This book was interesting enough, but I just couldn't get past the unrelenting class bias of the late author. She wanted you to know that she was 1. highly educated and 2. not like those poor, poorly educated, sad sicklers with no hope, or degrees, or good jobs with good health insurance options.
I simply could not stand Gail's attitude towards other persons with sickle cell disease.
Gail may possibly have intended for her book to be uplifting for those left behind, and those living with chronic pain and chronic illnesses. Mostly, it just seemed to be her sh!tting on the SCD patients that didn't go to Syracuse, marry well, and travel in between crises. Her life was great basically because she willed it so, and others with SCD that didn't have great lives were to blame for their own failure at survival and endurance...that was my takeaway from this book. I don't begrudge anyone's success in difficult circumstances, but don't act like those who didn't have the same opportunities were just slackers that didn't work hard. If she actually got to know anyone else with SCD and learn how their lives unfolded, maybe she would have been less dismissive and arrogant. She did to go a support group once, and decided she was too good for everyone else in the room.
It's sad that she died, it was a triumph that she outlived her pediatrician's estimate by over 2 decades. It's also sad that she came off as thinking she was so much better than everyone else with SCD. Maybe that's not who Gail actually was, who knows?