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Weird Girl with a Tumor

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I am both smart and not. I am both a social butterfly on one hand and racked with social anxiety. At 5 years old, I was diagnosed with epilepsy – and only after three long years of numerous medications and hundreds of seizures was I diagnosed with a very rare brain tumor, a Hypothalamic Hamartoma. The removal of my tumor, which instantly stopped my seizures, immediately changed my life and left me with a disability that no one can see but only I can feel and only those very few closest to me can attest to that truth. I have a serious brain injury. My struggles are real – I overcame and continue to overcome. SIERRA CRISLIP is the survivor of a rare brain trauma, Hypothalamic Hamartoma. Despite it, she’s gone on to graduate from high school early and obtained employment with the help of a job coach. “Even though you can’t see my disability,” Sierra says, “I want to put the word out there and help others going through the same thing.” Her HH story is on the Hope For Hypothalamic Hamartoma’s website. She resides in California.

73 pages, Kindle Edition

Published October 18, 2018

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Profile Image for Kallyn.
62 reviews1 follower
February 24, 2026
3/⭐️⭐️⭐️⭐️⭐️
I loved hearing Sierra’s journey, especially since I had the same surgery and issue (HH). But I’m not gonna lie, I was kind of expecting more from it. Good for her though for actually writing about it, makes me feel less alone.
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