After reading a lot of so-so books lately, I was pleased to pick up this at the library. I love memoirs and I love books about medicine/health so this was right up my alley. Awdish covers a lot of ground. She writes about her medical training. She details her serious health issues and subsequent recovery. Finally she discusses what she learned while sick and how that knowledge helped her to become a better doctor. She takes the knowledge she gained and her personal changes from it and uses those to implement broader changes in both medical school and within the atmosphere of the hospital. She packed a lot into about 400 pages.
in the same way physicians had denied the primacy of the patient voice, medicine had also silenced physicians. We'd been trained to believe that the burdens we carried, the suffering we witnessed was meant to be borne in silence. We were taught to establish clinical distance, to don white coats that declared we were on the side of health. It was an intentional delineation of ourselves as separate
I've read several memoirs by doctors and my father was a professor at a medical school as well as a surgeon himself, so I already knew how rigorous the training is. Adwish had a fresh take on it, focusing more on the emotional cost of that intense schooling than on the intellectual and physical demands. She calls out the tradition that tells doctors not to get attached to or emotional about patients.
A twelve-hour case meant twelve straight hours in which you did not move from the operating room table. You learned not to drink or eat, you learned not to feel hunger or indulge thirst. Corporeal needs were marginalized, ignored and dismissed.
Any and all signs of emotion were immediately met with an assessment of "perhaps this is too much for you. You may not be cut out for this kind of work." We learned that crying happened in closets or on the drive home, but always alone.
Some of our classmates found their feelings unbearably difficult and instead attempted to drown them in alcohol and addiction. Some left medicine for alternate careers. Some committed suicide.
The demeanor modeled was a coolly distant authority, with little value placed on empathy. "Caring" was the purview of nurses and social workers. The mantra was, if you want to treat disease, become a doctor. If you want to care for patients, become a nurse.
I was taught in medical school that connection begets loss, which in turn begets disillusionment and burnout...I didn't understand that open channels would replenish my supply of self. That there was reciprocity in empathy.
"You are behaving in a way I would characterize as immature and reckless. If you allowed yourself to get close enough to this child that you need to mourn his death, which, by the way, if you knew anything about medicine, you would know was a complete inevitability ... if you feel close enough to mourn him then you are irresponsible. Period. How do you expect to care for the other children in your charge?" A doctor yelling at Awdish when she is doing rounds in a pediatric ICU ward and Awdish starts crying when a little girl dies.
The section of the book about her near death experience - bleeding out, a stroke, a coma - and the loss of her daughter, a stillbirth at 7 months - was intense. It is truly amazing that she lived. In fact, she died in the operating room and had a classic near death experience of floating above her body before the doctors brought her back. Going from an ICU doctor to a patient in the ICU was a sudden switch that threw her life trajectory into question.
I struggled to make sense of a trajectory toward nothing. Training that demanded I lock myself away, abdicate all fun and miss family events all in the name of the pursuit of medical knowledge, only to have the path stop dead.
no one thought you'd survive the operating room that night. I was there when they were closing you and they really just thought they were closing you for an autopsy. They did a whip stitch," he explained, referring to a type of suture that is quick but not intended for healing. Its a stitch they use on corpses or soon to be corpses
my true medical education had begun the moment I had gotten sick,
In that bed, in pain, I felt terribly, frighteningly vulnerable, dependent on the care of strangers for my most basic needs as well as the most complex care. I felt powerless in a way that is impossible to imagine, from a privileged position of wholeness and well-being...I pathetically tried to ingratiate myself to the team. I believed that I needed to make them like me in order to care for me. I believed I had to earn pain control through good behavior. I felt I had to prove to them that I was deserving.
Her experiences as a patient were eye opening to her. It made her rethink the way she had been acting towards her patients. Especially upsetting was the scene with the nurse insisting she knew Awdish's emotions better than Awdish herself did.
Did I want to see the baby?
"No," I replied flatly.
"Well, I think that's really sad," she stated, visibly disappointed.
I was surprised by her reaction. It hadn't occurred to me that there was a right answer. It struck me as unnecessarily cruel to ask me to hold a baby that had been dead in my mind for days already.
"Well, you won't get another chance."
Interesting tactic, I thought, resorting to threats in an attempt to provide her version of compassionate closure on a failed pregnancy.
As if to further drive home her point, she added, "A baby deserves to be held by her mother at least once."
This baby was not alive. This baby stood to gain nothing from this imagined interaction with its mother. I felt as if she were asking me to submit to some act of self-abuse that she bizarrely construed as constructive. As if she were asking me to bare a wound she had neither the intention nor power to heal. In her desire to help, she needed me to conform, to accept her predetermined plan. But there was no room in her plan for my needs or values.
Once she is out of immediate danger, then comes the very long road to recovery. Recovery is not in the purview of doctors. That falls to the nurses, the physical therapists, the occupational therapists. It can be a huge component of a sick person's experience and Adwish realizes she'd never deeply considered what happens after the doctor swoops in like a superhero to save the day.
I tried to integrate what had just happened into who I believed myself to be. I was apparently now a person who took over an hour to put on socks using a sock-hook. And I was a person who found it incredibly difficult.
Though I had no psychological dependence on the medications, my body had become habituated to them. I had become physiologically dependent. I realized this with a start two days into the "flu." I held the amber bottle as if it were precious, knowing that I could put a stop to the cold sweats, the pain, the nausea, the shaking chills. By satiating the need, I would only restart the clock. If my answer in this moment was more medication, another bout of acute withdrawal would always be in my future. The bottle took on a magnetism far greater than its actual physical size should have allowed. It was the center, and I was in orbit around it. I flushed the pills away. And then they were quiet. Proximity proved necessary for them to have any influence over me. Would that everyone could be that lucky.
I was completely terrified and, not knowing how to quiet my fear, took the only option I thought available to me: to attempt to bludgeon the feeling into submission with data. I was making the same mistake with myself that physicians make with their patients. I was not naming or tending to my own emotion.
Once she goes back to work she starts implementing her new understanding into her treatment of patients.
I felt them eye me quizzically as I leaned down to speak into an unconscious patient's ear, "You're doing much better. You have a pneumonia, but the antibiotics are working, and you are getting better." "I believe he can hear us," I'd explain. "And if it was you, wouldn't you want someone to explain what was happening?"
They would shrug, unable to imagine such a thing.
It took me ten years to figure out I should stand and face the same direction as my patients.
in all these years of being a doctor, why had I never just sat down and held someone's hand? It could have made all the difference for someone, but I just didn't know.
I recalled a time when I had responded to a tearful patient's question,"But how could this have happened?" with explanations of the complex interplay between genetics and environment, behaviors and predispositions that had led to the terminal diagnosis. I had been trained to believe that all questions were a request for data. Because of this orientation, | recognized neither the fear nor the existential nature of the question. It would be years before I understood the subtext behind the questions.
Awdish recognizes the need for doctors to reframe how they are dealing with emotions, both their patients and their own. She implements changes at her teaching hospital(hospitals connected to a medical school) that are hopefully letting the younger generation of doctors grow both as a doctor and a human being.
I was taught in medical school that connection begets loss, which in turn begets disillusionment and burnout...I didn't understand that open channels would replenish my supply of self. That there was reciprocity in empathy.
We all desire to be seen, to be known, to share our experiences and feel heard. To have our life events given context and meaning, redirected back to us in a way that we can understand and integrate into our understanding of who we believe ourselves to be.This need is more acute in times of sickness. We believe ourselves to be the narrators of our own lives. When we are sick, we are humbled by our dependency on others, the loss of control, the uncertainty of the ending.
The simplicity of telling someone you are sorry for their loss, or that it isn't OK, can feel weak and puny in the face of suffering.We avoid it, feeling impotent, knowing that our sentiment won't fix anything. And we want to fix things. We cannot change that which is true and sad. But we can acknowledge it. We can humbly witness suffering and offer support.
We cannot define success as beating death because death cannot be beaten. Our ability to be present with each other through our suffering is what we are meant to do. It is what feeds us when the darkness inevitably looms.
It is entirely possible to feel someone's pain, acknowledge their suffering, hold it in our hands and support them with our presence without depleting ourselves, without clouding our judgment. But only if we are honest about our own feelings.
Awdish mentions something called The Ring Theory which I found very helpful. It's about how to support people who are suffering. Something to remember for the future.
They were violating the basic rule of the Ring Theory, which I first encountered in a Los Angeles Times article by Susan Silk and Barry Goldman. The concept is an etiquette lesson in complaining during times of crisis. Imagine concentric rings. The center ring represents the sick person, in this case me. The next circle is composed of the closest family, people who are also affected by the illness or loss, in this case Randy and my mom. The next circle, less close family, friends and so on, until eventually random acquaintances conceptually inhabit the outer rings. The person at the center, by virtue of being the most vulnerable, gets to say anything she wants at any time to anyone. That is the sole benefit of being encased in that awful central ring. That person should not be the recipient of complaints from people in the outer periphery. They can say how they feel, how the trauma is affecting them too, but only to people in larger rings. The rule, as described in the article, is simple: "comfort IN and dump OUT."