enjoys just as much no matter what the conversation is.
1,344 reviews
August 9, 2017
Most of us have known a family member or friend either with Alzheimer's or in the role of caregiver for a dementia patient. The possibility or reality of such a diagnosis strikes fear in the minds of all involved. Dr. Devi shares knowledge and perceptions gained from years of her medical practice treating the many forms of dementia.

Using a multitude of case studies the author relates diagnostic and treatment options plus the many decisions and conditions that patients, family and caregivers face. For years we heard that there was no way to confirm Alzheimer's except a brain autopsy after death. Also, there was little that could be done for treatment. Some of the most valuable points in the book are that these ideas are now myths and that early diagnosis and treatment can add years and quality to a patient's life.

This is not an academic medical journal nor does it contain a magical solution but as the title states it offers new understanding, optimism and hope. I found a number of the chapters address issues that apply to a broader range of eldercare and end of life decisions, not just dementia related.

Dr. Devi points out that not all physicians see dementia and treatments in the same way. From this book I would know to search for a doctor and support system that does offer positive treatment and hope. Not everyone can find the same expertise and empathy as Dr. Devi but we can gain from her sharing and optimism.

A number of friends and family will receive a copy of this book from me when it hits the shelves.

Thank you to the publisher and NetGalley for an ARC of this title.
Profile Image for Christine Stafford.
200 reviews1 follower
March 26, 2018
Every single person should read this book. The spectrum of dementia/alzheimers is so wide and there are so many misconceptions. What an inspiring and positive book.
Profile Image for Karen K..
Author 1 book5 followers
August 15, 2017
Contrary to popular opinion, a diagnosis of Alzheimer’s disease is not a death sentence. Recent developments in neuroscience offer hope to those affected by Alzheimer’s. Dr. Devi’s book is required reading for those who fear they may be losing their memory, and especially for caregivers and friends of those already diagnosed. Diagnosis itself is complex, and it's essential to get an early workup in order to establish early interventions or to sort out other conditions that also affect memory and daily functions.

According to Dr. Devi, Alzheimer’s is a spectrum of maladies, similar to autism. It’s not an absolute disease like measles. Depending on the area of the brain affected - and circumstantial factors in a patient’s genetic, health, and lifestyle profile - the label “Alzheimer’s” is complex, variable, and manageable beyond what popular culture has previously reflected.

THE SPECTRUM OF HOPE narrates a wealth of patient case studies, written in anecdotal and accessible tone. Dr. Devi balances her case studies with facts about medication, lifestyle modification, and caregivers’ roles. Reading this book dispelled some of my fears about mental decline, and at the same time offered ideas for interacting empathically with friends and family members affected by Alzheimer’s.

This review is based on an ARC from NetGalley.
Profile Image for Christina Dudley.
Author 28 books264 followers
September 28, 2017
I gave this very good book a quick read. Dr. Devi's perspective is new in that she characterizes Alzheimer's as a spectrum disorder, as individual in its progress as the person suffering. She wants people diagnosed as early as possible, so they can hit back with diet, exercise, mental exercises and stimulation, and drugs. Many of her patients were able to recognize loved ones till the end and function above and beyond society's expectations.

Sadly it didn't give me any hope for my mother-in-law, who has always denied her condition and refused to participate in any therapies or exercise. Alzheimer's drugs alone don't seem to do much, in her case. But it's absolutely true that she's hanging on to language and self-care skills very well, considering her memory problems.

If you have a loved one who's been diagnosed or have been diagnosed yourself, I highly recommend this book.
7 reviews
August 4, 2022
My husband was diagnosed 3 years ago with dementia after he began to lose things. He would accuse someone of stealing, even in the night. He was on medication but his symptoms progressed to anger and short fuse over little things. This was a man who was soft spoken, slow to anger and gentle. It was such a change for us to try to manage a whole new way of living. He is 67, I'm 66 and I felt so stressed sometimes. I didn’t know what each day will start with. I retired in April that year and was with him 24/7. I have been researching for a while now, and I think this has helped. Have you ever come across Health herbs clinic Dementia HERBAL FORMULA (just google it). It is a smashing one of a kind product for reversing Dementia completely.4 months into treatment he has improved dramatically. the disease is totally under control. No case of dementia, particularly the hallucination, weakness, and his mood swings. visit their website healthherbsclinic .com I Just wanted to share for people suffering from this horrible disease
6 reviews
October 6, 2022
My husband first experienced confusion and loss of memory in March of 2000 while undergoing rehab for alcoholism. Being home seemed to help him until 2006 when he gradually began experiencing Alzheimer’s symptoms. He had four to five hours a day where he wants to get a "greyhound" to "go home." Also, he thinks I am his sister and believes he has rented a car (he hasn't driven in five to 10 years). His personal hygiene was in the tank — it was necessary for him to change two to three times a day. Without long-term insurance for his care, it was becoming stressful to care from him. this year our family doctor introduced and started him on Healthherbsclinic Alzheimer’s Disease Herbal Tincture, 6 months into treatment he improved dramatically. At the end of the full treatment course, the disease is totally under control. No case of Alzheimer’s, hallucination, forgetfulness, and other he’s strong again and able to go about daily activities. visit their official website, www. healthherbsclinic. com
Profile Image for Hilary Whatley.
119 reviews2 followers
April 13, 2021
Really great book. Honestly, it reads like a fiction - I couldn't put it down.

I got it after my uncle died this past year from early onset Alzheimer's. I just wanted to be prepared. I feel like I have lot to go off of now, having read the book. Initially I was just looking for prevention strategies, but honestly, after reading, I feel that I can handle this, should it happen to my parents. The strategies of dealing with the struggles and challenges that come up are just as valuable as the prevention strategies, if not more. Honestly, we may or may not prevent it, but in the end, we all die. It's good to learn how to accept this truth, and how live and die with dignity and grace the whole way. This book helped my anxieties about it all, a lot.
Profile Image for Kathy.
15 reviews
November 11, 2017
What a helpful book!

My mother was recently diagnosed with Alzheimer’s. She’s likely had it for the last several years ...but so excellently “covered” for her disease, only those seeing her on a daily basis would realize something was “off” with her. This book was just excellent in laying out various scenarios and at the same time helping to answer questions for those of us serving as caregivers. I could see mother in many of these scenarios, and feel I have a much better understanding of what she is experiencing after reading this helpful book. It is truly a book for patients and caregivers alike.
25 reviews
December 4, 2017
Information for the future

Occasionally I felt that the author was TOO positive, since I have personal experience dealing with frontal temporal dementia and have been a caregiver for an extended period. But it is wonderful to know that there are doctors of this caliber out there even if I've not met them. It was also good to learn about some of the advances in Alzheimer's treatment, should I ever need them.
Profile Image for Colette.
60 reviews
April 7, 2018
Viewing dementia as a spectrum disorder makes so much sense and fits my experience with loved ones affected by dementia. The author is able to present new and useful information.
Profile Image for Flesha.
570 reviews3 followers
January 21, 2020
This book looks at Alzheimer's as a spectrum disorder - if you know a person with Alzheimer's, you know a person with Alzheimer's. It offers hope of living well with Alzheimer's and caring for those with dementia. Sprinkled throughout are stories of patients Devi has cared for. This book puts a human face on Alzheimer's. I will recommend this to high school students working toward their nursing assistant license as well as those who are caring for relatives with dementia.
958 reviews5 followers
September 12, 2017
Nobody used to talk about Alzheimer's or dementia much less admit they were worried it might happen to them! But as the Baby Boomers age, the topic is becoming more and more relevant.

This book is easy to read and gives some valuable information about the different stages of Alzheimer's and dementia. It's fascinating to read.
Profile Image for Robin O'Brien.
145 reviews2 followers
March 9, 2018
Wow every person and their caregivers should have a doctor like Dr. Devi. She is not only compassionate but is progressive in her treatment options for those suffering from Alzheimer's Disease. She understands how consistency in life helps these victims and provides them with dignity from the time of diagnosis until the day they die.
45 reviews
May 22, 2021
This book was written with knowledge born of experience and compassion!!!! It was so helpful to me as a niece of someone living with the disease we call dementia. The personal stories of the patients and their loved ones were so real and I could both relate to them and learn from them! I am thankful to Dr. Devi for writing this book!
194 reviews
September 18, 2017
I am so thankful the author took the time to write this book! With the baby boomer's aging, it is needed now more than ever. I really enjoyed reading the case studies & how it offers hope as one goes through this journey.
5 reviews1 follower
November 9, 2017
Every family needs to read about dementia

Great storytelling that weaves the issues in a way no one else has shared. There is much more that can be done if we could u understand that every case is unique
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