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208 pages, Paperback
First published July 1, 2017
There are number of practical ways in which we can respect dignity by entering the world of people with dementia. Here are a few examples: 1. Get to know their past history, if you are not already familiar with it. Talk to them about stories from their past to allow them to enjoy the memories they still have. It may help to compile a picture book and have them explain the pictures in it. 2. Share some funny stories. They may not understand them, but if you laugh, they may enjoy laughing along with you. 3. Learn what they prefer to be called and use that when speaking with them. It may be the nickname they had as a child. 4. Learn their likes and dislikes from earlier in their lives. You might take them to places they used to enjoy and serve them the comfort foods they once relished. Their forgetfulness may enable you to do this repeatedly. If they used to love mac and cheese, they may be fine eating it every day. 5. Play the music and sing the songs they used to love. 6. Slow down to get into their world. Life for those with dementia moves slowly. Anything you do together will take more time, as it may upset them or even lead to a meltdown if they feel rushed. 7. Respect the constrictions of dementia. As the disease progresses, patients will be less interested in the past and future and more focused on the present. They will be less interested in news of the world outside and may not want to leave the comfort of their home or room. What is going on in the lives of other people may not be important to them; eventually, however, they will care only about how they feel in the here and now. To respect their dignity, those around them must learn to enjoy the present moment with them. At times, being touched and held may be all they want. Recognize that caregivers’ need for activity may be far greater than theirs. 8. Respect their resistance to change. Establish routines they are comfortable with. Having meals at the same time and going to bed and getting up on a regular schedule are usually best. The world they live in does not require much variety. 9. If they perceive that you did something wrong and have become upset by it, accept that their understanding of what happened may be totally different from yours. Do not make excuses but apologize profusely. That will affirm them, avoid arguments, and allow them to feel better.