What do you think?
Living with Hypopituitarism and other things that happened to come along
Marilyn's life with hypopituitarism starts in 1972 with a medical emergency that, many years later and with the benefit of hindsight, was diagnosed as a pituitary apoplexy. Marilyn spent the next ten years wondering why she was not experiencing the best of health before a diagnosis of hypopituitarism was finally made and she realised that her pituitary gland was not producing sufficient amounts of hormones - a eureka moment which explained everything!
From the time of her diagnosis in 1982, Marilyn brings the reader up to the present day with descriptions of her life, her complex medical history and her other health issues that, possibly, were triggered by the pituitary apoplexy, the late diagnosis of her hypopituitarism and hypopituitarism itself.
This book reveals the challenges Marilyn has faced and the coping mechanisms she used, yet it is clear that, with the support of family, friends and medical and holistic professionals, none of Marilyn's problems have been insurmountable.
All proceeds from the sale of this book go to The Pituitary Foundation.
From the time of her diagnosis in 1982, Marilyn brings the reader up to the present day with descriptions of her life, her complex medical history and her other health issues that, possibly, were triggered by the pituitary apoplexy, the late diagnosis of her hypopituitarism and hypopituitarism itself.
This book reveals the challenges Marilyn has faced and the coping mechanisms she used, yet it is clear that, with the support of family, friends and medical and holistic professionals, none of Marilyn's problems have been insurmountable.
All proceeds from the sale of this book go to The Pituitary Foundation.
- GenresNonfiction
110 pages, Kindle Edition
Published September 12, 2017
Ratings & Reviews
Friends & Following
Create a free account to discover what your friends think of this book!
Community Reviews
Displaying 1 - 1 of 1 review
August 18, 2026
As I’ve found it hard to find resources about my daughters pituitary condition, I was so pleased for have found someone’s personal journey with hypopituitarism. It’s amazing how many differences there can be in diagnosis, but so many similarities in symptoms.
Three things I found most helpful about this book:
1. Hearing someone’s thoughts and feelings of living with this condition. As my daughter can’t tell me how she feels yet, it’s so helpful to hear what an adrenal crisis might feel like. It gives me a greater compassion in caring for her.
2. The sections on how long term steroid treatments can affect bone health. It’s been something I’ve wondered about and it was helpful to hear how it affected her life. I will chat with doctors about it.
3. Hearing her story of how she was able to have children greatly encouraged me. I’ve wondered if my daughter will be capable of conceiving & birthing children. Although her story isn’t my daughter’s, it did give me hope.
The appendix is also a great resource I come back to very regularly.
Three things I found most helpful about this book:
1. Hearing someone’s thoughts and feelings of living with this condition. As my daughter can’t tell me how she feels yet, it’s so helpful to hear what an adrenal crisis might feel like. It gives me a greater compassion in caring for her.
2. The sections on how long term steroid treatments can affect bone health. It’s been something I’ve wondered about and it was helpful to hear how it affected her life. I will chat with doctors about it.
3. Hearing her story of how she was able to have children greatly encouraged me. I’ve wondered if my daughter will be capable of conceiving & birthing children. Although her story isn’t my daughter’s, it did give me hope.
The appendix is also a great resource I come back to very regularly.
Displaying 1 - 1 of 1 review