HOPE for the Alzheimer’s Journey: Help, Organization, Preparation, and Education for the Road Ahead

by Carol B. Amos

H.O.P.E. for the Alzheimer’s Journey equips Alzheimer’s caregivers with knowledge, tools, and advice for their difficult road ahead. The concepts are conveyed in an open, honest, and creative manner using original family email communications from Carol B. Amos’s own journey. Carol also introduces The Caregiving Principle™ : a simple approach that provides a deeper understanding of a person with Alzheimer’s disease and a framework for the caregiver’s role. She provides examples of how The Caregiving Principle™ helped her connect with her mother. Hope in a handbook, H.O.P.E. for the Alzheimer’s Journey encourages caregivers to take care of themselves and provides inspiration for the remainder of their journey.

Genres: Nonfiction

262 pages, Paperback

Published October 6, 2018

About the author

Carol B. Amos started her Alzheimer’s journey when her mother started having memory problems. Carol has immersed herself in Alzheimer’s education by reading and attending conferences, workshops, and support groups. Carol is a CARES Dementia Specialist and is Alzheimer’s Association essentiALZ Plus certified. She was the winner of the 2012 “Your Favorite Memory” essay contest sponsored by the Delaware Valley Alzheimer’s Association. She has a passion to share her knowledge and make the journey for Alzheimer’s caregivers less stressful and more rewarding. She is also working to help eliminate Alzheimer’s disease as an Alzheimer’s Association volunteer, fundraiser, and advocate.

Carol has a B.S. and M.Eng. in chemical engineering from Cornell University. She retired from a thirty-five-year career at The DuPont Company. She is active in her church (youth ministry, women’s ministry, usher board, and construction committee). She has been married to her husband, Alvin, for nineteen years. She enjoys tennis, travel, and gardening at her home in Delaware.

Reviews

[Sam Mueller · Rating 4 out of 5]

This was a great book. It could sometimes get repetitive and some of it didn’t apply to me as a family member that is not a direct caregiver but it had some wonderful insights into the disease and ways to cope. It was also nice to see it from the perspective of someone that personally went through it (she included emails and personal stories) rather than just a medical professional.

[Hanna Anderson · Rating 5 out of 5]

H.O.P.E for the Alzheimer's Journey by Carol B.Amos is a great resource to have for those with loved ones facing Alzheimer's. The acronym stand for: Help, Organization, Preparation, and Education. Ms. Amos openly shares her family's experience caring for their mother with Alzheimer's while lending H.O.P.E to others. She gives practical advice on in home care, nursing facility options, as well as an indepth view at the disease itself and its effect on a family. 


Included in this book are email correspondence between Ms. Amos and her siblings describing their observations on the state of their mother, care options, and personal feelings about what they are going through. The family shares their ups, downs, and occasional humorous moments as they band together for their mother's needs. This inside look can be quite valuable to other families experiencing the same thing offering a positive example and encouraging perspective. 


Even though Alzheimer's can be a devistating disease, H.O.P.E for the Alzheimer's Journey describes a family who's faith in Jesus Christ has helped them to overcome the heartache with grace and a focus on the good things counting their blessings along the way. I recommend this book not only to those with loved ones facing Alzheimer's but also anyone working in elderly care positions. This book is insightful, educational, but most of all inspirational.


This book was provided by the author via the interviews and reviews programs.

[Carol · Rating 2 out of 5]

Too God focused for me.