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ALS: An Orientation
Eliot H. Dunsky, MD, is a retired physician who since his diagnosis in 2009 has been living with ALS, the complex, progressively debilitating disorder commonly known as Lou Gehrig’s disease. Determined to maintain the best quality of life possible—for as long as possible—he extensively researched the condition and its management.
As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left.
The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it.
Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.
As he immersed himself, talking to ALS patients and exploring emerging assistive technologies and aids, he realized that misunderstanding of this complicated disease was rife, preventing many from making the most of the precious years left.
The result is this compilation of not only his personal experiences as his own condition advanced but also current research and links to additional specialized resources. Its aim is to help other patients learn to live with their diagnosis and navigate the day-to-day struggles associated with it.
Appropriate symptom management can help fend off the devastating effects of the disease for a longer period of time. An Orientation offers a practical guide for patients and their families on maximizing quality of life through strategic care and, importantly, coping with the emotional toll the disease can take. A terminal diagnosis simply means savoring to the fullest the life that is still possible.
341 pages, Kindle Edition
Published November 14, 2016
50 people are currently reading
7 people want to read
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Displaying 1 - 4 of 4 reviews
September 30, 2019
Compassionate mind sharing his expansive knowledge of dealing with ALS
Cogent and practical chapters on dealing with the challenges that unfold with the disease. Many links to internet resources, some stale but most with vital information. The author’s optimism in the face of his experience of the disease is heartening. As a caregiver I will refer back to this book often.
Cogent and practical chapters on dealing with the challenges that unfold with the disease. Many links to internet resources, some stale but most with vital information. The author’s optimism in the face of his experience of the disease is heartening. As a caregiver I will refer back to this book often.
January 15, 2023
A very big THANK YOU for having written this book. It helps so much to cope, to understand, and to get ways to still enjoy life !
Best of all: the last chapter about ALS and you: I will translate it for my young brother who’s been diagnosed with ALS last year. It will be very, very soothing to know how you felt towards life while living with that illness.
I wish you the best!
Best of all: the last chapter about ALS and you: I will translate it for my young brother who’s been diagnosed with ALS last year. It will be very, very soothing to know how you felt towards life while living with that illness.
I wish you the best!
October 22, 2020
On page 138
This entire review has been hidden because of spoilers.
January 5, 2017
Lots of very helpful information about ALS. I could see the author as he described his struggle with the disease.
The text has too many typos or other editor errors that were annoying after a while. I can still recommend this book to ALS patients and caregivers.
The text has too many typos or other editor errors that were annoying after a while. I can still recommend this book to ALS patients and caregivers.
Displaying 1 - 4 of 4 reviews