In one single moment, everything can change. What lurks inside the deepest depths of David Malarky threatens his entire existence....
Vascular Ehlers-Danlos Syndrome: The Journey Begins charts the story of David Malarky as he uncovers a truth that has gone undetected in his family for generations. An unknown monster with the power to take a life in the blink of an eye.
As David unmasks the savage beast within, he must come to terms with the consequences of being diagnosed with a rare genetic disorder. With little help and little hope, he must overcome and fight back in the challenge to stay alive.
Such a beautiful but painful read. Being able to relate but also compare symptoms, vascular and renal events, familial relationships and reactions. This was beautifully executed and i’m really pleased that others can relate and appreciate a glimpse of vEDS
I can't recommend this book highly enough for everyone not only those affected by vEDS. I was hooked from the beginning. It offers a rare insight into life with a rare disease and the emotions that go with it. The writing style is superb and feels as if you are talking to David Malarkey over a cup of tea rather than reading words on a page. This book definitely deserves 5 stars.
Liked the story, definitely a voice for something I suffer from as well, and no one talks about or has even heard of- and I still learned a lot about it even though my vEDS diagnosis came almost 7 years ago, interesting thought processes and viewpoints, editing needed so I couldn't give it a 5, but would love to collaborate with this guy and write for vEDS.