3.5 stars
I appreciated a lot about this brief but dense volume.
Leading autism researchers Happe & Fletcher-Watson give you the skinny on what science knows about autism, and spoiler alert, it's not much. Autism research is still in its infancy, though it has grown exponentially since Happe wrote the first version in 1994. As the authors note, there are still many areas where there are huge deficits in autism research, especially around topics that might help autistic people to live easier lives, such as autism and aging, sensory and communication issues in autism, or how best to adapt interventions for autistic people.
Most autism research is about why our brains/minds are so weird (based on neurotypical standards), and thus that more neurologically/cognitively focused research is what is mainly represented in the book. The book covers history of autism, autism behaviour (which is how autism is currently diagnosed) - and the authors do a good job of covering autistic critiques of current diagnostic models, and then four chapters dealing with different aspects of autism on a cognitive level.
The cognitive chapters go through all of the different theories on why autistic people understand things and behave differently than neurotypical people. Usually in the research these differences have been understood as deficiencies, coming from a neurotypical perspective. For example, lack of eye contact is understood to be non-social, based on the allistic assumption that eye contact is a required part of sociality.
However, there are also places in the research autistic strengths are recognized such as the way that "repetitive and restrictive interests and behaviours" (as they are called diagnostically, usually called stimming and special interests in the autism community) may promote creativity. Higher perceptual capacity may lead to better pattern recognition. "Deficits" in ability to mentalise (understand another's state of mind based on their actions) may in fact lead to less bias in autistic people. Note all the "mays"- all of these research conclusions are pretty preliminary or speculative at this point.
As the authors note, a good question is whether investing so much in understanding autism causality is really that important. If we accept that autism is not a disorder but a normal part of human neurological diversity, the only reason to understand the cognitive or biological mechanisms would be if it helped us better understand how to adapt our world to be more autistic friendly, or helped us understand harmful co-morbidities to autism (like epilepsy or EDS).
The first few chapters were super readable but the cognitive research was more difficult to grapple with for someone outside the field, and peppered with unfamiliar psychological jargon. To be fair, the book is designed for a psychology student level, not necessarily a lay person; however, this was still my biggest issue with it, as it should be made accessible to the folks it is about, (autists) most of whom do not have a psychology background.
Although the authors are allistic (non-autistic) they went to particular effort to include the perspectives and voices of autistic people throughout the book, which I really appreciated. This includes the great illustrations by Marisa Montaldi that summarize each chapter visually. They even included theories from autistic people such as monotropism, the theory that autism is in face defined by atypical allocation of attention. Autistic people have "few interests highly aroused" whereas allistic people have "many interests less highly aroused" (128). This made me really curious about speculations among that autism and ADHD are actually the same condition with different features. Is ADHD "many interests highly aroused" in the monotropism model? (This is purely a question - the book doesn't explore this, and the common condition theory is a matter of great debate within the neurodivergent and scientific community).
Happe & Fletcher-Watson also called upon autism researchers to do more to include autistic people in the direction of autistic research, and to mentor neurodivergent researchers, so that in future autism research can truly be "nothing about us without us."